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18 years post transphenoidal pituitary tumor surgery

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Old 10-12-2018, 10:37 AM   #1
Join Date: Oct 2018
Location: Delmar, Marland
Posts: 1
Desertdream2 HB User
Unhappy 18 years post transphenoidal pituitary tumor surgery

Hi Everyone,
I had endoscopic transphenoidal surgery for a macroadenoma in 2000. They could not get the whole thing out so in 2003, the residual tumor was growing and I opted for "Cyberknife" radiation at that time. MRI's since have not shown regrowth of the tumor but it appears I have a complication of that surgery at this point. I have what they feel is a mucocele in my sphenoid sinus which supposedly is rare which is why I guess I got one. I am seeing an ENT next month and it will require another surgery apparently. I guess my question for anyone to answer if possible, has anyone else had this experience? If so, how was it treated and what was the outcome? I would appreciate any information so I thank you ahead of time.

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