It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Parkinson's Disease Message Board

Discouraged, but not disbelieving

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 11-11-2010, 04:13 PM   #1
Senior Member
Join Date: Sep 2007
Location: Massachusetts
Posts: 132
Pens'nChalk HB User
Discouraged, but not disbelieving

Hello all,
I posted here awhile ago, saying that I am diagnosed with RRMS, but I believe that my symptoms are early PD, as they so resembled those I knew in my father's elder years.
The second opinion I sought recently confirmed the RRMS diagnosis, and said there is no current evidence of PD. My tremors are called "intention" tremors, my dizziness and occasional loss of balance and confusion are attributed to MS. I cannot deny the MS. I have scores of lesions on my brain and spine.

But my father, his brother, and his mother were all diagnosed with PD. I believe these early symptoms are PD, and I am participating in an NIH PD -risk study, and feel fortunate to be included in that, as I believe they will be paying attention to the PD potential rather than simply accepting the MS diagnosis as a done deal.

It is important to understand that while I am not "wishing" for PD instead of MS, (I believe they are both equally devastating), I regret that my doctors are not being pro-active with PD medication, and that disappoints me. I continue to take the nightly injections that make a light promise of slowing the MS progression ... but know that early treatment of PD is recommended as well to delay or lessen its eventual damage.

I will stay in the seven year PD-risk study, believing that they will watch carefully for evidence of PD and recommend treatment as soon as possible.

Dx 06/07
Copaxone 07/07
"I can do no great things ... only small things, with great love."
~ Mother Teresa

Last edited by Pens'nChalk; 11-11-2010 at 04:17 PM.

Sponsors Lightbulb
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Discouraged Vs Depressed COLOGAL Muscular Dystrophy 4 12-01-2008 12:16 AM
Just started looking for help, very discouraged seveppa Inner Ear Disorders 2 08-15-2007 01:04 PM
I'm so discouraged... viktik Menopause 2 04-02-2006 02:12 PM
Feeling so discouraged debill Lyme Disease 8 07-17-2005 02:58 PM
Saw my GP today.... groovyk Inner Ear Disorders 14 01-19-2005 08:57 AM
too skinny- discouraged xerygon Exercise & Fitness 8 09-17-2004 09:58 AM
Little discouraged!!! KudaInMaine Reflex Sympathetic Dystrophy (RSD) (CRPS) 5 02-11-2004 07:35 PM
So discouraged,,,just a rant MCHizzammer Acne 4 10-29-2003 09:18 AM
feeling so emotional...discouraged.... bamohio Spinal Cord Disorders 9 07-27-2003 07:38 PM
Discouraged now myelogram texashowdee Back Problems 7 10-29-2002 11:48 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 04:11 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!