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  • Fibro symptoms -- please note

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    Old 10-02-2003, 12:27 PM   #1
    dayton's Avatar
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    Post Fibro symptoms -- please note

    Since I have fibro and it's been mentioned here are some symptoms (but not all, the list is very long). Notice that it does indeed say that you can have "burning pain". Some people say you can't but you mostly certainly can. That's why it so hard to distinguish diseases.

    Stiffness: Body stiffness is usually most apparent upon awakening and after prolonged periods of sitting or standing in one
    position. It may also coincide with changes in relative humidity.

    Increased Headaches Or Facial Pain: Head/facial pain is frequently a result of extremely stiff or tender neck/shoulder
    muscles which refer pain upwards. It can also accompany temporomandibular joint (TMJ) dysfunction, a condition which
    occurs in an estimated one-third of those with FM and which affects the jaw joints and surrounding muscles.

    Sleep Disturbances: Despite sufficient amounts of sleep, FM patients may awaken feeling unrefreshed, as if they have barely
    slept. Alternatively, they often have trouble falling asleep or staying asleep. The reasons for the non-restorative sleep and other
    sleep difficulties of fibromyalgia are unknown although early FM research in sleep labs documented disruptions in the deep
    (delta) sleep of some patients.

    Cognitive Disorders: Those with FM report a number of cognitive symptoms which tend to vary from day to day. These
    include difficulty concentrating, "spaciness" or "fibro-fog", memory lapses, difficulty thinking of words/names, and feeling
    overwhelmed when engaged in multiple tasks.

    Gastrointestinal Complaints: Digestive disturbances, abdominal pain, and bloating are quite common with FM as are
    constipation and/or diarrhea. Together these symptoms are usually known as "irritable bowel syndrome" or IBS. FM patients
    may also have difficulty swallowing food. Researchers think this may be a result of abnormalities in smooth muscle functioning in
    the esophagus.2

    Genito-Urinary Problems: FM patients may experience increased frequency of urination or increased urgency to urinate,
    typically in the absence of a bladder infection. Some may develop a chronic, painful inflammatory condition of the bladder wall
    known as "interstitial cystitis" (IC). Women with FM may have more painful menstrual periods or experience a worsening of
    their FM symptoms during this time. Conditions such as vulvar vestibulitis or vulvodynia, characterized by a painful vulvar
    region and painful sexual intercourse, may also develop in women.

    Paresthesia: Numbness or tingling, particularly in the hands or feet, sometimes accompanies FM. Also known as
    "paresthesia", the sensation can be described as prickling or burning.

    Myofascial Trigger Points: A significant number of people with FM have a neuromuscular condition known as "myofascial
    pain syndrome (MPS)" in which very painful spots (trigger points) form in taut bands in muscles or other connective tissue,
    often as a result of repetitive motion injury, prolonged poor posture, or illness. Not only are these spots very painful but they
    also refer pain to other parts of the body in very predictable ways. Unlike FM which affects the entire body, MPS is a localized
    condition which occurs in very specific areas, typically the neck, shoulders, or lower back. TMJ is considered a form of MPS.

    Chest Symptoms: Individuals with FM who engage in activities involving continuous, forward body posture (i.e., typing,
    sitting at a desk, working on an assembly line, etc.) often have special problems with chest and upper body (thoracic) pain and
    dysfunction.3 The pain may cause shallow breathing and postural problems. They may also develop a condition known as
    costochondralgia (also referred to as costochondritis) which causes muscle pain where the ribs meet the chest bone and is
    frequently mistaken for heart disease. Persons with FM are also prone to a largely asymptomatic heart condition known as
    mitral valve prolapse (MVP) in which one of the valves of the heart bulges during a heartbeat causing a click or murmur. MVP
    usually does not cause much concern unless another cardiac condition is also present. (Note: Anyone experiencing chest pain
    should immediately consult a physician.)

    Dysequilibrium: FM patients may be troubled by light-headedness and/or balance problems for a variety of reasons. Since
    fibromyalgia is thought to affect the skeletal tracking muscles of the eyes, "visual confusion" and nausea may be experienced
    when driving a car, reading a book, or otherwise tracking objects. (Difficulties with smooth muscles in the eye may also cause
    additional problems with focus.)4 Alternatively, weak muscles and/or trigger points in the neck or TMJ dysfunction may cause
    dizziness or dysequilibrium. Researchers at Johns Hopkins Medical Center have also shown that some FM patients have a
    condition known as "neurally mediated hypotension" which causes a drop in blood pressure and heart rate upon standing with
    resulting light-headedness, nausea, and difficulty thinking clearly.5

    Leg Sensations: Some FM patients may develop a neurologic disorder known as "restless legs syndrome" (RLS) which
    involves a "creepy crawly" sensation in the legs and an irresistible urge to move the legs particularly when at rest or when lying
    down. One recent study suggests that as many as 31% of FM patients may have RLS.6 The syndrome may also involve
    periodic limb movements during sleep (PLMS) which can be very disruptive to both the patient and to her/his sleeping partner.

    Sensory Sensitivity/Allergic Symptoms: Hypersensitivity to light, sound, touch, and odors frequently occurs among those
    with FM and is thought to be a result of a hyperactive nervous system. In addition, persons with FM may feel chilled or cold
    when others around them are comfortable, or they may feel excessively warm. They may also have allergic-like reactions to a
    variety of substances accompanied by itching or a rash or a form of non-allergic rhinitis consisting of nasal congestion/discharge
    and sinus pain. However, when such symptoms occur, there is usually no measurable immune system response like that found in
    true allergies.7

    Skin Complaints: Nagging symptoms, such as itchy, dry, or blotchy skin, may accompany FM. Dryness of the eyes and
    mouth is also not uncommon. Additionally, fibromyalgia patients may experience a sensation of swelling, particularly in
    extremities (i.e., fingers). A common complaint is that a ring no longer fits. However, such swelling is not like the joint
    inflammation of arthritis; rather, it is a localized anomaly of FM of unknown cause.

    Depression And Anxiety: Although FM patients are frequently misdiagnosed with depression or anxiety disorders ("it's all in
    your head"), research has repeatedly shown that fibromyalgia is not a form of depression or hypochondriasis. Where
    depression or anxiety do co-exist with fibromyalgia, treatment is important as both can exacerbate FM and interfere with
    successful symptom management.

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    Old 10-02-2003, 12:38 PM   #2
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    Dayton, that is soooooooo not what I wanted to hear. What a mess we have all gotten ourselves into!!! How bad do you have the fibro?? How do you know where the fibro leaves and the rsd begins and vice versa?.
    Hope you are feeling well today. I know you have been having a tough time lately.

    There is always hope....
    I hope you have a joyful, peaceful and pain tolerable Christmas and New Year.
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    Old 10-02-2003, 01:09 PM   #3
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    Diane, that's what so wrong for me. The only thing I can connect is that the foot started burning after I hit it, then my arms. The fibro to me feels like somebody is tearing my joints out it hurts so bad. Truly the "felt like I was hit by a Mack truck" is very accurate. The blocks confirmed rsd but then I've read that even a normal person can have a positive block and that blocks really can't confirm rsd positively. Go figure..... I was diagnosed with "chronic and severe" fibro several years ago. I have a friend who has fibro and she's almost bedridden, her teeth have fallen out, she's a total mess. You can't even touch her, she's on a ton of meds.

    Somebody told me and that both fibro and rsd are auto-immune disorders, different sides of the same coin. Devlin Starlanyl says in her book that some people are in fact "fibroites" and not "rsd'ers". The president of the National Fibromyalgia Association has the burning total body pain. She can't wear jewelry, sheets hurt her, she's really bad.

    I have a terrible time distinguishing between the two and that's the problem. If I get confused, no wonder the medical professional doesn't often know what it's doing!!!

    Old 10-02-2003, 02:29 PM   #4
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    Thank you for taking the time to share this with us all.

    I hope you are feeling better. Appriciation is a wonderfull thing; it makes what is excellent in others belong to us as well Voltaire

    ((((Gentle Hugs))))

    Old 10-02-2003, 03:06 PM   #5
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    I have fibro also. I had it for years before my surgery which is why I have RSD. My pain is differnt from yours. I feel like I have the flu all the time. That achy, high fever, shoulders weighed down, don't want to move feeling. But, I don't have the flu or a fever. It takes so much energy for me when my fibro hits just to do something. I can tell when I my fibro hits me though with the RSD. I seem to sleep so much more. Like the past two weeks I have been taking a nap during the day, which is not like me and my shoulders ache. I fall asleep early at night (fibro) but wake up during the night because of the RSD.

    Hang in there. You will figure it out. I don't know if you keep a diary, but I have been writing down each day how I felt, medications I took, pain level, etc. whatever you want to add. It helps me to keep track of what is going on and why. I also write down questions for my doctor and write down what he says. I know you probably do this also, but I just wrote it so if someone isn't it is such a great way to keep track of where you are. Remember with RSD your doctor sees you one day a month, doesn't know on a day to day basis how you are. You might feel great that day and he sees nothing to treat. I think that is why RSD might not get diagnoised in some cases to late as the MD may only see you on good days.

    Went on again. Sorry.....................


    PS Not edited my me.

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