It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Rare Disorders Message Board

Could my 8 year old son have PFAPA?

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 06-08-2008, 04:11 PM   #1
Join Date: Jun 2008
Location: North Texas
Posts: 2
stacyeb HB User
Could my 8 year old son have PFAPA?


I'm new on this board, and I posted this question in a reply on another thread (and I think I messed up on the heading--it shows I'm a newbie!), so I thought I'd repost my question.

I also have been wanting to write about my son who will be 9 in August. Last February, he had a serious bout with strep (positive quick test at the ER) that took two rounds of antibiotics to wipe out. However, after that, he started having periodic fevers, usually about 26 days apart, although there have been a few times that lasted less than this and once longer. It always starts the same way: chills, low grade fever that slowly builds to around 103-104, red swollen throat (but not sore), white spots on throat and tonsils, no appetite, malaise, and headache. He doesn't usually have any other symptoms, although we're in the middle of one right now and his nose is itchy. The fevers last around 4 or 5 days and are worse in the evening than in the morning. He is normal the rest of the time, although I have noticed that his appetite has lessened since all of this began. His brother and sister never come down with this. And he's been cultured and quick tested--always negative for strep. We went to an immunologist last month who mentioned cyclic neutropenia, but when she saw his blood work (taken at the end of the last time), he was slightly anemic, had an equivocal results for Epstein Barr, and had a sedimentation rate of 27, and she seemed to think it ruled out cyclic neutropenia, although I don't think this was thorough enough (His neutrophil count was normal at the end of his last fever). We are waiting on his cbc from yesterday to see what it looks like at the beginning of a cycle, since he started getting sick a few days ago.

Has anyone had a child who started having symptoms later than the preschool years or infancy? Is it thought that a cold virus could set it off? Do other children have learning disabilities or other delays who have been diagnosed? My son also has ADHD, sensory issues, speech delay, and dyslexia. Thank you for your help! This whole experience has been so terribly worrying. Stacy

Sponsors Lightbulb
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Pfapa huntergreen Rare Disorders 16 08-04-2011 01:48 PM
PFAPA -what? walli6 Rare Disorders 48 06-17-2011 12:31 PM
Another PFAPA diagnosis lotusseeds Rare Disorders 8 03-31-2010 09:36 PM
2 year old diagnosed with PFAPA kmob1220 Rare Disorders 4 05-08-2008 07:56 PM
2 1/2 year old daughter recently diagnosed with PFAPA. dbrogan Rare Disorders 1 02-12-2008 06:45 AM
PFAPA In Children gramstiles Children's Health 0 02-05-2008 04:00 AM
my 3 year old granddaughter has been running a high fever for the last year every 6 w djandrews Rare Disorders 10 01-27-2008 01:24 AM
My DD was DX with PFAPA mamoda Rare Disorders 19 04-22-2007 11:48 AM
PFAPA or Periodic Fever Syndrome bdettis Rare Disorders 162 08-03-2006 08:22 AM
PFAPA syndrome catinhat95 Rare Disorders 2 06-16-2002 10:11 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 08:07 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!