It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Rare Disorders Message Board

  • strange undiagnosable twitching

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 08-04-2003, 10:21 AM   #1
    kael
    Senior Member
     
    kael's Avatar
     
    Join Date: Jul 2003
    Location: Temecula, CA USA
    Posts: 123
    kael HB User
    Post strange undiagnosable twitching

    Hi, I see many others here with twitching going on and Renee, I've spoken with you on other boards already.

    I thought I would share my story. About four months ago now, I started having some cramping in my left calf - eventually the sciatic nerve became irritated. I saw a chiro with no relief and progressive weakness in calf and toes. (strength has returned here now!)Then started the nerves twitching only in that leg. Over days the nerve twitches "moved" up the left side of my spine all the way to my head and eventually encompassed my whole body. Along with this, I felt so sick in my muscles (like the worst flu ever) that I thought I was dying. Eventually, much of the time the twitches became relentless - and I also had internal buzzing along my spinal cord that affected my internal organs so badly that they caused me dry heaves almost nightly. (My symptoms are almost always more severe at night.) At my worst point, I was not sleeping more than 2 hours at a time because my nerves had gotten so sensitive that when they touched anything static for long enough (like the bed) they began to buzz and twitch wildly - so much of my body must touch the bed to sleep that it overloaded my system and I started to get literal rushes of adrenaline that woke me up. My arms and legs are became progressively weaker and for a few days I had burning under my skin all over my body. For several weeks, I was basically disabled by this. I lost 20 pounds though thankfully my appetite has now returned and the weight loss has stopped.

    I have had normal MRI's and Brain scan, normal nerve conduction and muscle tests (but 4 weeks ago)-and normal blood tests ... all except for a positive ANA titer of 1:640 and abnormal thyroid levels (I have been treated for hypothyroid for years) which is now being monitored by an endocronologist. He says that he hasn't really seen symptoms this severe caused only by thyroid, however.

    I have seen two rheumatologists and two neurologists and they are baffled because my symptoms don't exactly match any box that they could put me in.

    The good news is that I have started sleeping better (though still nowhere near normal) and I'm left with tired and aching muscles (better sometimes, worse others).

    The twitching has turned into a general tremor (mostly upper body now) and is only really troublesome when I first wake up either in the night or first thing in the morning. I'm just so weak and get fatigued easily.

    Don't know if any of this sounds familiar to anyone, but thought it wouldn't hurt to post here.

    Hugs,
    Kael


    __________________
    Practice Compassion...Heal The World

     
    Sponsors Lightbulb
       
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Strange Calf Spasms Najika21 Foot & Ankle Problems 1 09-04-2009 05:32 AM
    twitching, tingling and strange sensations swan58 Neuropathy 0 08-22-2008 09:20 AM
    Strange neck sensation luckeeluke Lyme Disease 6 06-10-2008 06:22 PM
    Strange Symptoms HelpMe23 Neuropathy 0 10-25-2006 11:01 AM
    Muscle Aches, Twitching, Strange Skins Sensations, Numbness, etc. msmina63 Neuromuscular Diseases 2 07-23-2006 07:49 AM
    Twitching Nerves, not just normal twitching here TradeDayDan Open to All Other Health Topics 5 05-07-2005 09:07 PM
    strange undiagnosable illness kael Neuromuscular Diseases 2 09-12-2003 12:46 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 01:29 PM.





    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!