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Polycystic Ovary Syndrome (PCOS) Message Board

  • Undiagnosed PCOS

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    Old 09-13-2006, 12:10 AM   #1
    Join Date: Jan 2005
    Location: Texas
    Posts: 55
    jenl2881 HB User
    Question Undiagnosed PCOS

    I have undiagnosed PCOS, but my doctor and other doctors I have seen are 100% sure I have it. I have been having blood sugar problems for a year or two now and have had a glucose test that came out fine. I have been testing my blood sugar lately since my mother got a machine after finding out she's has Diabetes. I finally remembered to test it when I felt as if my blood sugar were low (tired, weak, light headed, burning cheeks, etc) and it said I was at 272! I'm going to see my doctor tomorrow. After an hour my sugar level had dropped to 100, which is a fast drop rate, from what my mother says (she's an RN).

    A funny thing is, I got a psychological test when i was 12. They had no idea what was wrong with me. I had started puberty at 9, and started having periods at 10. This is also when i rapidly gained weight. They just stuck me on cylert and stopped at that. At 16 they finally realized I had PCOS (diagnosed, not yet tested) and put me on birth control. Only then did my moods stop. No kicking holes in doors, no screaming fits, no depression, no erratic periods, and basically i felt a lot better. I quit taking the cylert at 18 due to money issues and soon discovered I have ADD. I cannot focus well and my grades immediately dropped from A's to B's and C's. So it's quite stupid that my mother put out over $1,000 and they didn't want to say "oh it's not mental, so it must be something else." I was a demon to my mother. Extremely moody and a short attention span

    Does anyone know of any diets that work well for PCOS? Any support groups? I don't know much about it except that it causes body hair, weight gain, hormonal problems, and pregnancy issues. Thank you =)

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    Old 09-13-2006, 06:48 PM   #2
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    Join Date: Sep 2003
    Location: Edmond, OK USA
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    Howitt44 HB User
    Re: Undiagnosed PCOS

    My daughter is 20 years old and was diagnosed a few months ago. Her periods became farther and farther apart since about 16. She started her period at 13, so she had 3 years of normal periods. She has no glucose problems yet and no excessive hair. She was diagnosed after having an internal ultrasound. She is on Metformin and it has helped her have periods, but also has side affects for her. She is a lot of nausea and fatigue. I have heard that the South Beach Diet is excellent for PCOS. There is some connection there with inflammation. It's interesting because today I was just reading a medical article on inflammation and they listed all of the diseases that go along with it. PCOS was one of them. Anyway, the South Beach DIet is just an all around smart way to eat. It helps with diabetes also.

    Old 09-14-2006, 01:04 PM   #3
    Join Date: Jan 2005
    Location: Texas
    Posts: 55
    jenl2881 HB User
    Post Re: Undiagnosed PCOS

    A woman told me that many girls you can just look at them and tell they have it. A lot of their muscles are very firm, facial hair, etc. I have very firm calves and arms, but my upper arms and thighs are just fat. lol. Maybe it's just because i'm either an hourglass or heart shape. You might talk to her doctor or a gynecologist about the side effects. My doctor changed me from Low Ovral to Yasmine and I had some weird symptoms at first but it's regulated now. It's amazing what kinds of things hormones can cause.

    My doctor told me the 272 blood sugar reading was most likey a fluke, as this test they do that runs a blood sugar average over the past few months showed 80's (normal). She says it's all hormonal and asked me to watch my carb and sugar intake. For the ADD she is sending me to a Psychiatrist to get the medicine. And, I have an ear infection. My second one in a row. If i get another one I get to get tubes in my ears. fun.

    I hope your daughter feels better. Tell her Ibuprofen is the best thing for period pain, but to watch out for dosage instructions as if you don't it can cause stomach irritation over time. Also avoid caffeine, drink lots of water, and watch out for carbs during your period,which is when the hormones are most erratic. I have my periods for 3 days, but i get a weeks worth of PMS and I also get a full week in 3 days. I'm just glad I'm not Diabetic.

    Last edited by jenl2881; 09-14-2006 at 01:06 PM.

    Old 09-30-2006, 08:14 PM   #4
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    lynn117 HB User
    Re: Undiagnosed PCOS

    pcosers tend to carry weight around their waists like i do and i have been and will be on the pill forever (till menopause) to conrol period problems and keep cysts from growing larger. my sugar is hanging in around 100 so i havent had to take medication and i havent had any furry issues. my doctor wants me to walk several times a day for 15 to 20 minutes which is good exercise and helps prevent blood clots from the pills since i am over 35. theres no set diet except no white rice, bread or plain pasta. carbs are fine as long as they arent empty carbs. think fiber and whole grains. i now eat very little sugar and have increased fruits and veggies while meat portions have shrunk. its mostly common sense. i was told that if i excercise and eat sensibly i will slowly loose weight. the syndrome makes it difficult but not impossible. i miss golden oreos the most! dont give up. there are a lot of worse medical conditions out there and many things to help us feel better!

    Old 09-30-2006, 11:51 PM   #5
    Join Date: Jan 2005
    Location: Texas
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    jenl2881 HB User
    Smile Re: Undiagnosed PCOS

    thanks. My mom is on the diabetic diet and i'm learning a lot from her. I didn't realize carbs like rice, bread, and pasta metabolize into sugar. I also learned that fiber affects the carb amount in the food (like if it has 2 grams of fiber, and 10 carbs then you can say there is only 8 carbs). I love chinese food, so it's hard. I'm also an avid meat lover, but i do love tofu and chicken breasts that that's alright.

    Looking in her carb and fat counter i was amazed at the amounts in fast food. I did learn, though, that if you take the mayonnaise off the grilled chicken at McDonalds you remove almost 200 calories.

    Yea sense is good, but will power is too. I do gain weight around the center of my body. My arms (not upper) and calves are relatively thin but my calves are very muscular. I can't do too much walking because the weight on my upper body (chest) puts too much pressure on my back. So I got an excersize bike and that is supposed to be good for me. I also am a BIG fan of Tybo. The Yasmine is doing good for me and I hope to eventually get laser to remove some of the facial hair.

    I think they should have more information out here on PCOS. I mean i never knew it existed!

    Old 10-02-2006, 06:15 PM   #6
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    Join Date: Jul 2004
    Location: Chicago, IL
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    barton93 HB User
    Re: Undiagnosed PCOS

    If PCOS is suspected in your case, which it does sound like you have should really see an endocrinologist or a Reproductive Endocrinologist. Either one would be fine..........RE moreso if children are in your future. Reason being........these specialists specialize in hormonal disorders/syndromes such as PCOS as well as an RE specializing in infertility. With an RE, you can attempt to kill 2 birds with 1 stone. Most regular doctors are not very familiar with PCOS. They may know what it is, but they don't always know the best treatment options for you. If you do decide to be treated with meds, I can tell you that birth control only masks the problems of PCOS. There are other meds out there (such as metformin) which can do wonders. Metformin helps to regulate hormones, which can lead to more regular periods, weight loss, and even conception for those who suffer from infertility.

    Another important thing with PCOS is diet and exercise. Try to avoid carbs and high sugar intake. Of course you need everything to balance your meals out, just do the carbs/sugars in moderation. Fibers and proteins are great, especially if you have weight to lose.

    The best thing for you to do would be to educate yourself about PCOS. There are many great books out there, as well as many things on the internet. Once you understand what is happening with your body, you will have a better understanding of what it is you need to control it.

    Also, I understand that Diabetes has been ruled out, but have you been checked for Insulin Resistance? Many women with PCOS have IR, which if left untreated can lead to Diabetes, and since your mother is a diabetic, that even makes your risk higher.

    If you have anymore questions, just ask. I was diagnosed with PCOS 5 years ago, and have researched it to death!!!

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