It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Rare Disorders Message Board

I think my 21month old might have PFAPA?

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 05-05-2008, 08:13 AM   #1
Join Date: May 2008
Location: Spring HIll, Tn
Posts: 4
marissasmommy HB User
I think my 21month old might have PFAPA?

Hello everyone. I am new here. I recently discovered this sight when I was researching my daughters symptoms. She started getting sick when she was 12 months old. Before that, she was not sick at all.

Her symptoms are: no appetiate, She gets really thirsty before an attack, acts like her arms and legs hurt, runs a high fever, vomitating. The same symptoms reaccures every 25-30 days. She has been to every hospital in Memphis. Everyone told us it was a virus. We would have to wait in the ER for about 4-7hours before being seen. By that time the medicine for the fever took affect. SO when they saw her they said there was nothing wrong with her. It took us throwing a fit at the last hospital to get them to just watch her. Sure enough, 20minutes after they gave her some juice, fever spiked and she started throwing up again. That is when they hospitalized her. They ran all sort of tests, then said she just had the flu. She got the flu from waiting in the er so long.

This has never skipped a month. Just some months are worse then others. The highest her fever got was 106. She does not have any sores in her mouth that we know of. When she has a fever we alternate between motrin and Tylenol. Every episode we go through an entire bottle of each. The episodes seem to last between 3-5 days.

We are so worried about her. I know she doesn't get a virus at the same time every month with the same symptoms. Can anyone help us? Does this sound like PFAPA? I greatly appreciate anyones help.

Sponsors Lightbulb
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Pfapa huntergreen Rare Disorders 16 08-04-2011 01:48 PM
PFAPA -what? walli6 Rare Disorders 48 06-17-2011 12:31 PM
Is it PFAPA or another auto inflammatory disease? Help4Son Rare Disorders 69 06-10-2010 07:33 AM
To parents with pfapa children forbrown Rare Disorders 3 05-03-2010 04:40 AM
Another PFAPA diagnosis lotusseeds Rare Disorders 8 03-31-2010 09:36 PM
I think my 21month old might have PFAPA? marissasmommy Children's Health 5 09-16-2008 08:04 PM
PFAPA (Periodic Fever Syndrome) bek23 Rare Disorders 5 06-23-2008 04:51 AM
PFAPA (periodic fever) omerbilhan Children's Health 9 05-10-2008 05:58 PM
PFAPA In Children gramstiles Children's Health 0 02-05-2008 04:00 AM
PFAPA or Periodic Fever Syndrome bdettis Rare Disorders 48 10-19-2007 06:53 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 06:16 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!