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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


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Old 06-02-2004, 04:13 PM   #1
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Join Date: Mar 2003
Location: Canada
Posts: 32
Percussionist HB User

yeah they want to start me on Topamax (topiramate) any experience idea about this?????
:clown: Kara
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Old 06-02-2004, 04:35 PM   #2
Join Date: Jan 2004
Location: Coffeyville, KS
Posts: 275
msdrea83 HB User
Re: Topamax?

i'm on topamax and it works great for me. i take 25mg twice daily. i started at 25mg a day for a week then went up to twice a day, or something like that. i had previously been on neurontin, but it was making me sick, so my pm switched me to topamax, which i have no complaints about. it did make me a little dizzy/drowsy when i first started, but i'm over that now. i'd say go for it, give it at least 2 weeks or so, because i'm sure they'll have you gradually increase your dose, before you judge it, as you should all your new meds. goodluck!

Old 06-02-2004, 11:14 PM   #3
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Join Date: Feb 2004
Posts: 105
Gina2005 HB User
Re: Topamax?

Hi percussionist

I took Topomax earlier this year. It did reduce some of the burning but caused a lot of side effects which led me to discontinue it. I had no appetite, was losing 2-3 pounds per week, had tingling in my face and hands, and it lowered my white cell count. It does work well for a lot of people though with little to no side effects. I hope this turns out to be the case for you. Please keep us posted. Good Luck!


Old 06-03-2004, 07:01 AM   #4
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Join Date: May 2004
Location: Michigan
Posts: 18
PaulF HB User
Re: Topamax?

Im new that the meds, I hope that it works well for you, good luck,
Big Paul

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