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Ferriprox and Superficial Siderosis

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Old 03-03-2009, 06:36 AM   #1
Join Date: Mar 2009
Location: washington, dc
Posts: 3
martha1228 HB User
Ferriprox and Superficial Siderosis

I have been diagnosed with SS and have been offered participation in a clinical trial for ferriprox. Could I please have information on the efficacy of this drug, and any recent studies.

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Old 03-19-2009, 04:27 PM   #2
Join Date: Mar 2009
Location: rochester,mn,usa
Posts: 4
jrg998 HB User
Re: Ferriprox and Superficial Siderosis

I have also been offered the Ferriprox and am going ahead with it. Was this through Dr. Levy?

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