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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

  • Interested in info on Dr Robert Knobler, Ft Washington, PA

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    Old 06-17-2011, 07:54 AM   #1
    elisa dominic
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    Question Interested in info on Dr Robert Knobler, Ft Washington, PA

    Does anyone use Dr Knobler to treat their crps? Wondering what patients think of him as I am going to see him for the first time next week. All of the neurologists and ot/pt's that helped diagnose me independently told me "you need to see Dr S. @ Drexel". First of all, it is easier to get a private audience with the pope than to get in with him. Second of all, several of his patients are people with I have very close interpersonal relationships with and they couldn't get me in to see him. Lastly, I don't agree with how he has approached treatment of my loved ones, I believe he may have given them other issues with some of the treatments he uses. These are just my opinions and observations.But I wonder, what makes Dr. S the RSD god?

    So after getting the devastating diagnosis I never thought I would ever get, and knowing what lies ahead I did some research and found Knobler. Who, by coincidence started the RSD program with Dr S when they were both at Jefferson. When they split- S went the academic route, Knobler opened his own institute. The downside- Knobler is self pay and it can be costly. S accepts most insurance. The upside- not having to comply with the pressures of being associated with a neurology department at a large hospital, not having to listen to or comply with insurance companies or deal with drug companies- these all seem to give "incentives" for certain treatments. Without having to deal with all of that I am hoping he can treat me objectively, which is why I chose him.

    So I am just wondering what other people's experiences with have been with Dr Knobler. Is my hope warranted?

     
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    Old 06-17-2011, 09:19 AM   #2
    paininthefoot11
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    Re: Interested in info on Dr Robert Knobler, Ft Washington, PA

    Elisa,

    I wish I could help you with the doctor you are asking about however I do not know anything about him. I am truly sorry that you have been diagnosed with RSD. It was a hard diagnosis for me to accept, as I am sure that holds true for everyone that comes to this board.
    What brought on the diagnosis?

     
    Old 06-17-2011, 10:41 AM   #3
    elisa dominic
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    Re: Interested in info on Dr Robert Knobler, Ft Washington, PA

    Quote:
    Originally Posted by paininthefoot11 View Post
    Elisa,

    I wish I could help you with the doctor you are asking about however I do not know anything about him. I am truly sorry that you have been diagnosed with RSD. It was a hard diagnosis for me to accept, as I am sure that holds true for everyone that comes to this board.
    What brought on the diagnosis?
    Believe it was nerve damage that occurred as a result of an unrelated surgery. My loved ones developed RSD after auto accidents. Prior to my own diagnosis, I was ill informed about the disease and thought that accidents were the sole cause of RSD/CRPS. Naturally it was the last thing I ever expected to be diagnosed with after a surgery. I have seen how this illness runs its course, it is the last thing I would have ever wanted to live with. Now, pain consumes every day. I am grieving the loss of the fun, active, attractive, young, social woman I was just a few short months ago. Life can change in in an instant...

     
    Old 06-17-2011, 12:45 PM   #4
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    Re: Interested in info on Dr Robert Knobler, Ft Washington, PA

    I nerver heard of RSD/CPRS before I was diagnosed. However I now remember the surgeon saying (on the day I decided to have surgery, as the consult was ending and he was walking out the door) RSD could be a complication of surgery.

     
    Old 06-17-2011, 02:35 PM   #5
    elisa dominic
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    Re: Interested in info on Dr Robert Knobler, Ft Washington, PA

    I was informed of the potential complications of this surgery, even some that were very remote. However, RSD/CRPS wasn't mentioned even once.

     
    Old 08-01-2012, 03:31 PM   #6
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    Re: Interested in info on Dr Robert Knobler, Ft Washington, PA

    Quote:
    Originally Posted by elisa dominic View Post
    Does anyone use Dr Knobler to treat their crps? Wondering what patients think of him as I am going to see him for the first time next week....But I wonder, what makes Dr. S the RSD god?
    What separates him from the herd of "pain" specialists he will write the scripts for what pain medications you need. Most of the time you will have to pay cash for your visit (aka cash cow practice).

    The problem is his staff: Arrogant and for the slightest provocation will tell you the doctor will no longer see you and cut you loose. Good luck with your RSD and Knobler.

     
    Old 08-01-2012, 09:36 PM   #7
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    Re: Interested in info on Dr Robert Knobler, Ft Washington, PA

    elisa
    If I have read what you wrote correctly you need to look up this paper as your relatives are at increased risk of getting RSD.
    Familial occurrence of complex regional pain syndrome

     
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