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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

  • RSD in both Feet -- Shoes???

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    Old 06-16-2010, 10:04 PM   #31
    trophybass2
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    Re: RSD in both Feet -- Shoes???

    I also have crps in both feet and the only shoe that I can wear to walk any at all in are called MBT. They are expensive ($150-$250) but do not let you bend your toes at the metatarsal area. I also wear fuzzy crocs in the evenings when I am at home. Hope this helps some and hang in there, God Bless.

     
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    Old 07-07-2010, 10:34 PM   #32
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    Re: RSD in both Feet -- Shoes???

    Quote:
    Originally Posted by luvlifeagain View Post
    Hi again. I got my furry crocs at Famous Footwear. Great socks are at Target near the pharmacy section(not the sock section) called "diabetic socks" they are soft and stretchy b/c diabetics can't wear tight clothing. So comfy. I have only found them in white or black but they are great! Good luck. Donna

     
    Old 07-07-2010, 10:58 PM   #33
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    Re: RSD in both Feet -- Shoes???

    Hello All !
    Bad shoes are the worst! Fell and broke my feet and back april 22 2009
    No dianasios until oct 2009. R.S.D. is my life after being an active out going
    person all my life, by landcaping buss. in home plant bussiness.
    Donna I am so not in to the computer, so do not feel bad about that! Great news is my saving grace has been shoes/sleppers from Avon. Memory foam
    insoles in the size you wear and the next size for flares.
    Just found you,time or meds and bed .
    Shannon

     
    Old 07-13-2010, 06:21 PM   #34
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    Re: RSD in both Feet -- Shoes???

    Quote:
    Originally Posted by Cheri60 View Post
    Hi -
    I have developed RSD in both feet following surgery in July 09 and after a serious fall 4 weeks later. I am not able to go anywhere due to the extreme pain in my feet. I have found one pair of Sketcher shoes that I can tolerate for a few minutes but wonder if anyone has found shoes that at least can be worn? I am desperate. I have ordered several pairs only to send them back as soon as I tried them on.

    Has anyone found a pair of shoes that at least can be worn for enough time to go somewhere? I am open to any suggestions, no matter what the price. I also would like to see how others handle this extreme pain in the feet and the feeling of walking on crushed glass or spilled tiny dog food, lol.

    Thanks so much,
    Cheri
    Hi Cheri60. My husband developed RSD in his feet back in '99. He had badly sprained his ankle years ago. When he was around 34 his ankle would lock up just as if he had sprained it again whenever he did heavy lifting. We treated it like a sprain and it went away in about 3 days. The third time it happened, we went to a doctor who also treated it like a bad sprain and put him in a walking boot. He tripped at work one day and, in order to save the bad foot, landed on his good foot. That's when it started in the "good" foot, too, and he ended up in a wheelchair. We went to Health South, a sports therapy place, and was fortunate enough to have a therapist who did extensive research on RSD. She told Ken he had to walk through the pain to let his nerves know that there was nothing wrong and they could act normally. He said it felt like knives slicing into the bottoms of his feet with each step and said he couldn't do it. She said - Yes, you can - you have to or you'll be in a wheelchair the rest of your life and still in pain. So he walked! And he walked! He started out just walking a block or two. He ended up walking 6 miles a day. The pain went away. (Not that you have to walk that far or that much - he's also Bipolar so he gets obsessive about things.) But he still walks or works out on a Total Gym just about every day. I'm not saying he doesn't have any more pain, but he can wear shoes and walk without the slicing pain in his feet. He also has Fibromyalgia, Myofacial Pain Syndrom and Neuropathy in all 4 extremeties which also give him a lot of pain and impede what he can do. And the RSD still affects him, like his nerves still race and irritate him when he rides in a car or things just lightly touch him like the dogs. And if he doesn't have his Dibensyline for that, it can drive him a bit crazy from the sensations. His feet and ankles can still swell and the skin still can become tight, shiny and red, but it's much better when he does what he's supposed to.
    I don't know if this is the same kind of pain you have, but I hope this information helps.

     
    Old 07-13-2010, 06:25 PM   #35
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    Re: RSD in both Feet -- Shoes???

    Hi Cheri60. My husband developed RSD in his feet back in '99. He had badly sprained his ankle years ago. When he was around 34 his ankle would lock up just as if he had sprained it again whenever he did heavy lifting. We treated it like a sprain and it went away in about 3 days. The third time it happened, we went to a doctor who also treated it like a bad sprain and put him in a walking boot. He tripped at work one day and, in order to save the bad foot, landed on his good foot. That's when it started in the "good" foot, too, and he ended up in a wheelchair. We went to Health South, a sports therapy place, and was fortunate enough to have a therapist who did extensive research on RSD. She told Ken he had to walk through the pain to let his nerves know that there was nothing wrong and they could act normally. He said it felt like knives slicing into the bottoms of his feet with each step and said he couldn't do it. She said - Yes, you can - you have to or you'll be in a wheelchair the rest of your life and still in pain. So he walked! And he walked! He started out just walking a block or two. He ended up walking 6 miles a day. The pain went away. (Not that you have to walk that far or that much - he's also Bipolar so he gets obsessive about things.) But he still walks or works out on a Total Gym just about every day. I'm not saying he doesn't have any more pain, but he can wear shoes and walk without the slicing pain in his feet. He also has Fibromyalgia, Myofacial Pain Syndrom and Neuropathy in all 4 extremeties which also give him a lot of pain and impede what he can do. And the RSD still affects him, like his nerves still race and irritate him when he rides in a car or things just lightly touch him like the dogs. And if he doesn't have his Dibensyline for that, it can drive him a bit crazy from the sensations. His feet and ankles can still swell and the skin still can become tight, shiny and red, but it's much better when he does what he's supposed to.
    I don't know if this is the same kind of pain you have, but I hope this information helps.

     
    Old 07-15-2010, 09:58 AM   #36
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    Re: RSD in both Feet -- Shoes???

    Hi Cheri,

    My feet have been effected for many years.It has become more tolerable as time goes by. It's been 17 years,

    I wish I had a easy answer for you! The only shoes that I tolerate now are Easy sprit seaker,mukes. I think they are called travelers. I have ti get double or triple wide. I have both withs...depending on how swollen my feet are and if I need socks. The only socks I can wear are those meant for diabetics. I order off a wen site....Foot Soultions.

    I have gone thru various shoes over the years. The best had velcro closures and were usually sandales. It's trial & error.

    Hope you find something. Living in Florida allows me to go barefoot most of the time.
    Judie




    I have developed RSD in both feet following surgery in July 09 and after a serious fall 4 weeks later. I am not able to go anywhere due to the extreme pain in my feet. I have found one pair of Sketcher shoes that I can tolerate for a few minutes but wonder if anyone has found shoes that at least can be worn? I am desperate. I have ordered several pairs only to send them back as soon as I tried them on.

    Has anyone found a pair of shoes that at least can be worn for enough time to go somewhere? I am open to any suggestions, no matter what the price. I also would like to see how others handle this extreme pain in the feet and the feeling of walking on crushed glass or spilled tiny dog food, lol.

    Thanks so much,
    Cheri[/QUOTE]

     
    Old 07-21-2010, 05:50 PM   #37
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    Re: RSD in both Feet -- Shoes???

    Hi Everyone,

    I've been reading your posts trying to get an idea if my symptoms are similar to yours. I've had 4 foot surgeries in the last 3 years to build arches in my extremely flat feet that were causing me pain, only to deal with chronic pain over a year after my last surgery. Both of my feet are in pain 24/7, preventing me from beginning a teaching career or even working full-time. The part-time work I do from home is even too much on most days, when I feel like I can't get out of bed. I usually describe the pain in my foot to be crushing, as if someone took a hammer to the top right below my toes. My feet always feel freezing too and there's numbness directly on my toes, esp the pinky toes. Another way I describe the pain is as if my feet were frozen in a huge block of ice then someone took an ice pick or sledge hammer to crack it open. Sorry to be so vivid, my b/f cringes when I describe it this way. Anyway, in the past 3 months, I seem to be getting progressively worse. Also, sometimes I have pain on the bottoms of my feet, as if there was a golf ball imbedded in the middle of my foot. So many different kinds of pain I'm dealing with all at once. Cramping will spread to my calves and up my leg on some days, making it feel like restless leg syndrome. Also all the muscles in my body (neck, shoulders, calves) are stiff, sore, and achey and I also have tendonitis in my ankles, left knee, and right elbow. I'm also wondering if maybe I had fibro since I have a ton of those symptoms as well. Aren't I a mess! Kaiser is taking their sweet time with diagnosing me and getting me proper care. I've just been enrolled into a new pain management program that starts in 8 days. This pain management department is in the same department as addiction medicine (what a coincidence!) and, if they didn't make me feel like a drug addict enough each time I go in (because I'm 25 and just too young to be feeling any of this and should just take an Advil), for each visit, every other week, pain management patients have to take a urine drug test, a breathalyzer, and you have to hand all your meds over in a plastic baggy so the doc can count your pills. I guess it's necessary these days to tighten up and make sure people aren't just in there for the wrong reasons, but it sure makes you feel like you're doing something wrong! Sorry to digress, just had to rant. It's been a hard (and painful!) last few months. I'm taking Percocet to manage pain and it's just not helping enough. It works slightly for about an hour, then the next 5 hours are just torture. I'm also taking Celexa, an anti-depressant, and Temazepam for insomnia/anxiety. Other than that, I've been a hermit and practically bedridden.

    Thanks for all of your info, advice, and recommendations!

    Tanya

    Last edited by ouchyfeetsies; 07-21-2010 at 05:54 PM.

     
    Old 07-22-2010, 08:50 AM   #38
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    Re: RSD in both Feet -- Shoes???

    Hi Judie,

    Thanks for responding to my post so quickly! It's too bad I can't see the website you referred to. I guess they don't allow the sharing of sites on here. I've been reading an exorbitant amount of information on health websites, etc., trying to gain knowledge so I can go into the doctor's office armed with at least some information. I've printed up a list of symptoms for both fibro and RSD and plan on showing my new pain specialist the lists. Very good advice about being an assertive patient -- I've learned that the hard way after being pushed around too many times by docs. I've always been a very passive and extremely sensitive person, so over the months I've been forced to grow a thicker skin and not put up with the BS you're so often fed. One doctor put me on Tramadol which didn't do much except give me tremors, and when I told her this she snarkily asked, "Then why are you taking it? Why are you taking something that's not helping you?" Um, because you prescribed it to me and I'm in a lot of pain!! If you're given a pill and told it'll help with pain, then you're going to take that pill hoping just maybe it'll help that particular time. I hate when doctors make you feel like a bad, dumb patient -- talk about adding insult to injury. I suspect that many of those doctors who lack sensitivity or compassion have never experienced chronic pain and also try to save face by making it seem like the patient is doing something wrong, not the doctor. I've changed my primary doctor twice, and my current one has a tough and stern exterior, but tries her best to provide exceptional and immediate care. It's been an emotional ride; I also want to be referred to psychiatry asap so I can have an outlet (other than this forum) for the pain and also the aggravation caused by the hoops you have to jump through with healthcare. Dealing with Kaiser has been a source of stress and anxiety -- not to mention the bills! Every time I see a new doctor and explain my case I get so emotional I end up with tears. This is mostly out of frustration and because I'm hypersensitive, but doctors often misinterpret it as depression and will ask about symptoms of depression, in one case even upping my dose of antidepressants. Anyway, I think the depression is under control and even the anxiety (which was much worse) has gone down with treatment and since I've been getting a bit more sleep. Now it's just about the agonizing pain that wakes me up every morning and pesters me the entire day. And also chronic fatigue. You all are such strong people for dealing with this much longer than I have. I'm getting a lot of support from family and friends, but it's still hard for them to understand. One of my closest friends is avoiding me right now because she doesn't know how to handle everything I'm dealing with...

    With love and healing vibes,

    Tanya

    Last edited by ouchyfeetsies; 07-22-2010 at 08:53 AM.

     
    Old 07-22-2010, 02:05 PM   #39
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    Re: RSD in both Feet -- Shoes???

    Hi~
    Thanks for the tip on shoes. I am probably not buying wide enough or large enough shoes. I have basically one pair of Sketchers with velcro (tiny) straps across the top and my feet swell immediately. I also just go barefoot, but it restricts where I can go as most don't allow you to go w/o shoes, lol.

    Thanks again and I pray you are doing better.

    Cheri




    Quote:
    Originally Posted by judiev331 View Post
    Hi Cheri,

    My feet have been effected for many years.It has become more tolerable as time goes by. It's been 17 years,

    I wish I had a easy answer for you! The only shoes that I tolerate now are Easy sprit seaker,mukes. I think they are called travelers. I have ti get double or triple wide. I have both withs...depending on how swollen my feet are and if I need socks. The only socks I can wear are those meant for diabetics. I order off a wen site....Foot Soultions.

    I have gone thru various shoes over the years. The best had velcro closures and were usually sandales. It's trial & error.

    Hope you find something. Living in Florida allows me to go barefoot most of the time.
    Judie




    I have developed RSD in both feet following surgery in July 09 and after a serious fall 4 weeks later. I am not able to go anywhere due to the extreme pain in my feet. I have found one pair of Sketcher shoes that I can tolerate for a few minutes but wonder if anyone has found shoes that at least can be worn? I am desperate. I have ordered several pairs only to send them back as soon as I tried them on.

    Has anyone found a pair of shoes that at least can be worn for enough time to go somewhere? I am open to any suggestions, no matter what the price. I also would like to see how others handle this extreme pain in the feet and the feeling of walking on crushed glass or spilled tiny dog food, lol.

    Thanks so much,
    Cheri
    [/QUOTE]

     
    Old 07-22-2010, 02:20 PM   #40
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    Re: RSD in both Feet -- Shoes???

    Hi,
    I am so very sorry about how your pain management team is making you feel. First of all, find another one! Talk to others in your area and find someone where they don't take away your dignity and also understand what RSD means.

    Yes, this is exactly what RSD feels like. It could have been me describing exactly what I feel every single day. I had chronic pain before I had the feet surgery and fell a year ago. (Because of 4 back surgeries) My doctor, his PA and I have a very good relationship. Yes, I have to at times take a urine test, but rarely. I don't have to take my meds in, but it might be that I have been seeing him for almost 12 years. I don't give them any reason to not trust me. I am extremely careful.

    There are times when others make me feel like I am doing something wrong at taking the meds (I also have the pain patch), but I have to what I need to do to get through the day. Yet, most days, I am in a recliner or bed and rarely get out anymore except to go to Dr appts. Very few of family or friends understand what I live with each day. At times, I get embarrassed when I have to turn down invitations to go places or out to lunch.

    If you get the right medication at first, RSD can be helped for some people. I am not able to take the drug they use and I think it depends on how quickly you take it and how involved the nerves are. Since you have had 4 feet surgeries, it is probably a result of these. Usually, RSD is caused by injury or surgery and can involve other parts of the body. I think I also have it in my back from previous injuries and surgeries.

    You are very young. My granddaughters are 11 and 7, so your body might be able to fight this better than mine is. The biggest problem is finding shoes (sketchers, for me), and trying to keep the sheets from hitting my feet.

    A friend of mine has RSD in one leg and foot and she uses a type of dish shelf that is made of wire mesh and has folding sides. She puts it over her feet and it holds the covers off the skin. I tried a couple of them, but one kept collapsing and the other shelf, my toes kept getting caught in the wire mesh!! I ended up throwing that one on the floor in the night.

    Please let me know how you are doing, and please try to find a doctor you are more comfortable with. I am in South Texas and love my doctor. I also used to know one near KC MO. I might be able to ask my doctor for some names in your area.

    Thanks so much for writing.

    Cheri

     
    Old 07-22-2010, 02:22 PM   #41
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    Wink Re: RSD in both Feet -- Shoes???

    I've been having a hard time finding comfortable shoes too. I'm usually barefoot, in comfy soft loose socks (the kind that feels like a snuggly blanket), or in slippers. On the rare occasion that I leave the house I wear Birkenstocks which were recommended because my low, barely existing arches need that kind of support. But they are not comfortable. Today I just received another pair of Birkenstocks that look nicer and seem to fit better. We'll see how that goes.

    I have a pair of shoes that are very comfortable made by Keen which my former PT highly recommends. They're a little pricey if you look on the Keen website, though. A website called "Endless" has a TON of shoes for really good prices. You also get like 6 months or something like that to return your purchase, no hassle. They can't be worn though and have to have the box and tags on. I returned a pair of sandals that were too small. Today I just ordered two pairs of Croc sandals from Endless. Got 2 pairs for about $50, not too bad. My good friend who also has chronic foot/nerve pain swears by her crocs so I had to check them out. I'll report how they feel when I get them!

     
    Old 07-22-2010, 02:28 PM   #42
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    Re: RSD in both Feet -- Shoes???

    Hi Cheri, Thanks so much for the support and advice! Do your feet feel cold too? One doctor I went to said that it's prob not RSD since my skin wasn't discolored, swollen, or hot. I told her that it's the opposite for me -- my feet are constantly frozen and the toes are numb. I will definitely keep fighting! If Kaiser doesn't give me what I need or if I don't benefit from them, I might check out an alternative doctor who does acupuncture (tried it before thru Kaiser, didn't work but willing to try it again if seen more regularly), acupressure, and some other things. I'm half Chinese and grew up with a mom who is a big believer in Chinese medicine. I'll keep you informed with how things go! Today is one of my better days as I feel more energetic and positive overall. Hope you're also having a better day than most!

    Lots of love,

    Tanya

     
    Old 07-22-2010, 02:29 PM   #43
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    Re: RSD in both Feet -- Shoes???

    Thanks for the websites! I have heard of others liking Crocs also but haven't been out to find any. Glad to know I can order from the Internet. This is how I do all my shopping. Unfortunately, I'm not able to wear socks. I have tried the diabetic socks but they still hurt. I don't think Birkenstocks would be comfortable for me. QVC has good prices on those as well as Sketchers.

    Hope your new shoes work!

    Cheri



    Quote:
    Originally Posted by ouchyfeetsies View Post
    I've been having a hard time finding comfortable shoes too. I'm usually barefoot, in comfy soft loose socks (the kind that feels like a snuggly blanket), or in slippers. On the rare occasion that I leave the house I wear Birkenstocks which were recommended because my low, barely existing arches need that kind of support. But they are not comfortable. Today I just received another pair of Birkenstocks that look nicer and seem to fit better. We'll see how that goes.

    I have a pair of shoes that are very comfortable made by Keen which my former PT highly recommends. They're a little pricey if you look on the Keen website, though. A website called "Endless" has a TON of shoes for really good prices. You also get like 6 months or something like that to return your purchase, no hassle. They can't be worn though and have to have the box and tags on. I returned a pair of sandals that were too small. Today I just ordered two pairs of Croc sandals from Endless. Got 2 pairs for about $50, not too bad. My good friend who also has chronic foot/nerve pain swears by her crocs so I had to check them out. I'll report how they feel when I get them!

     
    Old 07-22-2010, 02:41 PM   #44
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    Re: RSD in both Feet -- Shoes???

    Hi --

    There are times my feet feel warm to the touch but most of the time they are freezing. However, they are discolored and get swollen the minute I walk on them.

    I am so glad you are having a better day. This has been a hard week for me due to other health problems.

    I have never tried acupuncture but I have heard of some people getting results. I stay pretty mainstream on doctors, but depend on my faith to get me through the whole day. For me, prayer is the only way I can help the pain.

    I do have good doctors that give me as much pain meds as they can. Texas has a chronic pain program and this may be why I have found help. However, I had seen one doctor who always made me feel guilty for something I hadn't ever done. I quit going to him.

    Cheri




    Quote:
    Originally Posted by ouchyfeetsies View Post
    Hi Cheri, Thanks so much for the support and advice! Do your feet feel cold too? One doctor I went to said that it's prob not RSD since my skin wasn't discolored, swollen, or hot. I told her that it's the opposite for me -- my feet are constantly frozen and the toes are numb. I will definitely keep fighting! If Kaiser doesn't give me what I need or if I don't benefit from them, I might check out an alternative doctor who does acupuncture (tried it before thru Kaiser, didn't work but willing to try it again if seen more regularly), acupressure, and some other things. I'm half Chinese and grew up with a mom who is a big believer in Chinese medicine. I'll keep you informed with how things go! Today is one of my better days as I feel more energetic and positive overall. Hope you're also having a better day than most!

    Lots of love,

    Tanya

     
    Old 07-23-2010, 07:22 AM   #45
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    Re: Chronic Pain

    Just came across an AMAZING article that I'm thrilled to share with you all. It's written from the unique perspective of a chronic pain doctor who understands, or at least is continuously trying to understand, his patients -- a doctor that I have not come across yet in my short three to five months of dealing with chronic pain, but who I hope and pray I find some day and will not stop until I do.

    Now is one of those times that I DESPERATElY wish I could link the article directly on here. But, since this website has some sort of strict rule against doing so, I can direct you to a website called < edited >.

    Much love,

    Tanya

    Last edited by hb-mod; 07-23-2010 at 08:28 AM. Reason: Please don't post unapproved websites, per Posting Policy. Thanks!

     
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