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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

  • the spreading of RSD

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    Old 06-25-2002, 04:09 PM   #1
    nikkilee's Avatar
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    Post the spreading of RSD

    Big Question to pose: Can RSD spread to full body involvement? I say yes, because I live new GP says no, contrary to my PM specialist and my neurologist. I had a large tumor remove from my Sciatic Nerve 3 years ago. The RSD started in my left leg and eventually spread to my left. My arms followed. Can the eyes be involved? A big problem now is my BP keeps dropping very low. The lowest being 50/30. I typically can not stand without it dropping 20 points. I have many strange seizure like falls but it starts with my vision going black and my body thrashing, I can't control it, followed by falling to the ground. My body continues to thrash and twitch and my vision remains black while on the floor. Slowing my body stops moving so violently and my vision is restored. Does anyone know what is happening to me? HELP Please. I would like to hear other stories of RSD involvement and "Odd" occurances. Thanks in advance and May the Lord Bless us All with patience, peace, and hope fpr a cure. Nikkilee

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    Old 06-27-2002, 10:28 AM   #2
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    Yes, RSD can spread. There are doctors who feel it does not, and these are the docs to avoid. You can read about RSD through the RSD Assn. of America: [url=""][/url]

    Old 06-30-2002, 07:31 PM   #3
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    yep, it sure can. And the advice given by the first respondant is wise. Many docs don't understand RSD at all..I'm used to my specialst dragging in other doctors at the medical center, to show them my arm and hand so they could learn more about RSD's complexities. I've felt so much like a freakshow at times, that I feel I should charge THEM for a look, instead of the medical profession charging me.

    Remember: No matter where you go..there you are.

    Old 07-01-2002, 03:26 PM   #4
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    I feel the same way as you, A...I'm waiting for them to name a pill after me or something. Or, maybe these doctors will name their yachts after me with all the money their making from my visits and procedures!

    I had the RSD start in my right hand..go up the arm to the shoulder. Then, within a few months, during an exam, an RSD wise doctor took note of the mottled look to my legs. I said that I had noticed some swelling and aches but, didn't put it together with the RSD. I'm learning something new everyday with this.

    Take care-

    Old 07-07-2002, 01:21 AM   #5
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    This horid thing can deffinently spread all over. Everything you described has been proven to be related to RSD. Go to [url=""][/url] this doctor has some wonderful information. Read through the puzzles, you will find info. about all the medical problems you are having.

    My RSD started in my lower right leg due to an injury to my right hip. It quickly spread to my left leg and is now moving in to both arms. I have blurred vision sometimes and get severe headaches that seem to last for days. If your doctor is not associating all of your medical problems to your RSD then you need to get to another doctor quickly. Based on the symptoms you are describing you are in atleast stage 4 it sounds like. I pray that you get good help soon.

    My prayers are with you. The more people we educate about RSD the more chances that just one of them may find a way to help us all.
    My prayers are with you. The more people we educate about RSD the more chances that just one of them may find a way to help us all.

    Old 07-09-2002, 11:27 AM   #6
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    RSD can travel from arm to arm; leg to leg; arm to leg; or leg to arm.(arm meaning from the hand to the shoulder; leg meaning from foot to hip) I've read some articles that say it can eventually affect the eyes and internal organs like the liver. From my own personal experience it seems to be travelling to my neck and part of my head. I attracted this disease through a work related injury and am lucky that my attorneys are making sure I see docs that know what this disease is. I am also lucky that my own private physician is familiar with this disease. I just wish that I could get my boyfriend to understand about this disease. He seems not to want to admit that I am getting worse. Does anyone else have this problem?

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