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-   -   Severe fatigue and double vision. I am desperate. (https://www.healthboards.com/boards/rare-disorders/203267-severe-fatigue-double-vision-i-am-desperate.html)

Jorgen L 08-29-2004 02:27 PM

Severe fatigue and double vision. I am desperate.
 
I am a 18 y old man with a health problem I just can’t handle. I had to terminate education (high school) this year. So far, no one has been able to help me, so I would really appreciate any hint that could lead me to the right track. There are several hypothesis, but none of them seem to be right.

[B]Short description of history and symptoms :[/B]
I can remember some of the symptoms (consentration problems) back in 2000, but it was not really a problem at that time. My health turned worse in 2003, and 2004 has been a nightmare. I have never used any kind of narcotics, and I am not depressed.

I am struggling with severe fatigue - the entire body. I am not able to do physical work.

It is difficult to participate in a conversation, and it is almost impossible to concentrate on lessons etc at school.

I have bad balance, and my movements have become clumsy.
I have monocular diplopia (double vision)
I have bad short-time memory
I can no longer use a PC – symptoms turn worse almost immediately
I feel better in the morning than in the evening

Physical exercise (running) has an almost immediate positive effect. After 6 – 8 minutes intensive exercise, the symptoms (including double vision !) fades away, and I feel much better (I have to RUN - fast walk has no effect). This effect remains throughout the day, and to some extents - even the next day. (Blood samples were taken before and after excercise. 25 % higher cortisole, no other significant differences).As a consequence , I have to exercise every day to keep up. The first minutes of running are a real pain.

I need more time (than before) to restitute after exercise.

I also experience a positive short-time effect of ’adrenaline-triggering’ situations - beeing scared, angry and so on.

If I get a cold or a flue , all my symptoms get severely worse.


[B]What has been done :[/B]
I have done a cerebral MRI twice. No indications.
Analyses of spinal fluid show no indications.
The endocrinologist have no answers. Both cortisole and thyroxine seem to be ruled out . Dopamine level in urine is a little bit higher than expected, but so far we dont see any connection.
I have been tested for Myastenia Gravis. No indications.
I was examined for ARC – no indications.
I am taking B12 injections – so far no effect.

If anyone have any idea what to do, please give me an answer !


Best regards
Jorgen L

Kamden 09-02-2004 07:47 PM

Re: Severe fatigue and double vision. I am desperate.
 
Hello, I am so sorry for what you are going through. I do not know where you are from but I can only suggest trying to get to a well known clinic known for its specialists. At these clinics, you are looked over by not one doctor but by many. All the specialists are in one place. I have been to one myself and prefer that over running to different ones where i live. Also, these doctors specialize in disorders and see thousands of patients a year so recognizing what you have may come easier to them. What one may not see, the next may recognize immediately. It sounds like you may need to see a neurologist, and have more tests done, but I am no doctor either. I would go to google, type in neurologist and your state, or you can type in top neurologists, top clinics, top hospitals and check them out for your state. If you don't mind, I would look on here for you if I know your state. Good luck to you, I know how frustrating not having a diagnosis can be.

Kamden 09-02-2004 08:02 PM

Re: Severe fatigue and double vision. I am desperate.
 
I found an entire list for you. [url]http://www.usnews.com/usnews/health/hosptl/rankings/specihqneur.htm[/url] If this link is taken out, because we are not able to post links even though it is just a list of top doctors all over in all states, type in google - top doctors world, then click on the first one at the top of the page which is US News, in that page under categories, I clicked on neurologists, because I am guessing you would be referred to a neuro.

Jorgen L 09-05-2004 06:22 AM

Re: Severe fatigue and double vision. I am desperate.
 
Thank you for good advice. Actually, I'm not living in the US at all - I'm from Norway. My strategy corresponds to your advice. I'm trying to get in touch with an academic hospital in Oslo.

typhoidmary 09-08-2004 02:19 AM

Re: Severe fatigue and double vision. I am desperate.
 
There is a form of fatigue that gets better with exercise called Eaton-Lambert syndrome but it is very rare and usually related to lung cancer.

typhoidmary 09-08-2004 02:20 AM

Re: Severe fatigue and double vision. I am desperate.
 
monocular diplopia is a very odd symptom. usually diplopia is only possible with both eyes open. could you describe your double vision in greater detail - exactly what you see?


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