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AmyRS 03-06-2004 04:45 PM

25yr old with tachycardia out of the blue
 
This could get long but I'll do my best to keep it short as possible!

Two weeks ago while sitting in a movie theatre I noticed my heart was beating really fast. When my husband and I came home I mentioned it to him and he listened and thought it was going twice as fast as his. We laughed, thinking it was nothing and decided to time it to see if he was right. His was 70 and mine was 130.

After realising the "normal" resting rate is anywhere between 70-90 I started to realise something was not right!! We monitored it for a while and finally headed to emergency just in case. I spent the day there while they watched me go from 115 to 160 by simply lifting my arm to scratch my face. At this point I had no other symptoms besides my heart beating out of my chest. They released me that same night, under the impression that the medication I've been on due to some neurological problems (Nortriptyline) was causing my heart rate to be elevated. They made me stop cold turkey that night until I could talk to my neurologist.

When I spoke to him, he said he has never had this happen before, only in elderly patients who had prior cardiac problems before taking the meds. Now we were getting a little worried, condsidering nobody knew why my heart was going crazy and it still hadn't slowed down.

About 2 days later I was having trouble breathing and quite a bit of chest pain. Back to the hospital, where they admitted me for 8 days to run a bunch of tests. Lung scan to make sure no embollism which was clear, blood work for magnesium, thyroid, blood surgar all clear, echo showed no signs, and holter monitor that recorded beats up to 188. This is all laying in a hospital bed!!! They also had me do a 24 hour urine test which won't be back for 4-5 weeks.

Because of the previous neuro problems I have a brain MRI coming up in 2 weeks to rule out MS. They released me thinking they'll know more when the urine test comes back and once we have the MRI as well.

I visited my family dr yesterday and she is trying to convince me that this is generalized anxiety disorder and chronic panic attacks. I've only had difficulty breathing once, and I certainly haven't been anxious while watching a funny movie I'm starting to feel like they're putting me off because they can't figure out what it is and they don't want to take the time to.

Should I just wait for the MRI and other results or should I be getting a referral to someone else? Should I just let this go? My heart is still pounding and my family isn't comfortable with me only being able to sit on the couch for fear of my heart going through the roof. Here is my big shopping list of symptoms:

- Blue feet and toenails when sitting
- Extreme fatigue - too tired to laugh or move at all
- Irregular periods
- Hair loss
- Night sweats
- Tingling in face, hands and arms
- Headaches
- Stiff feeling in eyes and vision problems - dyslexia with numbers and words
- Out of body feeling - brain shutting off for a few seconds at a time - vision is shifty instead of smooth
- Nauseous/no appetite
- Vertigo
- Sweating
- Pounding head when first standing up
- Chest pain
- Pink rash on feet when in hot shower

They tried me on 2 beta-blockers in the hospital and they made me feel worse - sick to my stomach and no energy, and they didn't do much to bring my heart rate down either!

My blood pressure was all over the place as well - 165 over something - that one set off an alarm and they came running into my room, and as low as 80 over something and the nurse asked me if I felt like I could pass out! I haven't fainted (yet)!

Another thing that was weird was they gave me Ativan and it didn't make me sleepy or make a difference with rate/pressure either.

Maybe at least the tachycardia will leave as fast as it came on?

Any opinions or advice are greatly appreciated!

Amy

Maryilee 03-06-2004 07:34 PM

Re: 25yr old with tachycardia out of the blue
 
Did you have your thyroid checked? It sounds like you could have a hyperthyroid.

donnab 03-06-2004 08:42 PM

Re: 25yr old with tachycardia out of the blue
 
Spiking Blood Pressure and Tachycardia. Do you also have panic attacks? Your list could fit something called Pheochromocytoma which I have.

AmyRS 03-07-2004 10:14 AM

Re: 25yr old with tachycardia out of the blue
 
Hey there, thanks for the responses.

I've been tested for thyroid about 4 times now and each time it comes up clear. I think they would really like the answer to be thyroid!!

I have never had a panic attack before. I had the 24 hour urine test done to see if it could be a problem with my adrenal gland but the results will be back in 4-5 weeks, so I have to wait for that. I wouldn't be surprised if it was hormonal.

Amy

harrydog 03-07-2004 09:01 PM

Re: 25yr old with tachycardia out of the blue
 
Hi Amy,
Many of the symptoms you are describing are in line with dysautonomia. Have you had a Tilt Table Test? My daughter has has Postural Tachynacardia Syndrome (POTS), but there are many form of dysautonomia. We have been through all of the doc trying to tell us she had a panic disorder, a conversion disorder, blah, blahblah...
The NDRF has a very informative site NDRF.org.
Good Luck
Angie

hilery79 03-08-2004 08:17 AM

Re: 25yr old with tachycardia out of the blue
 
[QUOTE=harrydog]Hi Amy,
Many of the symptoms you are describing are in line with dysautonomia. Have you had a Tilt Table Test? My daughter has has Postural Tachynacardia Syndrome (POTS), but there are many form of dysautonomia. We have been through all of the doc trying to tell us she had a panic disorder, a conversion disorder, blah, blahblah...
The NDRF has a very informative site NDRF.org.
Good Luck
Angie[/QUOTE]

Angie,
Hi, I have very similar symptoms. I've been seeing a Neurologist and he suspects a form of dysautonomia. I was just wondering what tests your daughter underwent to confirm her POTS diagnosis and what type of Dr. she sees for this. I am scheduled to have a nerve conduction study in a couple weeks. My Dr. said this would determine whether or not I have an ANS problem. I didn't really understand how this test would show that. I have been to Dr. after Dr. for the last 9 months and still haven't gotten a diagnosis(other than "it could be panic/anxiety related").
Thanks,
Hilery

harrydog 03-08-2004 06:14 PM

Re: 25yr old with tachycardia out of the blue
 
Hi Hilery,
My daughter had a Tilt Table Test (TTT)to confirm her dx of dysautonomia. She is involved with all types of specialists, this is is malfunction of the anatonomic nervous system, she has problems with gut motility, migraines, siezures, fatigue, etc...She sees a cardiologist, neurologist, GI, pulmunary, and her PCP every 4-6 weeks just for fun.
What type of dysautonomia does your your neuro think you have?
Angie

hilery79 03-08-2004 07:19 PM

Re: 25yr old with tachycardia out of the blue
 
[QUOTE=harrydog]Hi Hilery,
My daughter had a Tilt Table Test (TTT)to confirm her dx of dysautonomia. She is involved with all types of specialists, this is is malfunction of the anatonomic nervous system, she has problems with gut motility, migraines, siezures, fatigue, etc...She sees a cardiologist, neurologist, GI, pulmunary, and her PCP every 4-6 weeks just for fun.
What type of dysautonomia does your your neuro think you have?
Angie[/QUOTE]

He didn't say what type he thought it was, but I have many symptoms of POTS. I won't go into my story(it's rather long), but I have seen many Dr.'s over the last 9 months and feel like I'm getting nowhere(except in debt with medical bills :) ). I suspected a problem with my autonomic nervous system several months ago and my PCP wouldn't listen. :rolleyes:

I will ask about a tilt table test when I go to have my nerve conduction test in a couple weeks. Is this a test a Neuro would do?
Thanks so much~
Hilery

harrydog 03-09-2004 08:49 PM

Re: 25yr old with tachycardia out of the blue
 
Hilery,
A TTT is usually orchestrated by a cardiologist.
I have travelled a long road with my daughter. It took us over a year and too many dr.s to finally come up with a dx., other than it's a "head game". I'm not familiar with a nerve conduction test, what's the point of the study?
A

maggie39 03-10-2004 10:04 AM

Re: 25yr old with tachycardia out of the blue
 
I think Angie might be right on - look up dysautonomia on the internet - I think you'll find some similar symptoms.

Maggie

AmyRS 03-10-2004 03:45 PM

Re: 25yr old with tachycardia out of the blue
 
Well, my MRI is next Wednesday, so the plan is that no matter what the results are we're going to head to the teaching hospital about an hour away to get a second opinion on everything.

I've recently been researching POTS and I just about every symptom, minus the fainting - I've never fainted in my life but have certainly felt like it! It's given me some hope that I might have a defense against the panic attack diagnosis. In everything I've read about panic/anxiety attacks the patient has something they are anxious about that they are aware of, even if the attack happens when they aren't expecting it. I don't have anything I am worried about - everybody gets stressed out and I KNOW that what has happened to me for over 2 weeks now is not due to stress. That's another thing - I haven't heard of panic attacks lasting over 2 weeks.

I guess we'll see what happens with the MRI and then off I'll go for the 2nd opinion!

Amy

AmyRS 03-24-2004 11:32 AM

Re: 25yr old with tachycardia out of the blue
 
I'm back with good news!

I had my dr's appointment yesterday to go over the MRI results, and they are clear! :D Also, the 24-hour urine test (to check adrenal function) has also come back clear!

My dr FINALLY admitted that she didn't know what to do, so I suggested the whole POTS thing I've been researching. She agreed that would be worth checking out, and is going to get me a referral to have the Tilt Table Test (to diagnose it) done! And she thinks the wait will be fairly short since it isn't a "regular" test!

The BEST thing about the whole visit was that she didn't mention anxiety ONCE! I think she has finally figured out like the rest of them that panic attacks are not what I've been experiencing. She also took my pulse and listened to my heart and my pulse was about 120 just sitting there. I think she gets the picture now! I feel so vindicated! LOL!

Next step is the follow up with the neuro first week in April, and hopefully the Tilt test will happen even before that. Either way I'm thrilled!

Amy

CheerAngel 03-27-2004 05:34 PM

Re: 25yr old with tachycardia out of the blue
 
Hi AmyRS, good luck for your all your upcoming appointments! It's frustrating to wait for answer and worse is after all you have spent, they tell you they don't know what's wrong or there's nothing wrong. I was told by my cardiologist that I no longer see that maybe I have a very excited lifestyle or I get excited easily, so that has caused my tachycardia.

etstanddie 03-31-2004 07:27 AM

Re: 25yr old with tachycardia out of the blue
 
I have experienced shortness of breath with exertion, severe fatigue, weakness, dizziness, numbness of the face and neck, redness of the palms of hands, puffy, raccoon eyes, palpitations (not nearly as severe as yours) for three years.

Recently am under treatment with a nephrologist and found to be with severe iron deficiency anemia even though my hemoglobulin and hematocrit are normal. Turns out I had no iron stores. Iron cannot be replaced by oral meds, must have IV perfusion. No gi problems. Is not dietary.

Hope you get diagnosis soon.

kcoffey25 03-31-2004 11:47 PM

Re: 25yr old with tachycardia out of the blue
 
have they "looked" at your heart ? sounds like it could be mitral valve prolaspe. just a thought.


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