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neurofibroma question

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Old 09-26-2007, 01:22 PM   #1
Join Date: Sep 2007
Location: Shawnee, OK, USA
Posts: 3
Clear_Skys HB User
neurofibroma question

Will a neurofibroma tumor show up on just an x-ray, or is it necessary to get a MRI or CT scan? I had one surgically removed about a year ago and think I might have another one but am not sure exactly. Feels sort of like the last one, just not as obvious to the touch, but I'm having constant achy pain from the spot and headaches originating from it to the back of my head. I just moved and my new Family Practitioner doesn't seem to know much about them. Gave me an x-ray but nothing showed up. I didn't think they were dense enough for an x-ray, but I don't know much about that stuff. Can anybody answer my question? Thanks in advance!

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Old 10-10-2007, 03:20 PM   #2
Join Date: Oct 2007
Location: Spartanburg,SC,USA
Posts: 2
kep06 HB User
Re: neurofibroma question

I do not think it will show up on an xray. I had one that was originally diagnosed as a schwannoma. An MRI was done and all it reaveled was that it was a soft tissue tumor. 5 months after thinking it was removed and that I was healing, I found out from another MRI that it was still there. I found an AWESOME doctor in Tn. who was familiar with them and did a total nerve reconstruction. I am healing from the nerve graft, but have subquent problems from muscle wasting due to the time elasped thinking the tumor was gone.
Anyway, I would definately further investigate the one you think you have. Where is /was your neurofibroma? Mine was on my ulnar nerve.

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