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HockeyCrystal 05-16-2003 09:48 PM

Just wondering if anyone had some advice for me?
I have sclerosing of my left sacroiliac joint... It's closing off onto a nerve and causing tremendous pain through my leg and butt...I also have hyperlordosis... I had x-rays and all that, went to an orthopedic surgeon a few months ago, and he told me to take Ibuprofen 800's (3 a day, and it's tearing up my stomach) and do some stretches and it would get better. It's been a few months, and I've been doing all of this, but no progress..Not even slightly! A chiropractor didn't help either, in fact it seemed to get worse, and I did all the "treatments" that were supposedly necessary. Also I've had BAD stomach pains after my gallbladder removal in 01 (at 19 years old), and it still seems like I'm never getting any better. I've been to all kinds of doctors, but no one seems to care to help me. It's like they all just ignore me and pass me along to someone else...if even that. I know I'm only 21, but I'm IN PAIN, BAD PAIN. And these doctors just act like I'm a kid who whines too much. That's why it took the doctors 4-5 years to figure out my gallbladder was bad and needed out (No stones). Does anyone know why I could still be having problems? I'm not just some whiny kid...I'm actually in a lot of pain. I have bad arthritis also in my knee, fingers, wrists, and one of my ankles, because of sports injuries and even other types of problems like bursitis and tendonitis in my shoulder. I just don't know what to do anymore. I can't get any kind of sympathy from any doctor I try, and I don't know how to get across to them. I've had EXCRUTIATING headaches since I was a kid also, and they don't even try to figure out what is wrong with me, and why I get the headaches, they just prescribe some meds for the headaches (with no refills)...And the meds aren't very strong...It's not like I'm getting big time pain pills. But when I need a refill (they go pretty quick with my headaches) they say "well, she needs to come in so we can check her" but WHY?! It makes no sense to me, when they don't do anything in the first place! Sorry I'm venting a little, but any advice would be so greatly appreciated you just don't even know! I'm just so sick of being in pain, because if one thing doesn't hurt, something else does... Thanks for any help you can give me.

- * HockeyCrystal * -

Jack Beanstalk 05-16-2003 10:09 PM

Hi HC,
Sounds like you have some really genuine pain issues that need to be addressed by a Pain Medicine Dr.I can tell you a few steps to take that will get you going in the right direction,the rest will be up to you.Go to a good search engine(Google,Lyco,etc.)and type in"Physicians that practice Pain Medicine in Wichita,KS."Look at the responses,write names and phone numbers,call them,ask them if they treat chronic pain,feel them out.make sure you are OK with going to see them,get a referral from your family doc or someone,if they require it.That,s the best way to start.Ask your Pharmacist,they know the Pain Dr.,s.Ask friends,family,forums.You can take these steps and,in,time,you will find a dr. that will help.Good-Luck,HC!! jack beanstalk

HockeyCrystal 05-16-2003 10:19 PM

See this option has never been brought up to me, and I didn't know if I would "qualify" or whatever. Thanks for this idea..I think when I go in to my family doctor to get my headache meds, I'll address this issue with her. Perhaps she'll be able to refer me to one...I hope this will help me get going in the right direction. Thanks for your quick reply, I really appreciate it!

- * HockeyCrystal * -

HERMIT 05-16-2003 10:51 PM

Insist on being referred to a pain specialist. Sometimes you gotta be a little pushy. I learned the hard way in medical circles the squeaky wheel gets the grease. Good Luck.

Autumn Angel 05-16-2003 10:57 PM

You would qualify but some places you need a referal from your family doc so I would ask for one and tell your doc since he isnt treating your pain issues you want someone who will. My family doc was great about treating my pain but still gave me a referal to a pain doc incase he had a better treatment that my family doc was missing. I have the best Pm doc ever he explains my pain so I can understand it not just treat it. In my opinion you need a pain doctor. Check around some dont require referals from your family doc. Take care and best of luck.

HockeyCrystal 05-16-2003 11:13 PM

You guys are great with all your quick replies. Thanks again to Jack, and thank you Hermit and Autumn. I appreciate your quick replies! See I've been watching here for a while, reading posts for several days before I post anything, but I'm like these people have pain and they're going to pain management places...and that option was never even given to me...It got me to thinking maybe I would be able to do something like that, but I would've had no idea how to go about it..In fact I don't know if I ever would've even tried had it not been for you all's encouragement... But now, I will definitely tell my doctor that I need someone to address my pain issues, and if it won't be her, then I need someone else. Another question...Should I not take the ibuprofens? I'm worried they're going to make my stomach worse! I don't want that, that's for sure! But they're already tearing up my insides, or at least they feel like it sometimes.... Well thanks again, and any other replies I'll still be very appreciative.

- * HockeyCrystal * -

chriztene 05-17-2003 04:15 AM


You have received great advice from the caring posters...I had a similiar situation and I finally had to request from my urologist to refer me out to a pain management doctor.

Fortunately, I had joined and Interstitial Cystitis network and met a women from my state who really provided helpful information, as she had already been through the same situation you are in.

I was visiting a pain mangement message board (probably this one) and someone mentioned to do a search for 'pain medicine physicians.' This was really helpfull information/advice!

I was referred to one pm doctor and I found another one on the American Academy of Pain Medicine; which I now see and whom is an awesome, caring, knowledgable doctor.

It's a good idea to mention this to your pcp immediately as most pm specialtist have a long waiting list to get into see them once you are referred. Yes, most(if not all)pain management doctors do require a referral with a diagnosis from your pcp, urologist, etc.

I wish you the best,


Autumn Angel 05-17-2003 07:14 AM

Crystal...Stop taking them girl..I took every kind of NSAID for 12 years they ruined my stomach to the point where one night I had a horrible attack that landed me in the ER with heart attack symptoms (it wasnt but I didnt know that) It was burning everywhere my stomach my chest my throat it felt like there was an open sore in my stomach it hurt so bad all because of the NSAID use. They immediately told me to stop taking them and put me on a narcotic this was 2 years ago. If you can grab some Zantac or an acid reducer do it you know the ones that prevent the stomach from making too much acid? Untill you can get in to the doc for the heavy duty stomach pills which I think you need. I am presently on Ranitidine which is prescription Zantac because mine is now under control but when it was bad I was on Nexium and Losec 20mg they are one a day pills that heal the damage as well as prevent it from returning. I would say you need them twice a day to start like I did and as it gets better you will need less. Ask for an upper GI like I did to make sure you have no damage there. I am trying to think of what you could take in the meantime if you go off your Ibuprophen. I would suggest a trip to the Er or walk in clinic they might give you the Nexium then and there but they might not perscribe a narcotic painkiller your best bet would be the ER rather than a walk in clinic or taking the new tylenol 8 hour through the weekend. I know how it feels when it get bad dont wait for that ok? Please keep me posted on what you decide to do ok and if I can help anymore I will.

grizzk62 05-17-2003 07:23 AM


i have to agree w/Autumn. Stop taking those NSAIDS. I had a bleeding ulcer that landing me in the ER as well and a couple of nights stay. I'm now on Prilosec and zantac everyday because of that . I also have a Hiatal Hernia as a result as well. I'm on Bextra now and because of all the immflamation in my spine I will probably be on them the rest of my life. Get the OTC acid reduces like Autumn said of go to a Dco in the Box and have them perscribe the heavy duty ones. I hope that you get this resolved ASAP. NSAIDS land 10s of thousands of people in the ER because of their destructive nature. I hope this Helps...


HockeyCrystal 05-18-2003 03:01 PM

Thank you all for your caring help. I will stop taking the NSAIDS..I don't like them anyways. I actually cut way back after all the stomach pain they were causing..Just taking them when I *REALLY* needed something a little stronger. I have to have surgery on Tuesday so I haven't been taking them at all for almost 2 weeks (can't take anything but tylenol since it doesn't thin the blood)..But I haven't taken much tylenol stomach pains have calmed down a bit...I still have pain, but that's more from the trouble my gallbladder has been causing since it was removed... Anyways, I'm going in to my PCP as soon as I heal up from the surgery I'm going to have behind my ear, and tell her that I need a referral and perhaps something to cope until I do get into one. I appreciate everything you guys have advised me on, and if I can ever help in any way, I most certainly will. And I'm glad now I have some people to ask if I happen to need any more advice. I'll keep you guys posted on what I'm going to do...Thanks again for all of your help! :)

- * HockeyCrystal * -

chumbo 05-18-2003 04:16 PM

Sorry to hear that you are being made to live with such terrible pain. What type of meds do you take for your headaches?
I go to a PM Dr, and have talked to many of other Pt's in waiting room, there are several people I have met there that see the Dr due to headaches. I agree with all of the other reply's that said to find a Pm Dr via internet search. I am sure you will have success, with finding the right Dr to help you.

Good Luck


HockeyCrystal 05-20-2003 12:59 AM

Oh yeah by the way, The surgery to remove the lymph node behind my ear is today (Tuesday) at about 10am CDT. That's in about 7 hours, but I have to be there at about 8:45...And I haven't had anything to eat/drink since about 3 1/2 hours ago. I'm scared, but I just wanted to let everyone know what's going on, and tell you guys I'll let you know how I'm doing after I get home (it's a same day surgery)... I also will check on the PM dr after I heal up a bit in a few days. Everyone have a good day! Pray that my surgery goes well. :) Goodnight for now.

- * HockeyCrystal * -

HockeyCrystal 05-20-2003 01:03 AM

Oh and I was given Fioricet for my headaches.. (which doesn't hardly work anyways, but it's better than tylenol.)

- * HockeyCrystal * -

mokita 05-20-2003 03:30 AM

Good Luck HC!!! I will be saying a prayer for you!!! :angel:

The fioricet is probably the most popular med that I have seen headache sufferers mention on different boards. Perhaps there will be others that can tell you different ones.

Let us know how you are as soon as you are able! :)


9/22/00 24 hour labor, baby posterior, left tailbone killing me
12/00 MRI - PCP said nothing amiss - but, had to begin taking vicodin
2/8/02 - 2nd baby born after long, painful pregnance as weight gain
2000-11/02 various PT + pain meds
11/02 Referred to Neuro
3/03 NEW MRI - shows slight bulge L3-L4,slight DDD Neuro Refers to PM for ESI
3/03 PM Doc orders ESI
3/21,4/1,4/8 - ESI's no help
5/9 - Discogram - shows Tear L4 w/ significant leak onto nerves, DDD
Doc sched NEW discogram 'cuz performing doc oversedated, False Negative

HockeyCrystal 05-20-2003 11:23 AM

Everything went okay, except I woke up in the operating room during the operation. They didn't put me back to sleep either, so I'm a little ticked off about that, luckily they had used some local also, but now I'm back home, and the local hasn't quite worn off yet, but it's starting to. It's throbbing a bit, and my incision is about 1 1/2- 2 inches long and stitched up...No dressing which is weird since it's bleeding, but oh well. I am going to go lie down and possibly get some food in my stomach so I can take my pain meds as soon as they get home for me. I'll keep you all posted...

- * HockeyCrystal * -

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