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    Old 01-29-2012, 09:41 AM   #1
    PainInOK
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    Pain Doctor in OKC?

    Hello Everyone,

    I'm new here as you can obviously tell. Since I'm new here I feel like I owe it to you to give you some background information about me so you have an idea where I've been and where I'm coming from.

    I've had chronic pain since 1994 from a botched surgery. The doctor cut an artery while doing surgery, as a result I had to have a blood transfusion. I almost died on the operating table according to one of the nurses who came to my wife and I and spoke to us in confidence. The nurse begged us to not tell anyone what she told us. Anyway, come to find out I didn't need this surgery after all. The new doctor I went to told me I should have never had the surgery in the first place. Well, how was I to know this? I've learned a lot since 1994 (thanks to the internet) and I can assure you that I'm much more assertive about asking questions, looking things up on the internet, etc. By the way, the doctor who did the surgery fled back to his country of origin due to several lawsuits that were filed against him.

    The botched surgery left me in pain and my new doctor Rx'd me pain pills for it. He's not a PM doctor and was not comfortable about doing this but he knew the pain I was in so he Rx'd hydrocodone to me for many years. I eventually developed arthritis all over my body which cause me to not be able to jog anymore or do any of the activities I used to do. Come to find out I had (still do) lyme disease. My lyme doctor asked if I was ever bit by a tick. I wasn't, but I told him about the blood transfusion. He tested me and my test came back positive for lyme. He firmly believes I contracted Lyme disease from the blood transfusion. In case you aren't familiar with lyme disease it's a very controversial disease that many doctors discount, or even deny that it exists in many states, Oklahoma being one of them.

    Anyway, my lyme doctor sent me to an arthritis doctor who did not believe the lyme was causing my arthritis pain. Arthritis is actually is one of the major symptoms of lyme disease. There are 300 diseases that mimic lyme disease. It can cause excruciating pain in various parts of your body, or all over of your body. Regardless, my arthritis doctor did try a number of medications, on me, including a tens unit, all to no avail. He asked me if I ever tried hydrocodone? I told him I have and was on it now. He told me he would Rx me hydrocodone since that's what worked most effectively for me. He Rx'd me 10/325 hydrocodone instead of the 7.5/500 I was on. Prior to that he tried stronger meds like morphine and, I forgot the names of the other stronger ones, but they all made me nauseated and mucked with my mind too much. Hydrocodone didn't do that to me, and I was able to pretty much do my daily routine without much difficulty, except I could no longer jog due to the pain while running. I'm still limited to what I can do throughout the day with pain meds, but without them I can't do much of anything.

    For about 8 years my arthritis doctor Rx'd me hydrocodone without any problems whatsoever. In the 8 years he Rx'd me pain meds I never refilled early, except the two times we went on vacation. He had no problem about giving early refills for that purpose. Sadly, he recently retired and I was assigned a new doctor. I could tell when the new doctor walked into the room he had it in for me immediately. He read my file and said, "SO, you think you have lyme disease, eh????!!!" I said, "Yes, I've had Lyme disease since 1994 from tainted blood, and the records to prove it are in your file". Oh, he didn't like that at all. He put me on notice that, he not only didn't believe in Lyme disease, but he also didn't believe in Rx'ing pain meds to the extent my previous arthritis doctor in the same group did. Recently he sent me a letter saying he felt he could no longer be of help to me and to find another doctor. Long story short, I'm soon going to run out of pain medication and I don't know where to turn to.

    My GP knows my situation and he believes I have Lyme disease and knows the problems that are associated with it. He has several patients who have it, so he does have some knowledge of it and doesn't minimize it or deny it's existence in Oklahoma. Plus, he's also an ND too, so he's more open minded than most MD's are about this. However, he does not treat Lyme disease, in fact, no one in Oklahoma does. Those of us in Oklahoma who have Lyme disease have to go out of state for treatment. My GP agrees with me needing pain meds, but he does not feel comfortable Rx'ing them himself due to how strict the DEA has become on cracking down on doctors who Rx pain meds. He referred me to two PM doctors, but when I called them, they told me that they only do injections. I cannot do steroid injections because steroids are contraindicated with Lyme disease. I took three injections two years ago in the spine for leg pain and afterwards I became deathly sick for six months. Could barely eat two or three saltine crackers a day and lost 75 pounds in six months.

    The two PM doctors I called here in Oklahoma said they don't deal with patients who have Lyme disease pain. My GP told me not to tell them I have LD and just tell them I have pain. That's all fine and good except when I tell them I can't take the steroid injections then they ask why. Plus, I do believe that my records could be pulled on their computer and they can probably find out this information if they wanted to, right? Not only that, I really don't want to have to lie about this because if I'm caught lying about it then the PM doctor finds out he/she will probably cut me off from pain meds. All of my records that the PM doctor will want for verifying my need of pain meds has Lyme disease references in them, so there's really no way to avoid mentioning this no matter what.

    As I've been doing some searching on PM doctors in Oklahoma, I'm stunned at what some of the people say about these pain doctors. They say they're treated like drug addicts. Some of the experiences they share about these PM places are horrifying. I've never been to one and am not at all excited to go to one, but it appears that is not optional for me if I want to remain pain free on hydrocodone, which there's no guarantee I will get from them based on what I'm reading on these forums. Being treated like a drug addict, and rude treatment from office receptionists and PA's, seem to be the norm in PM offices. Most of the places I call don't do pain meds, so where does someone like me go?

    I'm seeking answers for what to do, and where to go to get help for my pain, but I prefer to remain on what I know works for me. Is there such a place, or doctor in this state, that is open minded enough to listen to my story and compassionate enough, like my previous arthritis doctor, to help me without treating me like a drug seeker? Like I said, I have plenty of records to verify my need for pain medications with the numerous medical issues I have, but is it going to even matter in this environment we're in now with doctors being scared to Rx pain meds due to DEA crack downs, etc?

    I'd like to get some feedback and input from anyone who could give me some guidance and wisdom in this matter. Feel free to ask questions. Not sure how this works yet as this is my first post, so please be patient with me as I maneuver through this.

    Thank you,
    PaininOK

    Last edited by moderator2; 04-08-2012 at 03:52 PM. Reason: please do not post a commercial website, for any reason.

     
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    Old 01-30-2012, 08:29 PM   #2
    Johnathansmomma
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    Re: Pain Doctor in OKC?

    I wish I could be of help with a doc in OKC, but mine is in Tulsa, Ok. I have been with my PM since 2007 and he has been wonderful, yes I had to jump thru some of his hoops at first which is his offices protocol, but eventually he agreeed that opiate therapy was our best option. He has worked with me during all my hospitalizations, and works in conjunction with my other doctors very well.
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    Last edited by moderator2; 01-31-2012 at 06:15 AM.

     
    Old 01-31-2012, 09:29 AM   #3
    PainInOK
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    Re: Pain Doctor in OKC?

    Thanks for responding to my post.

    Thanks!
    PainInOK

    Last edited by moderator2; 02-14-2012 at 06:47 PM.

     
    Old 02-05-2012, 10:16 AM   #4
    wildkingdom
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    Re: Pain Doctor in OKC?

    mercy hospital runs a pm clinic. i was referred to them recently and had my first meeting last. while i was not thrilled with them, they continued my current meds as is.

     
    Old 02-09-2012, 05:28 PM   #5
    CostaMesa2011
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    Re: Pain Doctor in OKC?

    I just moved from there and saw the same PM since 2004.

    Last edited by moderator2; 02-14-2012 at 06:47 PM.

     
    Old 02-11-2012, 09:15 PM   #6
    myrmidon
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    Re: Pain Doctor in OKC?

    Hi,

    I live in Edmond, OK and have seen a few different PM's in the area. I started with one and then switched a few years ago.

    I doubt it would be appropriate to give you specific names, what I can say is that he is odd and I didn't feel comfortable with him, but he has a good reputation as a PM in the medical community.

    I chanced upon this board and don't frequent it. But I'll check back in case you need some further help finding a local PM.

    Last edited by moderator2; 02-14-2012 at 06:46 PM.

     
    Old 02-14-2012, 06:38 PM   #7
    PainInOK
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    Re: Pain Doctor in OKC?

    wk, thanks for the info. What were you not thrilled with them about? Is that the one out on Memorial?

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    Old 02-14-2012, 08:37 PM   #8
    myrmidon
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    Re: Pain Doctor in OKC?

    I saw him as an angry person and not someone you can really talk through your issues. But he's been working as a PM for a long time, trained other PMs in the area and unless you find someone better, it is worth at least starting with him.

    I also don't think he cared much about actual diagnoses -- whatever his reasoning. I have scoliosis, for instance, but he just wrote CRPS as my diagnosis. So maybe the Lyme diagnosis won't be a problem for him, but I'm guessing.

    Let me know if you go see him, or if you find someone else.

    Last edited by moderator2; 02-15-2012 at 06:33 AM. Reason: do not post address or location information for doctors - please read the rules for sharing pain doctor information

     
    Old 02-15-2012, 10:25 AM   #9
    Brokend
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    Re: Pain Doctor in OKC?

    You know, I've been to a few PM doctors who seemed angry the entire visit too. I can understand how maybe a nurse or office attendant could get away with acting like that since it's not their own professional practice, but a doctor acting like that never made much sense to me at all.

    I guess I figured that either they were prejudice to begin with about my age/condition/whatever or they simply didn't enjoy their chosen career. Regardless of what the case may had been (other than perhaps having a bad day) I don't understand why they are doing what they do or how they're still generating much business.

    That being said, I have also found doctors to be among the strangest and more unique of people too. Certainly not all of them, but it seems like across the board you will find more strange, eccentric or quirky personalities among doctors than most any other group of professionals.

    Unfortunately though when we do happen to find a doctor that meets our needs, we often times have to accept the personality and work around it if it's a difficult one. A great doctor with a great personality that you click with well is a real gem imo. You gotta hang on to one like that and count your blessings.

     
    Old 02-26-2012, 06:27 PM   #10
    cmenok
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    Re: Pain Doctor in OKC?

    I live in Oklahoma as well and believe me when I say I feel your pain. I am in danger of losing my pain medication as well due to a false negative on a UA for Narcotics. Now doc thinks I am selling it or giving it away. I wish I had an answer for you ... my sister in law is seeing a good PA near OKC if you are interested. She swears by him. Good Luck to You.

     
    Old 02-27-2012, 08:11 AM   #11
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    Re: Pain Doctor in OKC?

    Hi Pain in ok, I live in VA and my folkslive in the blue ridge mountains. My dad got bit this summer and got lyme and it was succesfully treated with antibiotics. I just thought I would add for folks that aren't familiar with lyme that cases like yours only represent about 5% of those infected when they haven't been treated or haven't been treated succesfully. As bad as things can be, it only happens in a very small percentage of those that dont get treated in a timely manner.

    Please dont let something like the fear of lyme cause you too miss out on the great outdoors. It's still safe to go outside, walk through the woods and hug a tree if you feel like it. I was just thinking that for those that aren't familiar with lyme, the post sounds like an innevatable consequence of contracting lyme which isn't an accurate representation of the risk. Particularly if you get treatment when you get bitten. If you live in the country, its a risk every summer but not the kind of risk that should keep someone locked up in the house do to unwarrented fears about worst case scenario. My dad removed the tick, developed the bulls eye rash and got treatment from a country doc that knew what antibiotics to use, having practiced medecine in the blue ridge for 40 years. It's also not the first time he has been bitten and developed lyme.

    On the other hand, my mom has been bitten by a brown recluse about 10 years ago, a very nasty spider that left a necrotic area the size of a plumb on her cheek for 3 months. She also recovered with minimal scarring and no risidual problems.
    Lyme, like any other major health issue or surgery has success stories and horror stories. It's unfortunate you contacted lyme and more unfortunate you never had the classic signs to seek treatment. Has anyone even considered a long term course of antibiotics. Have you seen an Infectious disease doc? Its the specialty I would look to for answers, if a specialist does happen to rule it out, you may have to be open to one of the many other conditions that share the same symptoms you are experiencing to find succesful treatment.

    Most of us here are the result of worst case scenario or outcomes and we never hear the sucess stories because those people don't hang out on the net looking for answers or support for something that didn't fail.
    Good Luck OK and I do hope you find answers and a treatment plan that helps. Take care, Dave

     
    Old 04-08-2012, 03:47 PM   #12
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    Re: Pain Doctor in OKC?

    Appreciate all of your comments. I haven't been back to this forum for some time.

    We've since moved to another state, so now I have to find a PM doctor where we live now and I'm sure that's not going to be easy because the state we're in now is one of the top states for narcotic abuse. The DEA is all over PM doctors here, so it's really hard to get help. Sad that so many people have abused the system and made it difficult for those of us with legitimate pain needs to get help.

    Dave, your dad was very fortunate to get treatment right away after he was bit. The key to getting better from LD is immediate treatment. Sadly, no, it is not the case that only 5% are like mine. I encourage you to look on the net and see the thousands upon thousands of people who are chronic lyme patients who are barely living a life worth living. For most people who have LD they are dx until five to ten years after the bite, by then the damage has been done and the disease has taken a foothold.

    Infectious Disease doctors? Not the way to go, believe it or not. They are the most hostile doctors there is towards those of us that have LD. Most of the time they will not admit that LD even exists in their state, and even when they do, the standard answer is, "there's no such thing as chronic LD". This is a very political disease and the CDC and IDSA have done all the can to work against us and not for us.

    I live with daily pain from this disease. My bones hurt so bad sometimes it feels like they're throbbing with pain. I could not even begin to tell you how much pain I endure on a daily basis, not to mention neuro issues, anxiety, nausea, head noises that never stop, etc. Very few doctors have been educated about this disease. Those that have been are in denial. LD is an epidemic and one of the most overlooked and under dx disease in the US today. LD mimics over 300 diseases. It's often confused for MS, Lupus, ALS and a host of other diseases.

    Over 95% of my doctors don't believe I have LD even though I'm CDC positive, which is pretty rare to get to their high standards. They think 6 weeks of abx will take care of the problem, wrong, it can take months, even years before abx will knock this disease down. My wife had it too and has had three relapses so far. It's a horrible disease that I would not wish upon anyone, mostly because the response people get from the medical community is disbelief and downright hostility. My last doctor dismissed me because he didn't agree I had LD and felt that I was being "uncooperative" with him as a patient because I would not agree with him.

    Finding doctors to treat LD is impossible. We know of 350 people in OK state that are LD positive, yet the CDC denies it and won't even treat it because, "we don't have LD in OK". Yeah, right.

    Anyway, no sense in going on about this. I'm truly glad your dad got better and got an early dx. That's the key, early dx and not spending years trying to find a doctor who finally figures it out. If anyone here has been bit by a tick and you feel sick, nauseated, weak, anxious, have arthritis pain, neuro symptoms, etc, please see a Lyme Literate Medical Doctor (LLMD) who specializes in LD. Otherwise you will be wasting your time. Insist on having a Western Blot test and not an ELISA test which is worthless, only 30% accurate. Most doctors do the ELISA test because it's cheaper, and that's the way they were taught by the IDSA, so they just follow the IDSA guidelines and as a result people continue to get sicker and sicker until they become chronic. By the time your life will be a living hell. See an experienced LLMD and get a proper dx and treatment and avoid seeing an ID doctor who will only waste your time and money.

    Thanks and God Bless.

    PainInOK

    Last edited by moderator2; 04-08-2012 at 03:50 PM. Reason: please do not post a commercial website, for any reason.

     
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