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MEN1 Gene Possibility?

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Old 01-25-2013, 08:16 PM   #1
Join Date: Jan 2013
Location: Michigan
Posts: 3
BCsix HB User
Question MEN1 Gene Possibility?

Hello! I am a 26 year old female who was just diagnosed with a *barely* macroadenoma this past week. My symptoms so far have only been severe vertigo with a migraine every single day for the past 5 months. I had blood work done this past November that ran my prolactin and my thyroid but was told it was normal (obviously, I will be getting those records and will be getting a full work up soon). My neurologist brushed my symptoms off as just a regular migraine, but I was worried about a pituitary tumor because my mom has a prolactinoma and my migraines were very similar to hers. She was diagnosed almost 22 years ago, has gone through surgery and the gamma knife and just weeks ago found out it has grown back again for the third time.

I was wondering if anyone else has had a family history of pituitary disease and if anyone has been tested for the MEN1 gene. From what I understand, the gene can affect a lot more than just the pituitary, I just find it very strange that we both have a pituitary tumor. We do have many family members with overactive thyroids, growth problems, etc but no one has ever been tested.

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Old 01-25-2013, 10:11 PM   #2
Join Date: Jan 2013
Location: Portland Tn, USA
Posts: 2
Netlace HB User
Re: MEN1 Gene Possibility?

Men1 ... tumors of the Pit, Parathyroids, Pancreas. Three P's. I have had a highly unusual Pit tumor for 20 years, It has now caused my Pituitary to grossly enlarge. I had hyperplasia of the Parathyroids, and they removed my thyroid and parathyroids, now it is my Pancreas, I have a Gastrin of 1698. I am so sick. You can get tested for Men1. I did and it came back negative but did show some other things closely related. Your symptoms are from the tumor occupying space and pressing on vital areas, the optic nerve runs just near the cavernous sinus. Prayers to you.

Last edited by Netlace; 01-25-2013 at 10:19 PM.

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