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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

  • How Do I Know If I Have RDS Or If It's Something Else?

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    Old 02-08-2011, 06:28 PM   #1
    michlei
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    Question How Do I Know If I Have RDS Or If It's Something Else?

    I broke my foot (5th met) on Oct 31. I was in a cast for 6 weeks, then in a boot for 6 weeks because it was slow to heal. At the 5 week mark (still in the fiberglass cast) I had started trying to weight bear and found the area under my cuboid bone was extremely sore and tender. This has lessened somewhat, but I still feel like I am walking on a "rock" in that spot and my foot still has some swelling. My peroneal tendons and other tendons also burn and the ortho doctor suspects I have tendon inflammation.

    The reason I'm asking about RDS is that a podiatrist on a foot-specific site said he suspected I have it about 2 weeks ago after I'd asked some questions and given my symptoms. Today I started with physiotherapy to get ultrasound to help alleviate the inflammation in the tendons, and the physiotherapist also mentioned RDS.

    I've looked on various RDS sites, and I'm still not convinced. I actually think I have what's called Painful OS Peroneum Syndrome but want to be sure I'm educated on all possibilities as I understand this could be serious if I have it and don't take appropriate steps.

    Here are the symptoms I have:
    1) The painful, inflamed area is directly beside the fracture area (I broke the base of the 5th met, and the pain is directly under the cuboid bone). It feels like I have a sharp rock under there.
    2) I do have burning, but it follows tendon paths, isn't generalized burning or really hot. I do get a 'tearing' kind of burning under the cuboid if I am on my foot too long because of the "rock".
    3) Up until about 3 weeks ago, I did have trouble with pressure on that area from even a pillow, and had to buy wide, flat shoes as I can't stand normal arch supports to be putting pressure on that area. I can stand pressure on my foot now except full weight bearing or sustained pressure for more than a half hour. The pressure of a pillow no longer bothers me now that I've started anti-inflammatories and ice.
    4) All other areas of my foot are fine.
    5) I have no problem with hot or cold.
    6) My foot does turn a bit redder than my other foot when I first get out of the shower, but is a normal color very quickly. I've also read that this is normal after a fracture until full use of the foot.
    7) I am finding I am able to do more with my foot as the weeks go by, not less, though the "rock" under my cuboid is still there.
    8) Ice on that area (the cuboid) feels really good and helps alleviate the pain.

    My feeling is that while I have some hyper-sensistivity because of inflammation, I don't have any real symptoms of RSD.

    What do you guys think?

    P.S. For those who don't know: Painful OS Peroneum Syndrome is where an accessory bone that some people have (I do) either irritates or actually gets embedded in the peroneal tendon after an inversion injury (rolling the ankle, which I did and broke my foot doing it) and one of the symptoms if the feeling of a rock or pebble under the foot. My physio didn't know anything about it, so I will be taking more info on it to him.

    The physio also mentioned that my cuboid bone was lower than it should be, and noted that the head of my 5th met (at the base of the little toe) was higher than the other foot's, which I'd noticed too. He said it was due to ligaments and joint space at the cuboid bone.

    I am thinking I may be a bit hypersensitive to stuff in that area, but due to inflammation, and as that inflammation subsides, it seems to be subsiding too.

    I look forward to your comments...!

    Last edited by michlei; 02-08-2011 at 06:35 PM. Reason: Forgot to add stuff!

     
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    Old 02-09-2011, 02:13 AM   #2
    Homie2011
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    Re: How Do I Know If I Have RDS Or If It's Something Else?

    Hello,

    One thing you will learn about RSD...there is no touch of RSD either you have it or you dont. It either runs crazy or it does not. I have RSD in upper body and right lower lumbar to right foot...I think it is in left leg but it only gives me problems when I am in a bad pain cycle. Well, my right foot feels like it is 10 sizes bigger than other foot...it hurts when I walk on it but it is an odd pain..my foot is red and slighty swollen....very sweaty and you can see your skin sweating..it is cool actually if you think about what it is doing...

    The problem with RSD is that it is IMPORTANT TO get those blocks right away..so they say...by the time anyne would aknowledge that I had RSD...it was too late...3 yrs later and suffering so bad that I got on opiates thru doc. Just some advice before you start your Journey....go see a Antheologist that specializes in RSD...like yesterday....if you let me know what city and state you are in and I can look one up for you..if you'd like..It wont hurt your doc if you go to the right doc to get treatment....or maybe ask your doc if a nerve block would help? Maybe he will get it that you are involved in your care...Just like i told another gal...if the letters RSD/CRPS are thrown at you.....you have it! I was first diagnosed by Cranofacial Doctor and had to come here in 2003 to get a Good Docs Name and I have been with him ever since...he is dedicated and knowlegable within his limits....Just make sure you know that there is no Cure...no magic pill....ONLY PAIN MANAGEMENT and sypmtom control.....Very few Neurologists think this is a waste basket diagnosis but I firmly trust that we all feel the same in many ways and this isnt a waste basket..it is real...I live it every fricking day...so, basically the FDA, our wonderful government, has labeled us and we are here rotting away...I really dont care about me, but what about the poor babies that have to suffer on opiates or getting blocks..My kids cant handle Flu shot....or I think about the men and women that fought for our country and freedom and the Military send them home to suffer. But My Husband expalined to me (12 yrs Veteran Air Force) that the people that go into Service for their Country know that they are the property of that Service...My Husband said when he was in the War that he gladly would have taken RSD for his wife and kids to be free..but now it is different he is a family man and is my Solider..if ya know what I mean...13 years and we are still in love.

    Please keep coming back and let me know how things go and if I can help you..just post away or you can Private message me....I am little slow due to brain fog and lack of concentration..so if i dont respond please give me a boot...

    All my best for you
    Peace
    Kim

     
    Old 02-09-2011, 02:29 AM   #3
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    Re: How Do I Know If I Have RDS Or If It's Something Else?

    Oh one more thing...I will one more thing! you to death....Not everyone is the same on symptoms...we all differ slightly..just like any other disease...but the foundation for RSD is the same...burning and shooting pain, sweating, swelling, among other things...For example..I get what is called "RSD Lesions" They are open wounds on legs and feet and hard to get rid of...not all people with RSD get it..I get it cuz my leg and foot are sweating all the time and cant keep them dry....I even have livedo riticularus, which is skin death..I had 2 biopsies and it was confirmed rsd.....It depends on where it is...RSD lives in your Autonomic Nervous System...so anything your body does without your thought gets affected.....another example...I have RSD in Head all the way down to fingers, but no upper back...odd huh? Well, my eyesight, senses, and alot of things are different from you but I think it is cuz mine is located in upper body, I am affected more.....cuz there are more parts in your melon....

    Another thing..see I told you....Dont expect your Doc to run with the RSD Dx...he will be reserved about giving that confirmed Dx..it is still taboo and that is why we dont get treatment...Imagine if I had just one block early on...I will never know..We will never know....
    Kim

     
    Old 02-09-2011, 07:49 AM   #4
    michlei
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    Re: How Do I Know If I Have RDS Or If It's Something Else?

    Thanks for your response.

    I don't have sweating, don't have any skin changes. I have pain in one spot, but it's an area I injured. It isn't spreading. My foot changes color (turns slightly redder than the other foot) after I get out of the shower or if doing exercises with it, but doesn't change color any other time, and that color change goes away as soon as I stop the activity. I was super-sensitive to blankets, etc. when I first had my cast off and my foot wasn't healed yet from the fracture (blankets felt too heavy), but that has since gone. I couldn't have the bottom of my foot rest on a pillow at the end of the day as it was so inflamed but that has improved as well in the last 10 days since starting anti-inflammatories. I don't take any other medication.

    When I wake up in the morning, my foot is great. It only gets painful the more I walk on it.

    I truly believe I do not have RSD, that the phsyiotherapist is throwing that out there because of the area of sensitivity around the inflamed injured area.

    That said, I also believe that if I don't get this under control quickly and get this inflammation gone, etc. that RSD could very well be triggered as it's gone on so long that my nervous system could easily start going haywire.

    I will keep checking on here, and let you guys know of the progress, and if anything changes.

    Last edited by michlei; 02-09-2011 at 07:49 AM.

     
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