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  • Churg-Strauss Syndrome, Polyarteritis

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    Old 06-16-2010, 03:11 PM   #1
    Anjali
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    Question Churg-Strauss Syndrome, Polyarteritis

    Hi.

    After many years of being diagnosed with lupus, multiple sclerosis, mixed connective tissue disease, etc., I have been tentitively diagnosed with Churg-Strauss syndrome, or polyarteritis (both are forms of vasculitis) which was diagnosed in my 20's. I am going to U.C.M.C. Sacramento, which is the closest university hospital to my home, for diagnosis and treatment in the muscle clinic. I am wondering if anyone else has been diagnosed with either of these diseases and what their symptoms are. I am also curious if anybody has had the difficulty finding a doc who could diagnose them? I was actually diagnosed with vasculitis by biopsy years ago, but no one seemed to take it seriously after I moved up to far northern California from the bay area. It's been crazy. Anyone out there with one of these diseases?

     
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    Old 07-20-2010, 07:12 AM   #2
    harka
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    Re: Churg-Strauss Syndrome, Polyarteritis

    Hi Anjali,

    I don't myself have vasculitis but have worked with many people that do. Why was vasculitis first diagnosed in you?

    Churg-Strauss is a perinuclear-ANCA positive vasculitis which generally presents with a high eosinophil count (i.e. a certain type of white blood cell), wheezing, migrating pulmonary infiltrates, joint pain and kidney inflammation. Vasculitis itself is a HUUUUUUUUUGE umbrella term which many many different diagnoses contained within.

    Vasculitides are generally looked after by rheumatologists. You may have trouble having these diagnosed if you've only been going to family doctors--they are not trained in the specifics of these diseases; however, a general internist or a subspecialist like an infectious diseases physician or a rheumatologist would be very familiar with these conditions. These conditions may be rare to the public, they're VERY well known to specialists like the ones I mentioned.

    Are there any specific questions I can answer for you?

     
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