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    Old 02-08-2006, 11:22 PM   #1
    beage
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    Does anyone know if this could be RSD?

    Hi, I would just like to know if anyone had or has this problem?
    It started for me 10 months ago. I fell off the back of a tractor trailer and got my leg caught between the dock plate and the trailor. I had to use two hands to
    get it out, and when I did I couldn't walk normal till this day. I went to a walk in clinic work sent me to, and returned back to work for two days. At this time my leg was all swollen and red. This went on for awhile and then got worse it felt like my leg was weak when I would try to walk (hobble is what I call it). They said it was a bone bruise and would heal in a couple of months. After fightingting with COMP. the Dr. did Surg. and he said he didn't find anything. I had MRI's on my knee and nothing. MRI on my back, Xray's on my hip, and leg all came out negative. Yet I can't seem to not be able to walk to this day without falling or my leg shaking. I loose my balance when I walk because when I walk my leg seems to drag. I can't sleep anymore and when I do my leg jerks on it's own. Now I had a nerve test and Triple Phase Bone Scan and Blood test and they all came out fine. I just wish someone could help me, cause it seems to me that they think I am making this up.
    I even stutter when the pain gets real bad. I have this non-stop pain too in the back of my knee along with this unknown bump from the fall.
    The Dr. that did the surg. said he dosn't know what my problem is, and after 6 months of theropy he said he can't do anymore.
    He released me and my job fired me, and I lost all my medical beniffetts.
    Workers Comp. cut my checks off too, and know we are behind on all our bills. I tried Unemployement but got turned down cause of my leg and I can't get a job. I got on my Wifes Insurance and been seeing our family Dr. He signed me up for Dissability (which is the good thing that came out of this)
    Now we been doing these test MRI,Bone Scan and Blood and all come back fine. Mean while my leg feels worst it get hot in the knee like someone is burning it with a match. I can't walk too far at all and my pinky, and ring finger get stiff in the morning when I wake up.
    I am not sure what this is but I know it is not in my head like everyone thinks.
    I studder when I am on it awhile, and know my neck twitches, and my mouth when I talk (studder).
    I wish someone could help me with this before we loose everything.
    If anyone could give me some info on this or anyone could relate to this PLEASE reply.
    There are other things I go though two Like Bad headaches, sometime hard breathing and leg shakes (while standing or sometimes walking).
    Sweating alot,and musle spasms and cramping, but all the time I have this pain 24/7
    Sorry so long

     
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    Old 02-09-2006, 01:30 PM   #2
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    Re: Does anyone know if this could be RSD?

    Did anyone recommend a pain management doctor? It may not help with leg dragging, but I would think something could be prescribed to help you deal with the 24/7 pain like Lyrica or Neurontin? Or maybe combo of drugs like other people have mentioned they are taking.

    But I somewhat what you are going through...I was told by a doctor in a world renowned medical center that the pain was in my head. I have since found out that my nerve had gotten nicked during a surgery.

     
    Old 02-09-2006, 06:33 PM   #3
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    Re: Does anyone know if this could be RSD?

    Thank for your reply,
    I am sorry to hear about your problems, and did you sue them for it?
    I have a lawyer on my case, but this is my 3 one (2 other's I fired)
    I am going to see another nerve Dr. on the 22nd.
    As for the pain management doctor no one recomended one to me.
    Do you think this could be RSD?
    I mean I looked at the Symptoms on this board and I do have some of them.
    This could explain why they can't find anything, and everything keeps comming back negative.
    Hopefully I will find out from this nerve Dr.
    Also I wish I could do something for Work firing me while I was on Worker's Comp. for this.
    I think that should be against the law, but my lawyer say's it is not cause I am not in a union.

    Anyways thankx for your reply

     
    Old 02-09-2006, 09:50 PM   #4
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    Re: Does anyone know if this could be RSD?

    Hi Beage and welcome to the boards. From What you describe, it kinda is and it doesn't sound like RSD. I mean that it sounds like you DO HAVE nerve damage in the leg, but it could be called Restless Leg Syndrome or Fibromylagia or someting else. Some of your symptoms click (fit), but some do not.
    Just because you have had negative test results--the bone scan, emg, mri"s, doesn't mean that you don't! I had negative on all except for the MRI'S. If they fired you at work, you definitly should seek the help of an attorney, whether in Personal injury or Work Comp. I'm not sure what state you live in, but if you have a paystub--you should be entitled to wc. But it all depends on what you told your dotor when you first say him. Did you report it as a work accidnet???

    The stuttering throws me for a loop too. Although I have known stutter's, and we are all handicapped here, that they don't bother me, it's just when they get nervous they stutter. So maybe your dr's are reading you wrong?? I'm just looking on the outside looking in. As far as the sweats, the stiffness in the morning, and everything else points to RSD or some other nerve disorder as I mentioned above. Have you had an EMG? I did & one came out negative, and the other positive. It just depends on what stage you are in. 10 months ago, it is very possbile.

    At least you do have some insurance. for now. I would definitely seek the advice of an attorney, because you are going to need all the ammo that you can get. As far as them firing you while you are injured, in my state it would be ill-eagle. There are lots of unions here too. Sounds like a made up story. What state do you live in. Very complex, but interesting. Keep us posted & remember to get several opinions, before you decide which way to go. Aloha Skooze PS you are in my prayers.

     
    Old 02-09-2006, 11:42 PM   #5
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    Re: Does anyone know if this could be RSD?

    I too do not think they can fire you if you are injured on the job. If you are turned down by WC they might say they fired you for not doing your job. Of course, you are really injured and can't do it, but you really need to prove it to WC and then as far as I know, your company has to support you. I live in Canada but there is WC here too and my sister was injured 17 years ago in a fall at work. Took some time off at the time but continued to work with pain for 17 years - her hips finally gave out and she was disabled. The WC lawyer she got was a specialist who only dealt in WC cases and knew the law backwards and forward and he got her full benefits, early retirement and all medical paid, including scooters, lifts etc. You have to get a lawyer that specializes and really knows how WC works and the games they play and how to counter them and how to document your injury and disability. You also need to go to a pain management doctor that specializes in RSD/CRPS. Not all Pain Management docs know a lot about RSD. Some specialize in the back or cancer or some other ailment. I know this sound like a lot but take one day at a time. I don't have all the symtoms of RSD but I had intense burning pain and extreme sensitivity to clothes toughing me, but they tried to give me a nerve block right into the damaged nerve. It was supposed to take away the pain if I only had a mild form of neuropathy but instead it made it 10 times worse and I ended up in the hospital. The pain doc said this proved I had RSD, but i would not recommend you try it. I too had weakness in my leg and went to the pool and saw a kinesiologist at first who assessed me and set up and exercise program for water exercises with floatation belt in the deep end and got the muscles to work properly and built up my stamina. Used crutches to get there at first, then a cane, but it sure helped. A good start is to do a search on the internet using the words RSD and Association. That should take you to a site that has lots of information on symptoms, diagnosis and treatment and many articles written by doctors on case studies. Check out other sites too. I have check hundreds in a search for the truth and I printed out the relevant ones and gave them to my lawyer. 8 binders of them in the end. Helped me win my case again the car insurance company. Just in case you don't have RSD, try putting words that describe your symptoms into the search bar and see what comes up. But get to a good Pain Mangement doc and go to Kinesiologist to see if you can get your legs working properly. Good luck. Laura.
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    Old 02-10-2006, 07:33 AM   #6
    beage
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    Re: Does anyone know if this could be RSD?

    Hello again,
    Thanks for all the replies everyone. My wife talked to my family Dr. today and asked him if he thinks I have RSD and he said that's why he what's me to see another nerve Dr.
    As for what state I live in it is New Jersey, and my lawyer told me I can't do anything about them firing me. I dissagree with this cause I was on Workers Comp. at the time and I did have Surg. and they don't know what the problem is. Workers Comp. told me I am at Max Medical Treatment and cut me off, but after that I had a blood test, MRI on my knee, a Triple Phase Bone Scan, and Xrays on my hip and leg on my wife Insurance. All Workers Comp. did was give me an MRI on my knee and back, Xray on my knee, nerve test and the Surg. As you can see I got more done with my wife's insurance. This means I should still be on WC cause we still can't find the reason. My Family Dr. is really helping me out here he signed me up for Temp. Dissability (I don't know if I got it yet) and he said he will do all he can to find the reason for my leg problem.
    I too think it is some sort of nerve damage, but maybe RSD with all these wierd things going on. I mean my knee got real hot last night (it does that at nights) not sure why though. As for the stuttering I get that when it really bothers me or I am on it for a while. I do however have this pain in the back of my leg all the time. It gets so bad at times I wish I had just cut my leg off when it got when it got caught between the dock plate and the back of the trailer. That way I would know the problem and wouldn't have to go through all of this. It really sucks when you have a problem and you don't know what it is.
    I have everything written down on what I am going through since this happened and we have pictures of my knee when it happened. I am really prepared on this and am determined to find out what is wrong with my leg.
    I will not just accept this and move on (like workers comp. told me) I want to know the answer.
    After I find out what this is, then I will go to the next step even if I have to tell my story to the media (which I told my lawyer and he said not too).
    I just feel like my job should not get away with this and if I can do something about it I will.

     
    Old 02-10-2006, 11:49 AM   #7
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    Re: Does anyone know if this could be RSD?

    Beage
    Sorry that all of this is taking so long for you to get answers. I developed RSD after foot surgery and had a huge flare-up after a second foot surgery. My surgeon kept telling me that the symptoms I was having were normal and to wait and see how I was feeling in a few more weeks. During the first episode, I had the burning experience constantly and sweating (lower leg and foot only) at night. The second time, it seemed like my foot was in a pail of ice and it was constantly cramped. Lots of pain. I had the extreme sensitivity both times and several other symptoms.

    My family doctor prescribed the Lidocaine 5% patch wich settled down some of the irritation and swelling. She also prescribed Neurontin 300mg. I take 2 at bedtime and 1 in the morning. This helps tremendously with the cramps. I was referred to a Pain Management Center and had 3 Lumbar Epidural Sympathetic Nerve Blocks. These blocks were very successful. My sysmptoms and pain have been reduced greatly. I am currently attending physical therapy 3 times a week for whirlpool, massage, range of motion and balance. After that, I intend to investigate the water therapy.

    Best of luck to you. I hope you find the help you need.

     
    Old 02-23-2006, 06:56 AM   #8
    beage
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    Re: Does anyone know if this could be RSD?

    I went to the Nerve Dr. yesterday and she wants me to see a pain Dr.
    She said that it's not nerve related and said all the signs point to RSD.
    My wife asked her what they could do and she said nothing there is no cure.
    She told us that a pain Dr. will help me deal with the pain, but not sure if I will be able to walk again. Is this what these pain Dr.'s do, or do they fix this?
    My lawyer told me that's what he thought I had too, and said it might just go away with treatments and I will be ready to go to work again.
    I don't think this is true and he just didn't want me to know the truth cause it is bad news and will upset me.
    He told me to go to the pain Dr. and see what he say's and then he will get me compensated.
    If I have this I will just have to deal with it some how, not sure how but I will find away I hope.

    thankx, for all the feed back
    everyone gave me so far

     
    Old 02-24-2006, 04:21 AM   #9
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    Re: Does anyone know if this could be RSD?

    Hi Beage,
    I am Michelle, and I have had RSD for five/six months now. It happened after a work accident too. I have been covered by wc, but they are starting the fight, and I am prepared with my lawyer.
    My RSD is in my left leg, started with knee, and spread to my foot and up my leg. I too, for the first month, did what the doc told me too and tried to deal with the pain and work full time on crutches. I went to an ortho, who sent me to pain doc, who did a 3 phase bone scan, which was positive for RSD, and had 2 lumbar blocks. And now with a new doc, I am scheduled for a third block.
    I am on many meds, even though before this i too did not take much medicine. but the pain is still unbearable. I am on 2400mg of neurontin, 50mcg of duragesic patch, 200mg celebrex, 60mg paxil, and 40mg of cymbalta. some are for pain, some for depression.
    I was told that I will probably never walk without assistance again. I have had crutches for the five/six months with this, and my arms are hurting too, despite the pain meds. So now I am in a wheelchair, cause the crutches hurt too much to use.
    I do pool therapy, every day of the week. It is hard to get things moving, and most days the pain is so bad in my leg that I wish that they would cut it off.
    I am in counseling, and learning to manage the pain.
    I pray that you find a good doctor, do whatever you can to keep the leg moving and strong. You can learn to manage the pain, and hopefully will not need many meds.
    Best wishes for healing and relief of your pain.
    michelle

     
    Old 02-24-2006, 06:11 AM   #10
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    Re: Does anyone know if this could be RSD?

    Hi Michelle,
    I am sorry to hear you have RSD. I am not sure if I have it though, but if your pain is like mine I know how you feel and are going through. My knee gets real hot at night (feels like someone is lighting it on fire). Then when I try to go the sleep my leg twitches and I can't fall asleep. I don't get too much sleep now a days cause of this. I too go through pain, and it is so bad at times it brings tears to my eyes. At first it was only hurting in the back of my knee. Now it is hurting in my thigh, and in the side of my leg. When I try to hobble (what I call walking since this happened) my ankle hurts so I am force not too hoble. All I do now is just sit here and think of what is going to happen next. I tried that wrinkle test in the tub and my bad leg, foot didn't have any wrinkles. My good leg, foot did though and that isn't good news. As for the finacial part of this I can't drive anymore cause my truck failed inspection and I didn't have the money to fix it and no money to pay insurance or the truck payment. I am behind in our mortage and many other bills. My wife works but we can't keep all the bills up with just her. I got turned down from Unemployement, and yesterday Temp. Dissability. I haven't had any income since Nov. 2005. I just wish this was all over with, cause I am starting to get mad and snapping at eveyone around me. I don't like being this way and I am normally not.
    I hate going to all these Dr. and doing all these test too. When I do they always turn out normal, and that get's me more upset.
    Life sucks for me now a day's, and I don't know what I did to deserve this.
    Why? am I being punished

     
    Old 02-24-2006, 04:48 PM   #11
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    Re: Does anyone know if this could be RSD?

    Beage and anyone else on this string, do not ever consider having your leg ambutated. Phantom pain can still be there as bad as ever and you might feel like you still had your legs. I don't think you were serious but thought I would warn you. However to get to a more important thing. Beage, the fact you mention in your first entry that your foot drags indicates to me that you might have damage to the peridontal nerve (spelling might be wrong) which runs down the outside aspect of the leg and into the spine. Why I say this is I have damage to the sapheneous nerve on the inside aspect of the leg. When I had my nerve conduction test, they indicated that they could not test the sapheneous nerve, only the peridontal nerve which contols the movement of the foot. People with damage to this nerve have drop foot - my girlfriend has it. The Sapheneous nerve does not control movement just sensation which for some reason or other they could not test. But if you have a nerve conduction test, they run a current through the leg and depending on how your foot reacts they can tell whether the nerve is working. Ask you doctor about it. I would get myself another lawyer. This guy is nuts to say you cannot fight WC. Sounds like he thinks it is just too much trouble to try. Call around, find one that handles a lot of WC cases and go for a first appointment which is generally free and ask what they would do for you if they had the case, then check their references carefully and switch if possible. I know you will be told that you have to pay the other lawyer, but you will find if you are not too far along in the case and the WC lawyer thinks you have a good case they will pay the other lawyer's charges and take over and deduct that from your settlement. Try it. Sound like you muscle are starting to shrink. I would try deep water exercise with a floation belt. Water resistence helps build muscle and you can at least build up your other muscles, keep your heart and lungs health and perhaps like me promote or stimulate the damages nerve so that it starts to act more normal. Hang in there - we all have felt desperate at some point. Get on the internet, put in the words Association and RSD and it should take you to a site that has lot of information. Check out drop foot and nerve damage to leg. You can have more than one problem. i have arthritis and RSD, different pains, different drugs, same exercise helps both. You really have to be your own advocate and you or someone else has to find out all you can about this type of injury as this is the age of specialization and doctors lack up to date information on all conditions. Hang in there, but fight. Good luck.
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    Old 03-08-2006, 04:34 PM   #12
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    Re: Does anyone know if this could be RSD?

    I just wanted to post an update to my post.
    I went to a pain Dr. and recieved the bad news, I have RSD. He told me that when my leg got caught in between the dock plate and trailor the nerve got damaged. He told me that he is not sure what stage but I do have a varient form of it. He put me on Lyrica and Tramadol to relief the pain.
    Also I asked him if I would be able to walk again without assistants and he said he doesn't think so.
    This was a big blow to me concidering we lost so much already. I lost my truck, they are comming for it anyday now. They are turning the heat of to by the end of the month. I still didn't get any checks. I applied for Temp Disability but they turned me down cause it happened at work. I do have an SS Disability apointment for Friday. I hope I get that seeing I got turned down from everything else.
    Not sure what these drugs are going to do, but I don't want to be all drugged out of my mind forever. I mean I wish there was another way.
    My Dr. only has 3 patients with this and whats to moderate me, cause he dosen't know to much about it.
    Well at least I know what is wrong with my leg, that is the good news
    But it might be permanite, that is the bad.
    I think these meds are making me light headed so I am going now

    Last edited by beage; 03-11-2006 at 02:39 PM.

     
    Old 03-11-2006, 06:45 PM   #13
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    Re: Does anyone know if this could be RSD?

    hi beage, this is michelle, and i am so sorry to hear the you are not doing well. if this happened at work, you must get a wc lawyer, and get them to have wc pay you for back pay and your wages, most give 80 percent of your income. but if this did happen at work and you reported your injury, they have to cover you med expenses and compensate you for the loss of pay.
    i am so sorry to hear that it is rsd. but i advise you to search for a doc that doesn't just want to watch it. if you treat rsd early and agressively, you can probably put it into remission, and at the least, sto it from spreading.
    my first pain doc would see me once a month, change pain meds, and tell me what to do, then send me home. i was having therapy, but pain was still so bad, and the neuro he sent me to did two blocks, then told me the duration and amount of pain relief were too low to continue blocks. well i am six months into this now, and am already getting sores, and it seems to be spreading to arms and hands. i have to have a stellate ganglion block now to see if the pain is rsd or something else. so please use the web to find another doc who wants to treat it, not watch it.
    i too was told that i would probably never walk without a device. it is hard news to hear at 25. and i sank into depression cause of the pain and the hopelessness of this disease. i am now seeing a counselor, taking meds for depression, and giong to see a psychiatrist soon.
    i too get the jerks in my leg, but mine happen during the day, mostly when i am relaxed some, and when i pray. so it has to do something with relaxation. but there are many things that you can have with rsd. some weird things too. i have sores that look like chickenpox until they burst and become pus filled sores that resemble bedsores. but i am as active as i can be, and i know they are not bedsores. also hands and arms are burning all the time now, and the pain in them is almost as bad as my leg. this started in my knee, and moved to foot within weeks, so please find a doc to treat you.
    i did not like meds before this, and although i still do not like to take them, i accept that i need them to be more like a human being. i was not able to do much before them, and i was nto a nice person. pain does things like that to you. to anyone. almost everyone with severe pain has depression. if that happens to you please get help. there is no need to suffer endlessly with that as well as suffering with pain.
    i often want to cut the leg off, but realize that if you cut it off, or even sever the nerves themselves, part of them will still be there and hurt like crazy anyway. so if i scared anyone, please forgive me. that is not something i would do, just used it to describe how much it hurts.
    i hope that you are ok, beage, if wc doesn't help, talk to any lawyer for wc, to see if you can get help. also try your local public assistance office. they may be able to help you.
    take care. i will be praying for you. we all need that.
    hugs
    michelle

     
    Old 03-14-2006, 08:29 AM   #14
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    Re: Does anyone know if this could be RSD?

    I think you are definitely doing an incredibly important thing by trying to find out if you have RSD or not, as early diagnosis I believe for me was my saving grace. I had to change orthopedists to one who was not afraid to talk with me about possible RSD, and had early diagnosis on their list of priorities. Although I was fighting the diagnosis, I did go to a pain management doctor at my orthopedist's recommendation, who confirmed the RSD diagnosis. I don't usually opt for traditional medical treatment, and decided to take what I considered to be a huge risk at the time considering the severity of my symptoms, and tried only noninvasive, natural therapies to treat my RSD. The orthopedist and pain mgmt. doctor had recommended the nerve block shot, which just didn't sound like something I wanted to do. This would have involved a shot in my neck to deaden the radial nerve in my arm. I have since read that nerve blocks are potentially carcinogenic. I explained my situation to my chiropractor, who taught me an accupressure technique I could do at home to help with the excruciating pain. Other therapies I did include: physical therapy-both regular and aquatic therapy, cranial sacral massage, castor oil packs, nutritional approach to support nerve injury, accupuncture, pain tape, magnetic cooper bracelet, hot/cold water therapy, use of an IF II unit which my PT prefered over a TENS unit, supplements prescribed by my chiropractor and accupuncturist, and swimming 3 to 5 times per week. Hope the above is helpful if you'd like to try more natural therapies. I had a hard time finding anything about natural therapies to treat RSD when I needed it. It has been a very long road to recovery, though they have worked wonders for me. Will keep you in my prayers.

    Last edited by ahaef928; 03-14-2006 at 11:58 AM.

     
    Old 05-04-2006, 07:08 AM   #15
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    Re: Does anyone know if this could be RSD?

    i also was fired from my job. have been collecting wc ever since though although, this at times is very frustrating as they always find new ways to screw me. lots of luck.

     
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