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    Old 08-05-2003, 02:26 PM   #16
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    Glad to hear everything went great!!! For both of you, Hottrodd and Crystal! Sounds like what Grizz said, like the doctors are finally getting it . Im so happy for the both of you and please do, keep us informed!!


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    Old 08-05-2003, 11:39 PM   #17
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    Thanks for everyone's well wishes, advice and concerns, you have been so helpful through this last week of frustrations.

    Also glad to hear your on the way to getting some answers as well Crystal. Yeah it sure does sound like were in the same boat with the worries, pain, frustrations and so on. Please keep me updated on what's going on with you as your appointments progress ok?

    Crystal, do you have a plan yet on what your gonna explain to your Pain Doc on your first appointment, or what goals your going to tell him/her you would like to acomplish? (tests, med history, concerns ect.)

    I am a little nervous just because you have to explain your whole situation over again, and hope they hear me right. I am trying to make a list of goals I would like to acomplish and tell them the best I can what I would like to reach for (basically feel better than I do now! *LOL

    Also I want to make sure I have all my med history available, as to tell them what has worked, what doesn't and so on.

    I hope I get a good PM doc so they can finally start helping me, not only find out what's wrong, but also make my quality of life a lot better. Life is so much fun, and I feel as if I took it for granite when I was healthy and not in pain. I only wish now I can have that opportunity again, and this time I will for sure live everyday like it's my last.

    I hope your doing okay, as well as everyone else. You guys are so supportive!

    Thanks everyone..

    * 27 years old, male
    *Chronic upper back pain for about 6 years, recently getting really bad, really stiff in the morning takes forever to get going, lasts all day everyday.
    *Crackling sounds from rib cage area across upper and middle back when stretching.
    * Pain, tightness and burning all day long, usually ranges from a 4 through 9 depending on the day and how my body wants to react. Usually it's at least a 6/7 all day recently, used to be an annoying 3/4 all day, which I lived with but hated.
    *Problem areas are mainly around breastbone area of chest, across shoulder blades, dead center upper back, upper shoulders and back of neck. Feels as if it's muscles and bones/joints, possibly ribs.
    *Muscles spasms, had a couple that were severe enough to go to ER, felt like I was having a heart attack, pain radiated through upper back to chest area.
    *Taking Vicodin 5/500 Soma 350 and Celebrex 200, which also helps somewhat but not to where I am not bothered by the pain, burning, tightness ect..
    *Chiropractic 3 years, PT on and off again, all of which produces results that do not last for more than the day I have them.
    *Can't remember any trauma I had that would have caused all this. Don't understand how it's getting worse.
    *Can't really do anything, lifting, heavy physical ect.. Try and walk and stretch when I can.
    *Still undiagnosed and waiting

    [This message has been edited by hottrodd (edited 08-06-2003).]

    Old 08-05-2003, 11:59 PM   #18
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    I hear you there. I have a pain journal I've been keeping for about a month or so. I am going to take that with me as well. I also received there information in the mail that they want me to fill out. It's very in-depth and full of details. I filled it out already, and intend to add to it if I have something new to report before my appointment. I have already made a 4 page list of ALL the treatments I've tried, Including meds, tests, different specialists, etc. It also includes how my quality of life has been disturbed, and what I used to be able to accomplish, before the pain... I hate how I have to take a pain pill every 4 hours just to feel halfway ok. I don't even feel good enough to go on a walk though most days. So I know what you mean trying to explain things all over again, and trying to get a whole new doc to believe you. That's why I intend to back everything up by things I've documented.

    Anyways, I will definitely let you know how things go as things progress. Let me know when you find out when your appointment is... I wish you the best and hopefully we'll both get the answers we so desperately need to regain our lives back again. I too took things for granted, although I took advantage everyday before I hurt myself. I just wish I could get some adequate pain relief, and be able to FUNCTION again. I can't even sit at my computer for more than 20 minutes without hurting really bad and feeling the repercussions until I can take another pill... My percocets only seem to last for like an hour after the hour it takes to kick in, then after an hour it's worn off, and I have 2 more hours before I can take another, and another hour for it to kick in... Makes things really rough on me... Well, if you need anyone to talk to, I'm here!

    -21 year old chronic pain patient..
    -Have a transitional vertebrae @ s1.
    -adhesions from years of not knowing gallbladder was bad then had it removed, lots of abdominal pain now...
    -Chronic severe migraines, and tension headaches... Taking Imitrex for migraines.. Working well...
    -Lots of low back and mid back pain growing up.. Now having lots of knifelike shoulder pain between spine and shoulder blades..
    -Pain overall between 7-9 everyday without meds.. But when meds are present, (and not wearing off) I'm between 4-7..
    -Moderate case of TMJ
    -Lots of throbbing pain in left knee and left arm from previous fractures..
    -Meds I'm taking now : Percocet 7.5/500 every 4 hrs as need for pain, Flexeril 10mg 2x/day, Tofranil 20mg @ bedtime, Imitrex for migraines, Phenergan for nausea/vomitting, Albuterol for asthma... That's all I can think of for now..hehe...
    22 year old chronic pain patient and college student in Wichita, Kansas.

    Old 08-06-2003, 02:34 PM   #19
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    Hey Kimberbella!!

    Can you please explain the "shock pain" you're experiencing!!! I, too, have "electric shock" type pain..what area do you have those shocks??? I cant beleive i actually found someone with shocks!! Do they increase with heat or cold temperatures??

    Please let me know!!

    car accident 3 1/2 years ago
    nerve root compression C4-C5-C6
    chronic myofascial back pain(sacrum area & shoulder blade) and neck pain (refers to back of head going to top of head).
    Trigger points everywhere!!!!
    MIGRAINES with phonophobia(cant listen to radio) and photophobia.
    electric shock type pain ( facial area)
    sleeping problems
    TIRED all the time.
    sore all over!
    Vision dizziness ( cannot read or cannot look at anything that moves fast without being dizzy and in pain)

    Old 08-06-2003, 08:11 PM   #20
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    Hi Picas

    I seem to have these "zap" like pains. They thought that it was nerves misfiring all over.. but now they just dont know.(as the nerve and muscle tests came back neg.) Im so frustrated, I dont even know what to do anymore.

    My rib cage where it is mostly. It gets so that Im always "shocked" some days/weeks and others its better. You know, I never have actually taken into account the weather factor!! That is something to look into!

    I looked at your summary. I saw that you have myofascial pain. Please, lets talk more about this. I assume that you've read what Im looking into, and I would really appreciate talking about this and ask questions, if you wouldn't mind? Im finding deadends everywhere I look and its driving me crazy!

    The things that seem to be helping with the "zap factor" are the Topamax, however. I am convinced that it has to be something effecting the irritation of the nerve endings.. even though there is "no damage" to them. That is the only thing that I can possibly think is the reason that the Zonegran, Neurontin and now the Topa has helped.. to a certain extent with this type of pain...

    Tell me your thoughts, please. What have you tried? What and were is your "zap factor"? How long does it last? Does it surprise you also... when mine comes I cant help but let a "yelp" out because it hurts/surprises me (however when on the Topa it does help, to an extent...) And when Im not on pain meds or something to numb the nerve endings (thats what the Neurontin, Topa, and Zonegran was being used for in my case) Im in absolute agony ... indescribable pain.

    Also, the other pain that I have are in my legs and arms also ... but those are more of a long aching, tight muscle pain with occasional random numbness (usually in toes and fingers or fatty part of hand.. and now tingly/pins and needle sensations.. like the arm is about to fall asleep.

    I have no idea if any of this makes since. Ive had tests after tests. Today just had an MRI and wont know the results until Monday or Tuesday. The neuro isnt hopeful that it will produce any results, but who knows?

    Hope to hear from you soon,


    Old 08-08-2003, 12:43 PM   #21
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    Hi Kim!

    I just got your message! What are the muscles and nerve tests?? What is the test called??

    One thing i know for sure is that any electric type pain we feel is from nerves...probably compression of nerve endings..roots!!, like you said.

    Some days i have 25-30, and some days 5-10 and some days i dont have's so weird! It all depends on what i do...the more i seem to do, the more my muscles tighten up and the more compression is on the nerve and "ZAP" my head jolts and electrifies me. The heat will do this to me also(when i'm stressed), and the cold has done this to me as well..3 times!

    I hate the feeling of these shocks.. When you have one..does it usually follow with others??? I usually have episodes where i have one big one and then a couple little ones following. They only last a couple seconds though..THANK GOD!!! Oh and i have alot of hot flashes after?????

    My shocks are always in the facial area...the jaw, head and sometimes all around the face.

    I recently saw a specialist and she told me that i could have Multiple sclorosis from a car injury...i couldnt beleive. I did some research on MS after and found a very similar story to mine about temperature giving shocks. I hope i dont have MS!! Did you ever here this before???? Alot of people say it isnt true, but she is a new doctor and she seems very intelligent and sure of herself. That specialist was a TMJ and orafacial pain specialist. She saw me for the facial shocks and pain. She doesnt know if these shocks are from the jaw. I will see her again this month. I'll let you know!

    What about TOPOMAX??? any side effects?? I hope not!

    My email is [email protected]
    We can chat about Myofascial pain. I have done alot of research and hopefully i will be able to help you!

    Old 08-09-2003, 03:23 AM   #22
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    Im like you given lots of pain meds, then they give up and send you back to the PT you just did for a year. In a year they'll send you back to pain managment. Can't they just get rid of the pain I don't want to manage it! Id like to think its just an LA thing for us but it looks like its all over.

    Best of luck in finding healing! I have been going to a fabulous massage therapist who also does Reiki for treatments once a week. She really listens to the muscles, works them through trigger points. Its so much better pain relief than the drugs. If you're in LA, she is near the Beverly Center area, look up Laura Sadler + Massage Spirit on the web. and it should come up. I don't like the Celexa, or the Zoloft so I had to find another out. Reiki seems to help me with that.


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