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Old 09-07-2003, 01:13 AM   #1
Join Date: Sep 2003
Location: Morristown
Posts: 2
Sabache HB User
Question Ventriculomegaly

I am 35 weeks pregnant & went for a monthly ultrasound Tuesday, 9/2/03. The U/S showed the Lateral Cerebral Ventricles in my son's brain were 12mm, which is 2mm larger than average, which is 10mm. This is called
Ventriculomegaly. Up to now the pregnancy has gone fine in every way; all tests, the AFP and ultrasounds up to this point have been normal. The measurements and the weight of the baby have been & are good, weighs 6.7lbs at 35 weeks. The high-risk doctor explained to us that a LCV measurement of 20mm would mean the baby definitely has Downs Syndrome, though other sources say it indicates hydrocaphullus.
The doctor said that there were could be 3 possible causes of the enlarged ventricles; chromosomal, & two diseases, Cytomegalovirus & Toxoplasmosis (both of which I had been tested for in my first trimester). The re-tests also came up negative for both.
I would like to know if ventricular enlargement coming up so late in the pregnancy usually indicates a definite problem with the baby
Thank you,
Deb R.

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Old 09-07-2003, 07:23 AM   #2
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Join Date: May 2003
Location: Virginia, USA
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BarbaraH HB UserBarbaraH HB UserBarbaraH HB UserBarbaraH HB User

Hi, Deb,

Someone wrote that they had a similar scare, went for a retest and were told the 1st ultrasound tech apparently had the wand turned at an odd angle which gave the appearance of enlarged ventricles when in reality, the ventricles were normal. Hope that's the case in your situation.

Hoping for the best - Barbara

Old 09-07-2003, 09:00 AM   #3
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Location: BC, Canada
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babygrant HB User

That was me that Barbara talks about. I will tell you my story
My husband and I are pregnant with our first baby. We went for a routine ultrasound at 20 weeks just to check sizes and measurements. We were told by the (really cranky) ultrasound tech that "everything looked good and that the doctor would have the results within two weeks". So we were sooo happy we saw our little baby and everything. The very next day (a friday), my hubby and I got home at about 4 pm, checked the messages, nothing, went out for a bit, came home, checked them again and there was a message saying "dr vasil has a preliminary on your ultrasound and would like you to come in at your earliest convenience". Of course both of us are in absolute panic mode and because they left this message so late, there was nothing we could do but wait until monday.
So Monday we went in there, waited for about 2 hours, then finally got in with a doctor. We were told our baby had hydrocepholus. We asked how bad, he said it looked moderate. There was nothing we could do here as we don't have the technology or the specialists to do anything so we had to drive 800 km's to go see a few doctors at the BC Womens Hopsital in Vancouver. We just now had to wait for a call to go down there.
Needless to say, the next 2 days were absolute hell. All we could do was cry and cry and cry. We got a call on the Tuesday afternoon saying we needed to be down there for thursday morning.
Thursday morning, we got to the hospital and we met with a lady from medical genetics to see if the hydro could have been caused by genetics. After that, we went for an ultrasound. It took about an hour and a half of them looking at everything. The lady was great, she explained ALL of the problems they found with the baby. First of all, they thought the baby only had 2 vessels going in through the umbilical cord. Secondly they said the left ventricle was about 3 mm's bigger than the right. And lastly, they thought they eyes were WAY too wide set. So after the hour and a half of doing the ultrasound, she went to consult with a doctor. Husband and I waited VERY anxiously for about 15 minutes or so, then the doctor came back in with her. That worried me. First thing he said is "why are you guys here?". We said "well our baby has hydrocepholus". He said "your baby does NOT have hydrocepholus, your baby does NOT have too wide of set eyes and your baby has 3 vessels going in through the umbilical cord". Then he said "let me show you what went wrong". He showed us how if the ultrasound wand is angled wrong, the one side of the baby looks HUGE and the one side looks normal. My husband explained it to me like.....if you take 2 peaches and hold them right next to each other, you turn the peaches so the left had peach is a little bit farther away and towards the back, of course the right peach is going to look bigger. That's what happened. So we left the hospital knowing our baby was FINE!
We have had 7 ultrasounds now, found out our baby was a little boy. I honestly, would recommend going to see another doctor or a specialist. They can perform so many more tests than routine doctors can. And we had a 3 mm difference in the ventricles and that was at about 22 weeks, so that was a HUGE difference compared to the size of your baby at 35 weeks only having a 2 mm difference in the ventricle. I do know quite a bit about hydrocepholus because the few days that we thought he had it, i did a lot of research, so if you need anything at all, let me know!
I hope everything turns out okay!! PLEASE keep us updated, and my heart truly goes out to you. I know what your going through!


PS Sorry this is so long, wanted you to know the WHOLE story.

EDD with baby #1 for hubby and I September 21st, 2003! It's A BOY!

Old 09-07-2003, 09:03 AM   #4
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babygrant HB User

Forgot one thing. The doctor also told us that with the ventricles, they do have a couple of mm's of freeplay of what is considered normal. They have a scale of below normal, normal and above normal. It is completely normal for a baby to be on the above or below side of normal. Although they would keep a close eye on the baby if it is on either side of the scale, it is completely normal to be on either side. It is just the growth of the baby.

Old 09-08-2003, 02:43 PM   #5
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babygrant HB User

Bump incase she hasn't read this!

EDD with baby #1 for hubby and I September 21st, 2003! It's A BOY!

Old 10-22-2004, 01:33 PM   #6
Join Date: Oct 2004
Posts: 1
luao23 HB User
Re: Ventriculomegaly

sabche, i have alot of questions for you about your situation ...please send me an email

Old 12-28-2007, 08:41 AM   #7
Join Date: Dec 2007
Location: chicago, IL, USA
Posts: 1
myrtle4 HB User
Re: Ventriculomegaly

I know this post was from a long time ago, but I am going through the same thing and would like to know what the outcome was...

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