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New to Post-Polio

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Old 10-24-2003, 06:19 AM   #1
Join Date: Oct 2003
Location: Pinellas County, FL USA
Posts: 3
dollie1 HB User
Post New to Post-Polio

Is there anyone else on this board who has recently been diagnosed with PPS or think they may have it and are having trouble getting their doctors to take them seriously????

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Old 01-31-2004, 06:58 PM   #2
Cody Cowboy
Join Date: Jan 2004
Location: Cody, WY
Posts: 1
Cody Cowboy HB User
Lightbulb Re: New to Post-Polio

Originally Posted by dollie1
Is there anyone else on this board who has recently been diagnosed with PPS or think they may have it and are having trouble getting their doctors to take them seriously????
Am also new to this board. Have been having many unexplainable aches and pains over the last few years. had Polio at age 7 1/2 and was paralized from the waist down for over a month. remained at home the whole time. about age 58 i noticed quite all of a sudden that I felt like I was getting "old". Couldn't do a lot of the routine things that I had always taken for granted. Mostly i hurt alot. Mostly back and leg muscles at first. now at almost 65, seems like I HURT CONSTANTLY with very little let off. Have good days now and then, and then there are those others. from perusing the postings on this website, i feel that I have finally got an answer to some of this. Like most of the others, original doctors are dead and records destroyed. Sorry can't be of any help, but very few doctors now have ever seen a case of polio, and certainly have no clue or sympathy as to what's going on. Cody Cowboy

Old 02-13-2004, 03:31 PM   #3
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Join Date: May 2003
Location: Virginia, USA
Posts: 2,347
BarbaraH HB UserBarbaraH HB UserBarbaraH HB UserBarbaraH HB User
Re: New to Post-Polio

Hi Dollie,

Tell your doctors you had polio years ago (I suppose you did) and that you need to know if your current problems are post-polio syndrome. Doctors should be aware of this as articles about it were in the medical literature in the late 1980s. They can look up information about it, too. Maybe you can look up the information and what tests you need, print it out and show it to the doctor.

Good luck - Barbara

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