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Pituitary Disease Message Board

High Cortisol

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Old 01-28-2011, 03:10 PM   #1
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merankorii HB User
High Cortisol

I'm just kind of weirded out...

I've been sick for a while and have been down many paths to figure out what's going on. Lately I've actually been feeling BETTER in a lot of ways (I mainly thank a good antidepressant and anemia treatment for that). However, I'm still exhausted most of the time and am still struggling with some crappy problems.

I had some bloodwork run a few months ago and it came up that my cortisol was high (20.5) out of a range of 2.3-19.4 - Immediately after my blood was taken for this, I was given a steroid shot for inflammation and joint pain. So, basically, I've had to wait months to have the dexamethasone test performed.

Next week I'm doing the dexamethasone test because my doctor rechecked my cortisol and it's still around 20.5. I've really been trying to cool it with all the stress I've had in my life, and I felt like I had made progress, but it's still the same. She also tested my ACTH and it was 56.8 out of a 7.2 - 63.3 range.

I know I just need to wait and see what happens with the suppression test, but from what I've read it's a long process to figure out what's causing this type of thing.

A little about me: I'm female, 21 years old, about 5'10" and 155 pounds.

Any advice would be greatly appreciated.

Last edited by merankorii; 01-28-2011 at 03:36 PM.

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Old 06-15-2011, 12:13 AM   #2
Join Date: Jun 2011
Location: Salt Lake City, UT, USA
Posts: 6
alice464 HB User
Re: High Cortisol

The standard test for measuring cortisol is a 24 hour urine collection. A blood test only measures the cortisol at that moment in time. A high cortisol value with a blood test is usually followed up with a 24 urine cortisol. Yes, it is not fun to collect a 24 hour sample but that is really what has to be done to know if you indeed have high cortisol. The dex suppression text is also a good diagnostic tool for pituitary disease. High cortisol due to pituitary tumors that produce ACTH is called Cushing's disease. I've had Cushing's for quite awhile, not a fun disease!

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Last edited by hb-mod; 06-15-2011 at 01:31 AM. Reason: Please don't post unapproved websites, per Posting Policy. Thanks.

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