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  • Oral Pain Meds Not Well Tolerated! Is there a better way?

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    Old 08-22-2013, 03:30 PM   #16
    KibblesnBits
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    Re: Oral Pain Meds Not Well Tolerated! Is there a better way?

    Hi michellegurl,
    Thanks for your post. Injectables, as in "shots"? Please explain, as I'm not well-versed in pain management. Dr. M looked at me as though I had 7 heads when I asked if there were a way to "bypass" my gastric pouch. He acted like I was some kind of idiot for asking...then prescribed Butrans patches. I was so desperate I stopped in CVS to fill it, only to find it was $400 and change for 4 patches. I could not afford to have it filled, plus the pharm said they don't even carry that "low dosage". My only option has been to continue with the Tramadol, which is causing MORE problems than it is solving.

     
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    Old 08-22-2013, 03:40 PM   #17
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    Re: Oral Pain Meds Not Well Tolerated! Is there a better way?

    Thanks, ctrue, for your thoughts and prayers. Does your mom tolerate the liquid form of pain med without projectile vomiting? It seems that any "pill" strong enough to ease my bone/pelvic/belly pain "sits" in my pouch, causing intense (as in breathtaking) gas pressure in my chest. I find myself face down in the floor driving the porcelain bus I'm taking notes of all suggestions and trying to do research, but it's all so-o-o overwhelming.

     
    Old 08-22-2013, 03:50 PM   #18
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    Re: Oral Pain Meds Not Well Tolerated! Is there a better way?

    Kibbles, I only know one way to let you know i understand & thats to say i too had this exact hopeful, everything in my life riding on this appointment disappointment last fall after learning i had arach, no cure, no surgery but my NS sent me to a traumatic spinal injury spine NS minimally invasive prof at Baylor college of medicine in houston who would be my only hope as he made special request & appt for me. So i go & many begging, tearful minutes passed no cure, no surgery but there is a more specialized pain mgmt NS that will do pump & i will be great. My husb & i go & meanwhile my Pm dr of 12 yrs decides to become a hospitalist so no dr anymore , have to find new PM, which meant no narcotics to cover pain so im spacing out the last of my meds & wearing Tens on high & putting all my "eggs in one basket" for when i see this specialist of all specialists. He jumps back when viewing my MRI films declaring arach is quite severe & we are there to learn about morphine pump & all he will talk about is SCS. He told me he wasnt a Pm dr, let me leave there with no dr, no meds, & a call to come for a neuropsychologist appt about scs trial. No call ever came. I requested my medical record & he lied saying he gave me a referral to a pm/anes at Baylor that could do the pump instead of him. Long story not short but shortened 4 more dr visits to my gastro & 2 new Pm drs & i called my old dr who took me as his only pain patient. I learned that i have to trust God not man for my life, never lose hope & that there are drs who care, that week I joined healthboards & i have learned so much & receiived support from people that KNow what its like & it helped me more than i can say. I dont just say this like a kind remark but i am adding you to my prayers & believe that you will be taken good care of & find a caring dr & we are here for you.

    Last edited by gmak; 08-22-2013 at 03:58 PM.

     
    Old 08-22-2013, 04:28 PM   #19
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    Re: Oral Pain Meds Not Well Tolerated! Is there a better way?

    gmak,

    Indeed...you are a trooper to endure such suffering. And yes, my faith in God sustains me...along with my "warped" sense of humor. My previous posts, though long and painful, don't scratch the surface of my story. Until I found this board of good people, I suffered in silence (see previous posts, if you like). TBH I've cursed God because....I know better. I know he's there. My pastor tells me that my "tests" would give a compelling "testimony" to others who struggle. Maybe someday I can find the courage to share it without anonymity. I'm hard-headed, stubborn and a little too "cheeky" at times. I have learned from experience to be my own advocate in my healthcare. I have experienced things so BIZARRE under the "guise" of experts in the field of gastroenterology, gynecology, oncology, neurology...I have NO FAITH in physicians. IMO technology has made it even less personal...more generic...more susceptible to error. You know like I know, who suffers from their arrogance and misjudgments. Oops doesn't undo the damage. I read a post earlier today that I so closely identified with. It spoke of the YEARS of frustration of un/misdiagnosed issues, and the heartbreak of "if only" and "what could have been if they'd just listened to my symptoms". The post was eloquent in that it also stated that we have to somehow find the strength to put away the past. It used an expression that I often think to myself: I don't have the energy/strength to "shadowbox" the demons of my past. I have to think "blue skies...blue skies". I have to persevere in my mission to find new doctors to treat my issues. Again, it's just difficult to hide my pain from those who depend on me...I am surrounded in my physical life by "takers". It is such a blessing to share with a plethora of "givers" in this virtual world on this sight. I thank you all for sharing and for caring.

     
    Old 08-23-2013, 08:33 AM   #20
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    Re: Oral Pain Meds Not Well Tolerated! Is there a better way?

    Hey there,

    Just looking for somebody to talk to, I guess. I'm still waiting for lab results from last Monday. I called Memphis to speak to Dr. M's nurse. She was in a meeting...waiting for a call back from her. I just don't understand the delay in getting me scheduled for treatment of pain. Lord, I need some help...yesterday

     
    Old 08-23-2013, 09:59 AM   #21
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    Re: Oral Pain Meds Not Well Tolerated! Is there a better way?

    I am FURIOUS and I am nauseas...I need to rant. I just called Dr. M's office in Memphis. The nurse called me back, saying the only info she has is that lab results show "low" hormone levels, "but that's normal for menopause". Tell me something I DON'T KNOW almost 20 years (diagnosed and "treated") with this disease. The nurse conveyed that I should follow through with plans to see Dr. S in Jackson. I was devastated, as my understanding was this: I was to see Dr. M on the 19th as a fast track to Dr. S to orchestrate pain management. I asked the nurse if the appointment has been made. She didn't know, but she'd call me back. She just called back to say I'd need to make the appointment. W-H-A-T??? I just feel that once again I've been jerked around. I've spent 3 weeks doing my due diligence to make something happen. Right now, I just want to scream and yell and kick. I want to personally smash the testicles of every doctor who has dismissed my pain. I know...I need to take deep breaths and calm down. Okay, I took deep breaths, but I still want to smash testicles while simultaneously reaming their rectums. All while asking "does this hurt worse here, or here???
    I am sorry and should hit delete. It's either "type" or......I have been through the "bowels" of hell for most of my life, in fact at this point I reside there. I am raging at the stress of the last 3 weeks that have culminated in NADA...NOTHING. I just called Dr. S office, but of course, I'm waiting for call back. Dr. S spoke in depth to me 2 weeks ago Why the run around to Dr. M? That was not only time and money consuming, but also resulted in my female pain being exacerbated. What would be the reasoning of sending me on a wild goose chase after telling me he (Dr. S) thinks he can help me at the Jackson facility he's forming to treat endo? For God's sake, if my femoral artery were slashed, would they send me back and forth...consult on my case...congratulate (as per fax) one another's presentations on endo...wait 3 weeks to stop the bleeding? No, I would be graveyard dead from their lack of urgency. 3 weeks agoI was filled with despair and hopelessness when I figured once again I must get busy "living" instead of "dying". I had to try again to get new doctors instead of giving up to the pain. I've tried...NOTHING'S BEING DONE!! Now...still in agony with belly/pelvic pain, not to mention bone degeneration that's leading to knee replacement (both) and potentially hip as well. I need Synvisc injections again for my knees. I need relief from my stomach pain. How hard should this be? All I've managed to do with all of this stress is grind my teeth as the vertebrae in my neck/spine grate bone against bone. I AM SO ANGRY, as I can predict with pinpoint accuracy that Dr. S office will not schedule me "ASAP"...That will be another 3...weeks? months? years?

    Last edited by KibblesnBits; 08-23-2013 at 01:32 PM. Reason: clarification

     
    Old 08-23-2013, 10:18 AM   #22
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    Re: Oral Pain Meds Not Well Tolerated! Is there a better way?

    Kibbles, I made an appt with the records i had, telling the new dr i had really low & no meds & my dr stopped seeing patients & i got an appt in 2 days with a pain mgmt dr. Maybe while waiting for endo dr or dr S ? Is this a feasible plan? Dont they at dr M's office think that you have butrans patch on to cover you until dr S appt? If they think you have pain meds & you dont i think i would find pain mgmt dr now. I understand that its new & scary especially when suffering but everyone of us had that first pm appt & its different than seeing a pcp but if in constant pain its doable.You can do it, i had this terrible time of hades as well, almost all of us did & we will help you!

    Last edited by gmak; 08-23-2013 at 11:55 AM. Reason: wording

     
    Old 08-23-2013, 12:34 PM   #23
    KibblesnBits
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    Re: Oral Pain Meds Not Well Tolerated! Is there a better way?

    Thanks, gmak...I shouldn't rave on about my issues. Dr. M's office is FULLY AWARE that I don't have the Butrans patch. I am on the phone/fax machine BEGGING Dr. S nurses to schedule me. They claim they don't have Dr. M's lab reports, so I faxed those to them as well. Those of us who fight this battle for some semblance of a quality of life know that, more often than not, the "ball" gets dropped...so we have to (phone, fax, repeat) to make up for lost "yardage". Thank you, dear lady, for your support.

     
    Old 08-23-2013, 02:43 PM   #24
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    Re: Oral Pain Meds Not Well Tolerated! Is there a better way?

    Hi kibbles, I learned when fighting for glasses, dental care, health care etc for impoverished children to just remain a lady & dont take no for an answer, persistence with a sweet voice is effective & of course the fax machine!Lol And of course we all have to let off steam, thats ok because we all understand. I think you did good!

    Last edited by gmak; 08-23-2013 at 02:46 PM.

     
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    Old 08-23-2013, 04:36 PM   #25
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    Angry Re: Oral Pain Meds Not Well Tolerated! Is there a better way?

    Another PAINfully frustrating day...on the phone and fax machine trying to get lab results, nurses to return my calls...JUST to get an appointment scheduled with potential new gyno specializing in treatment of residual pain of endometriosis. I DO try to remain positive, but I can't help but mock the irony of this obstacle course we call healthcare. Any suggestions, folks? I'm in a bad place facing yet another weekend of NO RELIEF...no answers. Oh, and still not even on the schedule.

    Last edited by KibblesnBits; 08-23-2013 at 04:42 PM.

     
    Old 08-24-2013, 08:41 PM   #26
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    Re: Oral Pain Meds Not Well Tolerated! Is there a better way?

    Dear kibblesnbits, I hope that you get the appt that you want with the endo dr but is it even possible to find & remove every endo implant that remains after 19 years post hysterectomy? It makes me wonder so im asking naively what is the benefit you see in going in this direction for pain relief? Im beginning to agree with what you said your husband said about going with a pain mgmt dr that treats all kinds of pain so that the chances of being managed medically with narcotics & adjunct non narcotics would be faster & relief would possibly come sooner. You just had a gastro workup with colonoscopy , egd etc, did he find anything to explain the belly pain?

    Last edited by gmak; 08-24-2013 at 09:09 PM. Reason: sorry, just noticed inactive status AFTER posting reply

     
    Old 08-25-2013, 10:58 PM   #27
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    Re: Oral Pain Meds Not Well Tolerated! Is there a better way?

    KibblesnBits, I have been thinking of you and hoping so much that things have improved, even if just a small bit. Your situation and frustration is so familiar to me unfortunately, having had to fight many times for access proper treatment. Have you been able to get an appointment with the pain management specialist? I realize your last post was Friday, so perhaps not yet? Forgive me if I've missed something in your story, but why has there been a hold up? I do understand they were waiting for lab results from another doctor, but I would think (of course, I'm being logical here) they can make an appointment with the contingency that you follow up with your records. That was how it worked with my pain management doc. The whole point of my first appointment was for the doctor to assess whether or not she considered me a candidate for treatment. And as gmak asked, did your gastro workup show any other (or additional) reason for your pelvic pain aside from endo? Also, you've mentioned being diagnosed with osteoporosis and I'm wondering if any doctor has prescribed treatment for that? I get a yearly infusion of Reclast. Maybe you could handle that since it bypasses your stomach.

    Please do let us know how it is all going!

     
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