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    Old 07-11-2006, 10:28 PM   #1
    Sunnycal
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    New knee pain questions

    My husband was actually doing decently well on all his meds until last week. After sitting for two hours watching fire works, he got horrible pain in the back of his knee. He also said his foot--toes, then the bottom was numb, when his knee hurt. We saw his PM dr yesterday, and he wants him checked out for a blood clot in his leg. Today, we saw his primary care dr who would order the ultrasound. He doesn't think it is a blood clot, because his calf should hurt and be warm. He wants to check for a Baker's cyst. His intern thinks it is the RSD spreading. Wouldn't you be able to feel the Baker's cyst like a balloon? The back of his knee is swollen, but there isn't one spot that bulges out or anything. The pain in the knee can go away if he sits long enough in the recliner with his feet up. It comes back as soon as he stands up. It is a stabbing pain, like RSD pain (so bad that he cries--and with all the pain meds he is already on, that's a lot of pain). But he has never had numbness associated with RSD pain before. And would RSD spread with such intensity so suddenly? Or would a Baker's cyst be so painful? We can't get an appointment for the ultrasound until next week, so we won't know anything very soon.
    Sunny

     
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    Old 07-12-2006, 07:30 AM   #2
    feelbad
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    Re: New knee pain questions

    Hi sunny,just curious,is this a knee that your hubby actualy has the RSD in?if so,he just presented EXACTLY like i did when my bakers cyst,that also happened to be in my RSD knee did.really.I was sitting at my PC one day and all of the sudden the same ecact thing happened with the back of my foot foirst started to tinlge then it chnged into a bit deeper type of sensation,then it went thru the top of my foot,and eventually worked its way up to my knee,just like your hubby.it was then that I started massaging my knee and the back of it because it had just become rather painful,well i felt what was like a marble sized lump there?when I saw my NS,he was pretty sure that it ws indeed a bakers cyst.or popliteal cyst.same thing,different name.i just recently had to have mine removed as it had become just humongous over the past few years.I kept putting it off only because of the risk of increased pain and the possible mirror spread it could cause to my other knee.they actually just did a femoral block before the surgery and I ahev had no problems with it at all,for the surgery anyway.

    he really needs to be seeing a good orthosurgeon regarding this.and yes they DO hurt like hell sometimes.i knew what my RSD pain felt like and also what the "new' pain was from the B cyst.i really did let mine go for wayy too long only becaue of that fear.by the time it needed to come out because it alone was causing me some really over the top extreme burning from hell,just due to the huge size it had grown to,geez he had to make this incredibly huge incision just to get the thing out from withn the knee.it had actually started squeezing itself into and between other structures inside of my knee by that time.i never should have waited that long.

    I would just make sure he sees a good ortho for monitoring or possible removal now,depending.I wish himluck with this.I did find that when things really hit the fan,my TENS unit really helped alot.just a suggestion.Marcia
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    Old 07-12-2006, 09:12 AM   #3
    Sunnycal
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    Re: New knee pain questions

    Marcia,
    Thank you for posting. I remembered that you said you had a Baker's cyst and was hoping you would see this! So far, his RSD started in his right ankle, spread to his left, but was not in his knee yet. He does have bad osteoarthritis in his knee and has had 2 arthroscopic knee surgeries (before the RSD started). (This is all from the auto accident.) But he had not had RSD pain in his knee before. (By the way, you gave such a great description of the different kinds of pain on the pain board, I priinted it out for him to see.) You said you felt a "marble", though. He doesn't feel anything like that, just general swelling behind the knee. They should be able to tell definitively on the ultrasound, I would think. Did your Baker's cyst pain feel like RSD pain? That's what he says it feels like.
    Thanks again.
    Sunny

     
    Old 07-13-2006, 02:07 AM   #4
    eunie'sflame
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    Re: New knee pain questions

    Sunny I just had a doppler Ultra Sound on my right leg the reason for it was because my right foot/leg had swelled up so bad the urgent care clinic I went to thought it might be a blood clot. With WC it took 3 mos to get it so thank goodness it wasn't a blood clot, but the point is my injury started out 3 yrs ago as a maniscus tear in my right knee and I had 2 arthroscopic knee surgeries and RSD followed soon after. I had been told from the very begining of my injury by at least 5 drs I have bakers cyst behind my knee and bacially don't worry about it..For the past couple of wks now if I have been laying down or sitting for any long amount of time my right leg/foot and butt will tighten up so bad to the point so painfully I can't move and I am screaming out in pain!! It almost feels as if a muscle is running all the way down from my butt down the back of my leg and under my foot and can't even bend my foot that's how bad it is. The top of my foot is a dark red kinda like the color of dry blood..now all of a sudden after 5 months of this swellining in my foot the swellining is going down now but the coloring is still there. The pain is staying consent now and I am more aware of it so I try to get up more and move around more. I have a wheeling walker and I can tell how weak my knee is getting from this pain. I'll be seeing my orthosurgen on tuesday next wk so I can talk to him finally about it and maybe he can give me some relilfe..I don't know if any of this is of help but I'm sure glad I'm not the only one going through it..it is a real pain in the butt to say the least!! lol take care Sunny and hope your husband is doing better! Marcia your post was very helpful thank you so much..
    eunie

     
    Old 07-13-2006, 10:03 AM   #5
    Sunnycal
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    Re: New knee pain questions

    Eunie,
    Your experience sounds eerily similar, too. He says that the muscle is tight in his thigh. Last night the pain went all the way up his thigh. (Literally a pain in the butt ) His foot is not any more swollen than usual, but it is swollen behind his knee. Because the pain specialist asked the PCP to order the ultrasound for a blood clot, not RSD, we can do it through my insurance and he has an appointment next week. Let us know what your doctor says, and good luck to you.
    Sunny

     
    Old 07-16-2006, 06:44 AM   #6
    feelbad
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    Re: New knee pain questions

    sunny,the US should be able to pick up the B cyst.i actually had an MRI as i knew there was other damage to my knee as well.i already had a ton of swelling going on and there was some at the back of my knee as well.but when I pushed into it as my swelling at that area wasn't as bad,i could feel that little marble thing that eventually became this really huge cyst over time.

    the thing is,there is a an actual tear somewhere inside your hubbys knee that is allowing the fluid(swelling) to create a "pocket' of fluid.this IS the cyst itself.the synovial sack that surrounds that area is what is currently filling up with fluid.

    it all has to do with the inflammation going on in the knee itself,for some reason,when there is a constant sort of inflammation going on,the body creates more fluid,so this is why the cyst just continues to grow larger.my ortho explained this to me much better than I am explaining this to you,lol.

    the thing is,when this is actually removed,the tear that is in there will HAVE to be repaired or this little "cycle' will just keep repeating itself.believe me whenI say that the synovial fluid just keeps on a commin til this tear is fixed.

    i had one heck of a time post op from the actual suregry because when the femoral block wore off and my spasticity combined with this to cause me some of the worst spasmes I have ever experienced in my life.I normally have alot of spasticy issues going on in my legs just because of my spinal cord injury,so normally,for me,either sitting for more than fifteen minutes at a time or when I go to sleep at night,the nerve signals to my legs are stuck on this non stop hiway to my legs.if i do not get up from sitting like every fifteen min and just dissapate all of the energy,my legs will just go crazy with nasty spasms til all the pent up energy is gone for that round,then I can sit again but like clockwork need to get up again fifteen min later.the mornings are also bad for me as over night,well,you can imagine how much energy gets built up in them andn of course,when I get up i spend about a half an hour just walking(hobbling?)around the house doubled over with spasms from hell til its all gone or my morning valium kicks in,which ever comes first.

    sooo lying in a hospital bed like all day long without actually getting up,well the spasms I had that night once the block wore off were absolutely over the flippin top,i distinctly remeber thinking,while my legs were just snapping really hard,actual kicks really,god,I hope I don't rip out my stiches(my incision on the outside was absolutley huge andwent thru the bend and looked like an upside down "L" or a seven?)but I was thinking of the outside never even remembering i also had the stiches inside to also worry about.

    to make a very long story short,i ended up,that very daythat the stiches had been put in,ripping them out inside where he had closed up the tear.I was leaking synovial fluid out of my incision for three whole weeks before my ortho told me there was no other way but to go back into the knee and resew the tear again.god i was bummed but the fluid was like constantly streming out of this teeny tiny little pin hole area of my incision that was the only part that had not healed,everything else looked great.I couldn't believe tho just how much fluid came out,and this was a non stop flow.i actually had to tape the heavy duty maxi pads(they make an excellent trama dressing as well,trust me)over that area three times a day just to be able to get out of my bathroom.i tried every imaginable 'bandage' and stacks of 4x4s but they would be totally soaked by the time I was leaving my bathroom.the maxi pads were a true lifesaver for me,and no leaks,as the ads say,lol.

    But whatever ortho you speak to about any possible surgery down the road,make darn sure that he plans on actually repairing the original tear.there definitely IS one inside his knee or the cyst would not actually be forming.believe it or not,some orthos will just remove the flippin cyst without bothering to repair that tear,thats the only reson i am mentioning this to you.

    but depending on what shows up on the US will most likely dictate what he has done.and yes,the pain from my B cyst was very much comparable to the RSD pain.but I knew the difference between the two as the cyst pain was more to the back and side of the knee so when it would flare,it would travel somewhat up but mostly down thru that same area kind of on the inside part of my lower leg and end up in the arch?it would go straight down from the backside part of the knee.and burn like hell some days.

    hopefully your hubbys isn't too large.what happens next will mostly depend on what the ortho wanyts to do and how bad the pain really is in your hubbys leg and the knee of course.keep me posted sunny,and sorry if the typing is a mess besides the motor function problems I have in my hands we have a good storm moving in with lots of lightning and i need to get thee off the PC asap.good luck,marcia
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    11-20-01,placement of hardware for failed fusion
    9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

     
    Old 07-16-2006, 09:49 PM   #7
    Sunnycal
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    Re: New knee pain questions

    Thank you so much for your detailed response. My heart goes out to you with all the different pain issues you have. I have printed out the whole thread, and gave it to my husband to read. He said to tell you that he feels pain up through his thigh and into his hip now. He is inclined to think that it is the RSD spreading. But his foot is still numb, which sounds like circulation or something pressing on a nerve. We'll be able to know for sure (or at least know what to rule out) on Thursday when he has the ultrasound.
    Sunny

     
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