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Spinal Myoclonus

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Old 02-25-2007, 06:24 PM   #1
Join Date: Feb 2007
Location: NE, USA
Posts: 59
Sandpuff HB User
Spinal Myoclonus

Has anyone else here gotten spinal myoclonus from taking Prozac? It happened to me 9 years ago and at the time no one thought that my problems were caused by Prozac. I was diagnosed at mayo clinc with spinal myoclonus with no known cause but possible autoimmune etiology. I don't have problems anymore, just occasional small jerks if I get worn out. Although a few months ago I started having problems with fatigue again and am back at the doctors for testing. When I had it 9 years ago the jerks were so bad I'd fall down sometimes. My energy levels really haven't ever been the same since. If I had to work full time I probably couldn't handle it.

I still don't know for sure if Prozac was the cause. I'd been on it for just a few weeks when my symptoms started. So I'd just like to hear someone else's experience. Not sure how rare this is but thought I'd try posting here. Right now my symptoms that have brought me here are:

fatigue - comes & goes and really knocks me out when it hits
right leg occasionally gives out on me (not very noticeable though)
chest pain
swollen glands
temperature is 97 on good days and 99.1-99.5 on bad days
wave of weak feeling washes over me on bad days when I'm trying to do something
still have some myoclonus but very mild and occasional
back pain - lower and have a really sore spot on left shoulder blade
occasional mild rashes and often itchy on chest - just little red bumps
night sweats sometimes

I don't know if I'll ever find out what's going on and so I've learned to kind of just live with it, but it would be nice to find out something (maybe). If you have any input would love to hear it. Symptoms started this time without me being on any medicine so I know it's not caused by that.

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Old 03-12-2007, 09:29 AM   #2
Join Date: Mar 2007
Location: coastal Washington State
Posts: 354
michael178 HB User
Re: Spinal Myoclonus

I get myoclonus in the legs whenever I get dizzy, or when I am under certain types of lights. Certain drugs will trigger me off if they cause dizziness as a side effect. Have you tried to figure out if something is triggering your attacks through a side effect. Certain things are known to be triggers To pursue it try the movement disorder sites to see what they say. How did you like Mayos. My records there show 80 visits. My father's Mayo records (he's dead now) had to moved on a dolly. He was one of the very first experimental patients on MAyo's most famous discover, cortisone. They kept giving it to him even after they knew that the drug wasn't living up to their expectations, it ruined his health and it made sure he would never work again...he was a Mayo neurologist. He had to go on a 25 year leave of absence with no pay, so I am no friend of Mayos

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