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    Old 08-04-2003, 10:21 AM   #1
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    Location: Temecula, CA USA
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    kael HB User
    Post strange undiagnosable twitching

    Hi, I see many others here with twitching going on and Renee, I've spoken with you on other boards already.

    I thought I would share my story. About four months ago now, I started having some cramping in my left calf - eventually the sciatic nerve became irritated. I saw a chiro with no relief and progressive weakness in calf and toes. (strength has returned here now!)Then started the nerves twitching only in that leg. Over days the nerve twitches "moved" up the left side of my spine all the way to my head and eventually encompassed my whole body. Along with this, I felt so sick in my muscles (like the worst flu ever) that I thought I was dying. Eventually, much of the time the twitches became relentless - and I also had internal buzzing along my spinal cord that affected my internal organs so badly that they caused me dry heaves almost nightly. (My symptoms are almost always more severe at night.) At my worst point, I was not sleeping more than 2 hours at a time because my nerves had gotten so sensitive that when they touched anything static for long enough (like the bed) they began to buzz and twitch wildly - so much of my body must touch the bed to sleep that it overloaded my system and I started to get literal rushes of adrenaline that woke me up. My arms and legs are became progressively weaker and for a few days I had burning under my skin all over my body. For several weeks, I was basically disabled by this. I lost 20 pounds though thankfully my appetite has now returned and the weight loss has stopped.

    I have had normal MRI's and Brain scan, normal nerve conduction and muscle tests (but 4 weeks ago)-and normal blood tests ... all except for a positive ANA titer of 1:640 and abnormal thyroid levels (I have been treated for hypothyroid for years) which is now being monitored by an endocronologist. He says that he hasn't really seen symptoms this severe caused only by thyroid, however.

    I have seen two rheumatologists and two neurologists and they are baffled because my symptoms don't exactly match any box that they could put me in.

    The good news is that I have started sleeping better (though still nowhere near normal) and I'm left with tired and aching muscles (better sometimes, worse others).

    The twitching has turned into a general tremor (mostly upper body now) and is only really troublesome when I first wake up either in the night or first thing in the morning. I'm just so weak and get fatigued easily.

    Don't know if any of this sounds familiar to anyone, but thought it wouldn't hurt to post here.


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