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-   -   Gyn. thinks I may have PCOS, what should I know? (https://www.healthboards.com/boards/polycystic-ovary-syndrome-pcos/290649-gyn-thinks-i-may-have-pcos-what-should-i-know.html)

waterfairy 06-02-2005 06:40 PM

Gyn. thinks I may have PCOS, what should I know?
 
I visited my new gynecologist today because of all of my period problems, and she thinks I may have PCOS. Apparently I have quite a few symptoms, obesity, skin tags and discoloration, irregular periods, etc. I'm going to have bloodwork to check my hormone levels, as well as an internal/external sonogram in the coming weeks. She also mentioned that I could have endometriosis, which is what I thought of all along, but wants to rule out PCOS first.

If this is indeed what I have, I was wondering what all exactly I should be aware of. I've read some info on the internet and it's sort of freaking me out a bit. If anyone out there who has PCOS could give me some basic information on what to expect, treatments, long term care, etc, I'd be so grateful. Of course I don't know if this is what I have, but I'd like to get some background information. I already know a ton about endometriosis from the fellow posters here, but don't really know anything about PCOS.

Thank you all for your time!

Steph

barton93 06-02-2005 09:22 PM

Re: Gyn. thinks I may have PCOS, what should I know?
 
PCOS is basically best described as one big hormonal mess! The best thing you can do for yourself if you get a diagnosis of PCOS is to educate yourself. There are many great resources out there, including this forum. There are many PCOS women on this forum, myself included. PCOS can be controlled by diet, exercise and oftentimes by medications. Initially, it can be difficult to gain control of it because you have to tackle multiple symptoms, but it can be done. Best wishes to you....and please, keep us posted.

waterfairy 06-03-2005 09:58 AM

Re: Gyn. thinks I may have PCOS, what should I know?
 
barton93,

Thank you so much for your post. I've been doing some online research on PCOS, including on this website, so that has helped me tremendusly. I'll keep you posted after I get the test from my doctor.

Thanks so much!

Steph

jazzz29 06-03-2005 08:18 PM

Re: Gyn. thinks I may have PCOS, what should I know?
 
What symptoms do you both have and what are you doing to fight them? What are your periods like, (heavy, light, short, long, painful, clots)? I am not sure which disease is causing each problem! Thanks, I have talked with both of you on this board before and am grateful for your help and respect your comments.

waterfairy 06-04-2005 12:53 PM

Re: Gyn. thinks I may have PCOS, what should I know?
 
Jazzz,

We're old friends from when I posted the thread "Could I have Endometriosos?" You, Kermit and a buch of others were such a great help to me. I've *finally* found me a doctor that is going to look into actual problems instead of prescribing a new birth control pill.

My symptoms are very irregular periods, even on birth control. As of this coming Monday, I'll have had my current period for 3 weeks, which has never happened before. I started a week before my pills said I was scheduled for, and now I'm about to go on week three. I've had periods that lasted for two weeks, but never three. Usually it starts out with brown blood, not bright red until the 3rd day or so, when it gets very heavy. The pain is so extreme, which runs down my right thigh. I have a pulling, pinching pain in my lower left pelvic area, which usually comes before and during my period, but does also happen any time. I have diarrhea 90% of the time, and I have to urinate a lot. OTC meds only take the edge off the pain, and I've been prescribed Darvocet for when I can't function. I started my period on my 11th birthday (now 24) and they've been horrible as far back as I can remember. My mom mentioned to me the other day, that when I was around 10, my weight ballooned, which was just before I started my first period. I was a thin child prior to this, not overweight at all. I've had my thyroid checked (my mom had this done after my accessive weight gain in my early teens), but that was normal. I've been on 5 different bcp's since the age of 16, none of which help for more than 3 months. This is the first doctor who's ever taken my concerns seriously, and who's mentioned a hormone test, doing different exams and procedures to find out what's wrong. I've had an internal vaginal sonogram before, but this was done at the hospital, not by a gyn., and my gynecologist said that if I do have PCOS, the first sonogram wouldn't probably have picked up on it b/c the technician wasn't looking for that, just looking for my ovaries (which she had a hard time finding.)

Now, after I say this all, Jazzz, I'm not sure if you were directing your questions to me or Barton. :) But I'm sure it can't hurt to post things here.
It's nice to hear from you again, Jazzz, and you too, Barton. Thanks so much for your help, ladies!

Steph

jazzz29 06-04-2005 04:47 PM

Re: Gyn. thinks I may have PCOS, what should I know?
 
No, I meant both of you!!! Thanks. I always become uncertain of myself and just need a little reassurance. I will write more soon!

dustie03 06-06-2005 09:04 AM

Re: Gyn. thinks I may have PCOS, what should I know?
 
I was diagnosed with PCOS over two years ago. I had not had a period in four months, they were NEVER regular unless I was on the pill. I didn't want to take BC pills anymore because of the horrible decrease in libido. When I stopped, my libido came back like a sailor on leave! My specialist (gyn) said that was a big clue that it was in fact PCOS. Normal free-testosterone levels are at 1 or below, mine was over 4! He immediately put me on progesterone (14 days every three months to bring on a period) and metformin. Metformin is a glucose-regulating med used mostly by diabetics to control their insulin. (Your ovary function is related to your insulin, that's why the metformin!) Over the first year, he had to increase my metformin because it wasn't working after about 9 months. However, I have lost 27 pounds since the end of January and my periods have returned! I still take the metformin, and probably will for the rest of my life, but no more progesterone! My testosterone levels are staying around 1, so he says as long as the periods are still coming at about the same rate, I don't have to take the hormones. My sex drive is great, very high with no adverse effects from the meds. He said that is good as long as the levels stay low.
At first I felt that my "female" body was betraying me when I got diagnosed. Now I realize that this has plagued me my whole life, causing a lengthy conception period and irregular periods since they started. I have a reason for it all now, and I feel much better knowing that I can control it with simple meds and diet changes. :wave:

barton93 06-06-2005 04:39 PM

Re: Gyn. thinks I may have PCOS, what should I know?
 
[QUOTE=jazzz29]What symptoms do you both have and what are you doing to fight them? What are your periods like, (heavy, light, short, long, painful, clots)? I am not sure which disease is causing each problem! Thanks, I have talked with both of you on this board before and am grateful for your help and respect your comments.[/QUOTE]

Hi Jazz,

I have many PCOS symptoms. Here they are:

* Very irregular periods - an average of a few each year.

* Hair growth in all the unwanted areas. I have noticed that the hair on my legs even grows at a faster rate, and I have more hair on my arms as well.

* My vision has changed.

* I was diagnosed with diabetes in 1997.

* The lining of my uterus was 4 xs thicker than it should have been due to not having a period, which puts me at a high risk for ovarian cancer.

* My cholesterol level is high, which also puts me at high risk for heart disease.

* It took me almost 2 years to conceive my 2nd child, when it took me about 5 minutes to conceive my 1st child, and on top of that my hormones were so out of whack, that I had to take hormone shots the 1st 4 months of my pregnancy, in order for my uterus to hold the baby.

* I have gained about 50 pounds.

* I have lost a lot of hair as well. I used to have a head full of beautiful wavy thick hair. Now my hair is pretty thin and the texture has changed. Its nasty now.

* I also feel as if my muscles have been affected tremendously as well. I am very weak. I feel as if all of my muscle strength has disappeared.

* I also suffer from constant fatigue.

* I have problems with my circulation as well (3 times I have woken up in the morning with my left arm a purplish color and limp as a noodle. I cannot feel nothing. Then about an hour after waking up, it goes back to normal, but remains sore the rest of the day).possibly from my diabetes.

Well, these are most of my symptoms. The way I control all of my symptoms is by diet, exercise and I also take medication for my diabetes (Metformin) and I also take birth control pills.


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