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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

  • CRPS- Exploring treatment options

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    Old 07-25-2015, 08:31 PM   #1
    dom778
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    CRPS- Exploring treatment options

    My daughter is 16 and she was recently diagnosed with CRPS a year ago. Since then she has tried the medication Clonodine but that made her very moody and was not helping her pain. We also took her down to the Children's Hospital of Philadelphia for their intense amps program which we were hoping would help her. It has been four months since the program and although there has been many improvements there is still a significant amount of pain. Is there any other treatments out there like nerve blocks or spinal stimulation that anyone could suggest? She is also a athlete and cannot run anymore due to the pain is there anything we can do to help her with this? Any advice would be awesome! I am desperate to get my daughter better!

     
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    Old 07-27-2015, 01:39 PM   #2
    Rachel18s
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    Re: CRPS- Exploring treatment options

    AMPS and CRPS should not be treated the same. My cousin has AMPS . I have CRPS, they just are not the same. I would definitely try sympathetic nerve blocks, they helped me quite a bit when my pain was 7+. Who is her pain management specialist?

    Last edited by Administrator; 07-29-2015 at 01:18 PM.

     
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    Old 07-28-2015, 12:58 PM   #3
    Michelle9224
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    Re: CRPS- Exploring treatment options

    If I had it to do over again I would have immediately done the Ketamine Iv protocol. It is important to act quickly. The Ketamine Iv (they say) is like rebooting your brain, to stop the pain signals.
    I wasted years going from doc to doc and doing soooo much research. Your daughter is young and that is a plus for her.
    warm hugs and wishing her a pain free day
    Michelle

    Last edited by Administrator; 07-29-2015 at 01:16 PM.

     
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    Tags
    athlete, chronic pain, crps, pain, rsd



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