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    Old 01-30-2014, 03:57 AM   #16
    galalena
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    Re: METHADONE for PM?

    My weight crept up a Lot over the years. Started at around 125 when married, weighed 178 at the time of my accident. Was on antidepressants for a short time, and that was like turning a fat faucet on. After the fifth surgery, second shoulder replacement, I was 113. I have been taking methadone for over a year, plus a sixth surgery that was very rough, and stabilized around 125. So yes i gained weight, but not much considering it is the depth of an arctic winter and i had to stop all my activities.
    I do not blame you for not wanting to gain weight, but not a side effect for me. Also, technically i started at the same dose, but it was 2.5 mg four times a day and to start, that was very helpful.

     
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    Old 01-30-2014, 12:27 PM   #17
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    Re: METHADONE for PM?

    Thank you so much for sharing. I'm so sorry that you continue to suffer from your shoulder injury and subsequent surgeries. I pray that you will get some answers and/or solutions when you return to Boston.

    As for the "stigma" surrounding Methadone...I must confess my own ignorance. I'm not at all sure about starting this med, but I have to take a leap of faith (if I could actually "leap") I have a misguided sense of humor (survival instinct) on the days that I can muster "humor" at all=( So, I absolutely must share what I just experienced at the pharmacy. We use a local chain pharmacy whose pharmacist is a career guy and a lifelong family friend. I wasn't "embarrassed" to take the script for Methadone to him, because he knows I'm no junky trying to detox. I dropped it at the window and was told it would be ready in 20 minutes. When I returned, she told me "We're out of stock...won't have any until Tuesday". She called 2 more of their stores within 30 mile radius. Neither of those 2 stores had the 5 mg Methadone either. Okay, underneath my calm fašade, I'm thinking "oh [email protected]#$ because of all I've read on HB. I've just worked myself into a total anxiety attack from the horror stories of pharmacies, refills etc. I'm thinking "I can't go to another pharmacy who has this med in stock, because posters on HB say I'll be "red-flagged"...What am I gonna do? Picture this...It's FREEZING COLD down south, so I've pulled out scarves and hats...yea, this isn't normal for Dixie, or me either=) I'm looking like perhaps I am in disguise, as I need my "reader glasses" to even see my driver's license. Anyway, the clerk calls a nearby local family owned (mom and pop) pharmacy/gift store and suggests I go there to pick it up. I REALLY DON'T WANT TO because, again, of the misguided perceptions of this drug. I'm imagining my photo posted all over ** "in disguise" at _______Pharmacy trying to "score" Methadone. Oh, and did I mention I graduated college with this pharmacist? and that we were sorority sisters? I did what I had to do...g-u-l-p and swallow that pride...IMO, God is teaching me humility. I'm a tough student=)

    I've taken 1/2 of the 5 mg and waited an hour. I'm about to take the other half. Yes, the PM doctor suggested this, in view of my tummy issues. I still fear the possibility of increased fatigue and weight gain. On a lighter note...I don't want to sleep through the Super Bowl. We're HUGE football fans who GO ALL IN with foam fingers, helmets and pom-poms. Go Broncos!

     
    Old 01-30-2014, 02:56 PM   #18
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    Re: METHADONE for PM?

    I have taken methadone for a little over a year now. I couldn't be happier. It has given me my life back. It does cause drowsiness for a while after you first begin taking it also causes me to sweat quite a bit more then I used too. Really other then that it has helped my pain tremendously

     
    Old 01-30-2014, 04:43 PM   #19
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    Re: METHADONE for PM?

    Quote:
    Originally Posted by WhistleDixie View Post
    Since you've taken this for a number of years, can you tell me if you've had to substantially increase your dose over time? Have you experienced weight gain? Also, can you share what type of pain you are treating with Methadone? Thanks=)
    No, actually I haven't had to increase my dose, that is something that's been great because on the morphine I did have to increase my dose occasionally, so that's great! And no, I haven't experienced any weight gain either with this med. The reason I take methadone is I was (finally) diagnosed with Adhesive Arachnoiditis. It's a condition that not a lot of people know about. And no, it doesn't have anything to do with spiders! LOL!! It is a painful spinal condition. One of the top specialists best explains the pain as being similar to the pain of terminal cancer, without the relief of death. I also have many other conditions also, but that is the big one. The one that had me running to the ER constantly in tears until we got me in pain management. I wish you luck in your journey!!

     
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    Old 01-30-2014, 07:04 PM   #20
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    Re: METHADONE for PM?

    I go to walgreens. They make sure to have it for me once they knew my monthly need. But if there is any deviation, I have had to go elsewhere. So it is not you at all. They are wonderful and have been for me for several years.

     
    Old 01-30-2014, 07:54 PM   #21
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    Re: METHADONE for PM?

    Pharmacy stock of certain meds depends on the area...some areas may prescribe methadone a lot, others may not. Also, I would guess the 10mg is used a lot more than the 5mg, and thus kept more in stock. Agreed once you are on a stable dose you can request they have it for you each time.

    I've actually never had a pharmacy be out of it in over four years. Plenty of other pain meds though, yes (like the expensive ones). Its probably easier to stock than some of the other pain meds too as it only has two doses (5 & 10mg), vs. several each of short and long acting forms like some of the other meds have.

    I imagine they may stock more of it too since the max dose is 10mg, so many patients like me end up taking several pills a dose, not just one. I am not aware of any significant possibility of weight gain with any opiate medication.

    Chronic pain itself (inactivity) and some of the adjunct meds are what can cause weight gain, but not the pain meds. I hope it goes well for you! If you wanted to be extra cautious, you could also just do the 5mg a day for a few days, before adding in the second dose.

    I struggle with some drowsiness, constipation, sweating with any amount of activity, and some other suspected issues (like I think its causing my Periodic Limb Movement Disorder...muscle jerking in my sleep, which is an issue as it wakes me up...sleep study showed 20 times/hour total arousals). All in all I think its worth it for me to stay on it though, as nothing else controlled my pain.

    I kinda haven't had any dose creep with the methadone. My initial titration over a few months was up to 60mg/day (I had a high short acting opiate tolerance), but only two doses a day (2x 30mg), so I spent half the day in too much pain. I spent a couple years putting up with that, then finally went to a pain doctor who was more comfortable prescribing and had more knowledge.

    We tried some other long acting meds, then circled back to the methadone. The last year or two I've been on 120mg day (4x 30mg), so my individual dosage hasn't changed, just the daily dose. My baseline pain relief has stayed very stable during that time, although I have some times with uncontrolled breakthrough pain.

    Its known for less of a need for dose increases than other meds. If someone took a lot of breakthrough meds that could raise there tolerance quicker though (of another type; methadone isn't used for breakthrough). Best wishes.
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    Old 01-31-2014, 02:23 AM   #22
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    Re: METHADONE for PM?

    WhistleDixie, I just realized I told you the reason I'm taking the methadone, but haven't found out why you are taking it. Care to share?? You may have already told your reason on here somewhere else but I haven't seen it because Im not on here as much lately. Thanks!

     
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    Old 01-31-2014, 09:21 AM   #23
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    Re: METHADONE for PM?

    Thank you Whistle D and all here for your support, I hope I have been and can be supportive and uplifting for you as well.
    I meet with a new PM in 2 hours and one of my many questions will be about Methadone for long term pain relief and whether it gives better pain relief than the bupe in Suboxone. Will let you know if I find out anything useful.
    Gotta run and get ready! Have a great day...

    Last edited by LadyBassPlayer; 01-31-2014 at 09:23 AM. Reason: typos

     
    Old 01-31-2014, 09:49 AM   #24
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    Re: METHADONE for PM?

    WNT...Thank you for the chuckle...I REALLY needed to laugh...Like the pig in the blanket on the insurance commercial, I walked right into that one.

    On a more serious note, I've heard of your condition, but I know nothing about it. It sounds painful. I'm sorry you have to endure chronic pain, but encouraged to know that Methadone is providing relief. To answer your question, my pain has multiple origins, but basically I suffer with pain in spine, (cervical and lumbar) sciatica, joint BOB pain, pelvic/vaginal/rectal pain, and multiple colon issues related to stage 4 endometriosis (20 years post-surgery) with no relief.

    I took my first 2 doses of Methadone 12 hours apart yesterday. I'm trying not to be discouraged (yet) because I'm hurting as though I took nothing. I'm assuming it takes some time to build up in system before relief comes. Is that correct? What do you do while you await that relief, other than cry? I've not had the sleepiness...in fact I slept very little last night=(

    LBP...Good luck with your appointment. I'm sorry I can't speak to the effectiveness of Methadone, yet. I've only taken it for the past 24 hours, so I have no relief at all thus far. I remain hopeful (although concerned). Keep us posted=)

     
    Old 01-31-2014, 11:42 AM   #25
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    Re: METHADONE for PM?

    It does take some time for the methadone to build up in your system, so unfortunately you just have to be patient. I know, that's hard to do when in pain! I try to distract myself when in bad pain. Read a book, watch a movie, take a hot bath, try working on a puzzle. Anything that gets your mind off of the pain. Also when starting methadone they need to start you at a low dose, and work your way up, so its possible this dose is not what you will end up with. I take 15mg every 8 hours. So on your next visit maybe you will have your mg bumped up, or maybe take it more often. But just be patient and see how it works for you at this dose. Do you have any breakthrough meds??

     
    Old 01-31-2014, 12:46 PM   #26
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    Re: METHADONE for PM?

    Thanks, WNT=) I'm trying to endure, as I felt that this med would not give "instant" results. I must confess, though, I thought from posts that I'd "nod off" through the "hard part" of adjusting over the weekend...spider!!?!! No, he didn't suggest a breakthrough med, yet, as he (and I) preferred the 1 new med at a time until we can assess what's helpful/harmful. I do have the Neurontin and the Lortab 5, but thought perhaps I shouldn't take those with Methadone. Should I? Can I? These next few days are my PMS with "phantom period pain". This puts me in the floor on any given day, cramping to the point of wailing and gnashing of teeth.

    Oh, yea...I have plenty to distract me with water pipes blasting like fireworks for the past 2 days. This freaky cold spell (that is nothing more than a hiccup for y'all) has become the apocalypse for us southern sissies=)

     
    Old 01-31-2014, 02:01 PM   #27
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    Re: METHADONE for PM?

    Tempting as it might be, I'd stay away from any medicine not approved by your new doctor. If he's indicated you should/could stick with the neurontin and lortab than I see no reason not to use them. Otherwise, you may be muddying the water, something your post indicates both of you want to avoid.

    I may very well be getting neurontin and lyrica mixed up (makes sense since they both interfered with my memory, concentration, and general brain functioning), but I was advised to taper off rather than just stop use. This may not be relevant for you, but it's worth asking about it.

    My best advice is: discuss this with your new PM. Of course, given the date and time, he may soon be out of the office. If so, don't hesitate to call the office's after hours emergency number (assuming it's not 911) and ask for a call back from your PM. That service is part of what you're paying for! (I'll add here that when I've done this, I've made sure to tell the message-taker that my situation is not a dire emergency, but something that does need attention as soon as possible. My doc generally responds with 1-4 hours.)

     
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    Old 02-04-2014, 02:48 PM   #28
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    Re: METHADONE for PM?

    I'm trying to "stay on the bull" (being Methadone) but the ride is ROUGH!

    I am ITCHING all over LIKE CRAZY...I woke up this morning looking like I'd been mauled by a stray cat. Is ITCHING a side effect? I am allergic to Demerol (insane itching and involuntary muscle movement) The reaction to Demerol happens instantaneously. I've been taking the Methadone since 1/30 (5 days) Itching started yesterday.

    Any thoughts?

     
    Old 02-04-2014, 04:01 PM   #29
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    Re: METHADONE for PM?

    Hi dixie, I think that would indicate its building up in your system now . I have to take benadryl occassionally for itching with every narcotic that ive had precribed to me. It may not be a dealbreaker as far as the methadone goes as long as it is just itching & there is no face, lip or eye swelling or throat swelling or difficulty breathing. Of course if there is contact the dr pronto or go to ER. The itching may just be transient. I hope that it is nothing serious.

    Last edited by gmak; 02-04-2014 at 04:06 PM.

     
    Old 02-04-2014, 07:47 PM   #30
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    Re: METHADONE for PM?

    Agreed on the signs of allergy, which requires immediate medical attention, vs. a histamine reaction, which can be occur with any opiate pain med (and an otc antihistamine like Benadryl can help). As it took time to develop and is without other symptoms, it does sound like a histamine reaction. Beware though that Benadryl can be sedating, even if you have taken it before without issue (I find that medications that are fine on their own now cause sedation in combo with methadone).

    You may also find some topical treatments for itching like hydrocortisone cream helpful, especially in any spots you may have already scratched. If it is too many locations on your body to apply anything, try a soothing bath product containing oatmeal, or whatever you can find. It may subside, it may be off & on, or it may continue...hard to guess.

    I'd put a call into your doctor if you are concerned, or if you are considering stopping it (and will need something else to take, as it sounds like you have no prescribed breakthrough meds now). It may be possible to be seen early. Sorry you are struggling so much with this medication. It has happened to many of us. I had issues with withdrawal with each medication change we tried me on for example. I know it must be tough to tough it out. Hang in there! Best wishes.
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