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  • Are you treated different by other doctors as a CPer?

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    Old 11-04-2010, 07:52 AM   #1
    sammyo1
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    Are you treated different by other doctors as a CPer?

    Ive noticed a big difference at times when visiting other doctors since entering PM & having CP. I'm really curious if anyone else has experianced the same. I find it hard to believe its just me. I had one doctor acutally apolagize for the way I was treated by his office & him. He said it was his first experinance caring for a person in PM & on narcotic med therapy.

    I find that hard to believe & told him do to the way I was treated people are hesiatant about listing meds or stating they are in PM. He said he does not doubt others have came through his office.

    Just went to my PCPs & definantly noticed a difference in my NPs attitude this visit & I know the reason why. I think its time for a talk but I am curious if others experiance the same.

    I know the treatment by some pharmcists is negative & I'm noticing & reading about it more with doctors, doctor office's & even dentists.

    My husband had his doubts at first until he seen it during one of my appointments. Now he knows & with any new doctor he will attend that appointment.
    Anyone else?
    Sammy

     
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    Old 11-04-2010, 08:02 PM   #2
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    Re: Are you treated different by other doctors as a CPer?

    Yes other doctors do treat you different, I had surgery and my surgeon was so upset with the fact that I take so much pain medication for my back that all they offered me in the hospital after they cut out 2 huge cyst with a liter of infection was 2 percocets, I take Oxycontin and they would not even give me that.... other doctors are the same I do have a great PCP that understands because he has looked at the films on my back. I am sorry you go thru this it is unfortunate that we are treated like we are recreational drug users! I do hope it gets better for you and you will be able to find doctors that understand your condition.

     
    Old 11-05-2010, 01:15 AM   #3
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    Re: Are you treated different by other doctors as a CPer?

    I dont' have that problem with medical docs, they dont' have a problem with it, nor dose my pharmacist. The only docs that are hesitant about it with me are psychiatrists when I meet them for the first time. I have BiPolar disorder as well as CP, and they have a legitimate concern about safety and having access to those kinds of narcotics.

    I'm beginning to think another factor to Doctors attitudes is region....I live in Chapel Hill, NC right between University of North Carolina and Duke University...both very big major universities with major mediical centers, research centers, etc. I think CP is dealt with a lot in this area so it's not as big of a "shock". I may be totally off, but it's just an observation.

    Kat

     
    Old 11-05-2010, 10:14 PM   #4
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    Re: Are you treated different by other doctors as a CPer?

    I know it can't be just me so thanks for your reply Michelle. I so dread any new doctor appointments & thank god my husband understands my fears.

    Katlin you may be on to something. Ive noticed others mention getting help for CP is hard in certain areas. There is such a stigma with pain meds. I never had any problems with my PCP for the longest time & I think this may have more to do with me requsting they order my tests with my PM being out of network. Most doctors do not like dealing with insurance companies.

    My surgeon did not like pain meds at all & thank god my PM stayed on through my surgery. I actually weaned off some of my meds after surgery until I started having problems with nerve pain. The surgeon said the meds were causing my pain but an EMG showed that was not the case, thank god.

    I can understand the concern but of all doctors you would think spinal surgeons would understand the need for pain meds at times.
    I'm going to bet if they were in our shoes they would not hesitate to seek relief. I still have days I struggle with taking meds. I simply can't believe they are part of my everyday life. I would hate to see what it would be like without them though.

    To be honest I don't think others can imagine pain severe enough to require pain meds daily. Even those in medical. Sad as most of us would love to never take another pill or patch.
    I have a pretty good relationship with the pharmacists for now. Hopefully they stick around for a while.
    Thank you both so much for your replies. Ive been wondering if others experiance anything like this.
    Sammy

    Last edited by sammyo1; 11-05-2010 at 10:17 PM.

     
    Old 11-14-2010, 05:25 AM   #5
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    Re: Are you treated different by other doctors as a CPer?

    I know how you fill cause I use to fill the same way until I got to the point where I hurt so bad and didn't care what they thought of me. When your in so much pain that you can't sleep or anything you get a hard heart and just tell the doctor how you filll and if he/she can't help you that there is one out there somewhere that understands and will help you. We all just pray for eachother and God will make a way. God bless and good luck in the future.

     
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    Old 11-14-2010, 06:14 AM   #6
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    Re: Are you treated different by other doctors as a CPer?

    it is soooooo unfortunate that what you speak of is true- i had an incident just recently by a new im doc-but not the dr-hid=s nurse!!! the dr was wonderful and ordered some testing-nad one was blood work and i am a difficult draw-so after the lab tech stabbed me 7 times-i announced i will have my blood drawn at th hosp-as where i usuaaly go for my pm blood work when he orders some-cuz his nurses cant draw my blood either-anyways this b#### at the new im dr totally brought me to tears, i was in so muc pain brought on by the stess of the failed attempts to get my blood-so anyways the office mngr notices i am crying and i tell her how i was just treated and i pointed out the nures-she walks over and tells the officemngr i am not cooperating!!?? so, instead of seeing the dr again and reporting this person-i just left-i couldnt take it and will not return evan though my pm did refer me and the dr was nice and i really liked him-i could not take that kind of treatment from his staff-it is as many of you know and understand already stressful enough trying to function with minimal relief anyways thats how it is for me from my pain meds-but am greatful for any relief at all.
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    Old 11-14-2010, 06:47 PM   #7
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    Re: Are you treated different by other doctors as a CPer?

    Sammy, I don't know if you read or followed the posts that I wrote about what happened to me. It was a horrifying ordeal. After 6+ yrs witht the same office after a cervical laminectomy/cervical fusion, the fnp at my cpc's office (she is the person I saw month after month) she had been trying to get rid of me for about two or three months. She sent me to a pain management doctor, who after seeing the medication and the amounts I was on, would not accept as a patient, she had me see the pain doctor at their office (funny I had never been referred to him or even heard about him) and ended up back with her. Then at the following visit, she said that I was manifesting drus seeking activity and I had 30 days to find a new doctor and not to return to that office! I went through hell. I called all the doctors offices in my area (up to 10 t0 15 miles away) and after I had said that I was a chronic pain patient I was told that they were not accepting new patients. I went to urgent care and the first time a doctor there prescribed me a week's worth of medication. He was one of the only ones who actually looked at my MRI and read the reports I had taken with me. I also took 6 mths worth of prescription history from the pharmacy. The second time I went, the doctor straight out told me, I'm not going to prescribe you any medication" didn't look at any of the info. I had brought. I then went to the Urgent care at a local hospital in horrible pain, withdrawl and a new stomach pain and the resident was so very rude to me, she made me break down crying. She told me, "I'm not going to risk my license prescribing you something. The strongest I'll give you is tylenol." she said why haven't you found a doctor? I told her that I had been trying and she said don't tell them you're a chronic pain patient. I old her, I couldn't lie that before my first appt. they'd have taken a look at my medical record and then ask why I hid those facts. She was very rude. I wrote a long letter to the fnp that I had previously seen and told her that what she had done to me was unethical and immoral. I also told her that she had been trying to get rid of me and many other things. Well, she had an assistant call me (the girl is a friend of my little sister's and a major gossip) and told me when I answered the phone, "in reference to the letter that you sent, FNP $*^%$, said to get yourself into rehab quick and hung up. I was stunned!
    There's a huge difference in how you're treated as if we enjoyed being in a state of constant pain and could help it.
    There's more to the story but you get the gist of it.
    Sorry so long,
    -Sunny

     
    Old 11-14-2010, 08:59 PM   #8
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    Re: Are you treated different by other doctors as a CPer?

    I have to post the positive experience from my team of doctors, following my new addition of narcotic pain medications. These are the same doctors who have treated me before the onset of my pain, and both witnessed and recommended my need for narcotic pain relief.

    I am under the care of several specialists, resulting from surviving 4 strokes, kidney failure and heart attack, and related illnesses. When severe women's illness set in early this year, and all potential treatments were ruled out due to the high risk of surgery, leaving narcotic pain relief as the only immediate treatment for me. We are still searching for other solutions, but until that time, my doctors are very supportive of this therapy.

    It is a shame for those of you who have had less that positive reactions...it is enough to have to use the medications, but to have to made feel less than before is sad. I am sorry to hear of all your run ins with those who are not acting appropriately.

     
    Old 11-15-2010, 04:17 AM   #9
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    Re: Are you treated different by other doctors as a CPer?

    BB07, so where are you now in terms of the new doctor and that office? Did you go back to the original doctor who referred you to that person/office.
    She couldn't get blood after 7 tries of sticking your arm and she scolded you? Unbelieveable! You should let the doctor know that it is her insensitivity that pushed you away. Hopefully they will do something about her. We didn't ask for this lot in life and horrible ignorant people act like we want this crap in our systems. Purdue doesn't care about individual people it only cares about the profit margin being in the black. If they cared they wouldn't have pushed this junk of a medication out into the market without proper test studies. I don't know what to do about it. We are damned if we do and damned if we don't kind of situation.
    Good luck and I am sorry you had to go through that crap.
    -Sunny

     
    Old 11-15-2010, 06:15 PM   #10
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    Re: Are you treated different by other doctors as a CPer?

    I have been pretty lucky, except for one ER doc. My family doctor is very understanding and knows the docs from my pain clinic and my surgeon and she has always said that she trusts that I truly need the medical care I am getting. After I started PM I was very worried to back in for my annual physical because I was afraid I'd get that look. I was so relieved when it didn't happen. The medical assistant kind of glanced twice at my medication list, but I just brushed it off.

    I did have to go to the ER once before my first surgery and I was openly treated as a drug addict from the ER doctor. If it were to happen again today, I would probably confront him for making assumptions and tell him off.

    When I had surgery last year, my first appointment with the surgeon produced raised eyebrows, though. I told him what I was taking and he remarked "That's a lot." Turns out it isn't a lot, but what do surgeons know.

     
    Old 11-15-2010, 10:20 PM   #11
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    Re: Are you treated different by other doctors as a CPer?

    My experiences have been relatively positive. Sometimes they are stunned based on my sunny disposition that I'm now on LTD, applied for SSDI and now pain meds. But thus far all have been supportive and PCP has asked "anything I can do to help you navigate the process?" Gynecologist said "Sorry to hear that. Let us know if you have any symptoms that you may thing are gynecological and don't just let pain meds handle those. I've had patients in long term pain management who forget that other parts of the body may have pain that needs different care". Even my dentist was good about it. Had an emergency visit with him Thursday for a severe tooth/jaw infection I let go too long and I told him I could not have him prescribe pain meds due to my pain contract but he said if I need something stronger he'd be happy to communicate this to the PM doctor.
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    Old 11-16-2010, 03:53 AM   #12
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    Re: Are you treated different by other doctors as a CPer?

    SpineAZ, I am so glad for you that people are decent and good. My experiences the past two months were horriffic and just plain awful. I hope that my new doctor and his staff, the other doctor in the office is his wife and he said I can go to her for gyn issue and my annual. I am thus far please and content with the experience, but it's like everyone has to put their two cents into my business. For example, the pharmacy I have been going to for the past 10+yrs. saw it fit to scold me the other day when getting a script filled. The scolding was due to the fact that according to the pharm. it was the 3rd script from a third doctor (I had to expalin to him in front of everyone that my doctor had withdrawn from future care and that I had no PCP and that this was a script from the neurosurgeon who had told me that I had 3 different dislocations/herniations at three different levels, the nerve at L3 was being compromised, two facet joints rubbing and also DDD, arthritis and more. and that I would be getting my scripts from him now and that the others had been from emergency facilities during a period of having no doctor.) the pharm. didn't even listen.
    I hope that I never go thru an experience like the one I went thru those two months.
    I am happy for you and hope that the support continues.
    -Sunny

     
    Old 11-16-2010, 07:19 AM   #13
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    Re: Are you treated different by other doctors as a CPer?

    Sunny, I'm so sorry you had to go through this. Most of us know the pharmacists will question scripts coming from multiple doctors BUT he should have handled your situation entirely different. For example he could have ask you to wait until there was no-one around or even asked that you phone him. He also should have understood or made the effort to understand after you went out of your way to explain your situation. There is never a good reason for treating a customer with disrespect & beyond that he violated your privacy. For that reason alone he should be held accountable.

    Did you file any kind of complaint?
    I can honestly say I would have.
    You gave him an explanation & he should have at least apolagized.

    Spine, Your one of the lucky ones & its good to hear you have such compassionate doctors.

    I had a procedure done with a new gyno last Feb. The first visit went fine, as the MA & docotor were really nice. Now before the next visit I had changes with my meds & also had a different & very young MA come in to go over everything with me on my second visit which the actual procedure took place. Needless to say she freaked when she heard my meds. In return the doctor reacted in a negative way & decided since I was on pain meds I did not need the normal injections they do before the procedure to prevent inflammation.
    Well it was a nightmare & he lectured me while I was on the table in a not so lady like position on the dangers of pain meds. Like I did not know all of this?

    I was in so much pain & could barely walk out to meet my husband in the waiting room. They kept me waiting there because my pain was so high as was my vitals. Mean while I was dying to get off my feet & wanted so badly to lie down. I told the nurse my pain was out of control & I was not waiting anymore I had to get home & off my feet with some ice & heat.

    My next appointment, which I had to talk myself into going to the Gyno apolagized & said he could not blame me for being angry & asked if my husband wanted to hit him after the pain he put me through.

    He spoke to other doctors & did not understand that my pain meds would not control any added pain caused by the procedure.
    I did not ask for anything from him but did expect the injection which I had discussed with my PM. It caused all my other pain levels to skyrocket, especially my lumbar area do to being on a hard table in a certain position I am guessing.

    He asked me for another chance & promised to speak to the MA who was so rude to me. He stated this would never happen again in his office & I had his word. He said he never treated anyone in PM before or on narcotic med therapy.

    I responded he more then likely had a couple pass through but do to the way I was treated they don't always reveal everything. He actually said if they all go through what you just went through I can understand why.

    Then told me if know of any women in need of a Gyno with my type of problems refer them to him, he will make sure they have good care & not be judged. This is the only time I ever had a doctor apolagize & I let him know I appreciated it. Needless to say I was in shock all day.

    Now the difference between the first MA & the second is the first just returned back to work because she had injured her back. Yep she completely understood how much pain is involved & stated it was the most painful thing she had ever experianced. So my meds were no big deal to her & the change between the first & second visit with my meds was not a big deal. Just a change in dosage & I explained the first visit I did not know for sure if my PM would even keep me on the med as it was new & we were trying it out to see how I would do.

    As for my PCPs office I honestly think they do not like ordering any tests that have to do with my CP. With insurance companies making it so hard for patients they should all work together as a team or the patient regardless.

    Sooner or later we are going to need some kind of advocate for CPers.
    It's so unfair to be treated different because we live in chronic pain. One of themost common & effective treatments is med therapy & we should not be held accountable for those who abuse.

    Sorry about the long post but I really wanted to share my experiance.

    I am curious Toonce how would you handle it if you were faced with that problem again? I should do a thread on that one.

    Really we don't let animals suffer or its animal abuse so why do we let humans suffer?
    I pray one day, some how, people understand its not about the medication its about trying so hard to have some degree of quality & pain control in our every day lives. When you listen to others its so easy to see they focus on the meds that are abused & not on the need for them. Ignorance breeds more ignorance & the people who should understand the most are doctors.
    They do take an oath "Do no harm".
    Sammy

     
    Old 11-16-2010, 07:33 AM   #14
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    Re: Are you treated different by other doctors as a CPer?

    I've been in this shape since 93 and I've had 5 major surgeirs on my back but I thank God that im able to walk and do things at a slow pace but I too had to go through many different doctors. I kinda understand some of the doctors but a person shouldn't have to go through that kinda treatmennt when you got the proof on MRI's or x-rays showing that there is a problem and you are looking for help and NOT a drug seeker of that sort. May God bless you and help you and I'll pray for you also

     
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