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Systemic mastocytosis

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Old 02-08-2013, 05:41 AM   #1
Join Date: Feb 2013
Location: Atlanta, ga. US
Posts: 1
freyja711 HB User
Systemic mastocytosis

I was diagnosed with mast cell disease in 2005. I haven't had any remarkable symptoms until last month. I had a GI bleed ( ulcer) I had two units of blood an was in ICU for 2 days. While having an endoscope, my blood pressure dropped and I stopped breathing. When I left the hospital, my hemoglobin was 9.5. I went for a follow up with the hematologist 4 days later. My hemoglobin dropped to 8. My normal level is 14. My blood work is up and down. My GI symptoms are still bugging me. I followed up with a gastroenterologist. Now my lower GI is bothering me as well. My energy is up and down. My eyes sting and burn too. I'm afraid that my disease is progressing and I'm a bit worried. I'm going to Emory university winship cancer center in a couple of weeks. I feel that I need a researcher to see me. Anybody else have this problem??

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