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Parkinson's Disease Message Board

Please help!!!!!!!!!

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Old 01-20-2010, 01:24 PM   #1
Join Date: Jan 2010
Location: hammond,LA
Posts: 2
debbiepage HB User
Unhappy Please help!!!!!!!!!

Does anyone know why, if you are diagnosed with parkinson's disease. Is it federal mandated for the doctor and pharmacist to report your name, address, and other information to a national database?

Please help, i am concerned about my privacy being reported without my consent.

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Old 01-20-2010, 01:27 PM   #2
Join Date: Jan 2010
Location: hammond,LA
Posts: 2
debbiepage HB User
Re: Please help!!!!!!!!!

Just adding more threads

Old 01-21-2010, 12:48 AM   #3
Senior Member
Join Date: Nov 2009
Location: Christiansburg, Va.
Posts: 190
esolc HB User
Re: Please help!!!!!!!!!

As far as I know, I never have been put on a mandated data base, but yes your pharmacist and insurance carriers can tell if you are lying on an attempt to get insurance fraudulantly or with pre existing conditions. I have never seen the site. But my daughter who is a pharmacist said it is just basic info only in the base. I am 63 and no one has bothered me yet.


Old 06-17-2010, 11:23 AM   #4
Join Date: Jun 2010
Posts: 2
deliasilva HB User
Re: Please help!!!!!!!!!

My husband has parkinson's and I want to be a good caregiver, can anybody give me advise please.

Old 09-29-2010, 06:51 PM   #5
Laura Gale Ure
Join Date: Sep 2010
Location: Madison, Indiana
Posts: 2
Laura Gale Ure HB User
Re: Please help!!!!!!!!!

I was diagnosed in 2003 and as far as I know only have info on the databases or studies - like the Muhammed Ali one out of Louisville, that I have intentionally signed up for.


Old 10-01-2010, 07:30 PM   #6
Join Date: Sep 2005
Posts: 411
sunshine221 HB User
Re: Please help!!!!!!!!!

I've never heard anything like this, I'll look on another board I read.

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database, help me, information, parkinsons

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