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    Old 02-07-2012, 02:41 PM   #1
    SpotMom1
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    Ketamine Coma Practictioners

    I have been told that there is a doctor in the Sacramento (CA) area that treats RSD with Ketamine. I had a lead, but have not been able to get a hold of them. does anyone know who in the Sacramento area uses Ketamine comas as a treatment?

     
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    Old 02-07-2012, 08:07 PM   #2
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    Re: Ketamine Coma Practictioners

    The Coma is banned in the states and germany. Only done in 1 Hospital in Mexico. It is on a trial basis and costs in excess of $60,000.

     
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    Old 02-09-2012, 04:12 AM   #3
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    Re: Ketamine Coma Practictioners

    Quote:
    Originally Posted by Kevscar View Post
    The Coma is banned in the states and germany. Only done in 1 Hospital in Mexico. It is on a trial basis and costs in excess of $60,000.
    REALLY? Wow...that is a huge let down... why is it banned? I am guessing that some people died from it? Any info you have Kevscar would be wonderful. I will keep trying to find more info on-line. I thought the coma was our last hope. I have read they still do the out patient ketamine treatments in a few places. Do you know if they are going to stop that too? Thanks Kevscar. You always have great info and I would really appreciate anything else you can tell us. Thanks again, Karen

     
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    Old 02-09-2012, 05:02 AM   #4
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    Re: Ketamine Coma Practictioners

    Yeah deaths and others not coming out of the coma. there appears to be no problem with having ketamine infusions. I think you have one a day for 5 days. But it's the same as all the other treatments works for some, only reduces the pain and the best you can hope for is 12 weeks before it gets back up to the same level

     
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    Old 02-09-2012, 06:11 AM   #5
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    Re: Ketamine Coma Practictioners

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    Originally Posted by Kevscar View Post
    Yeah deaths and others not coming out of the coma. there appears to be no problem with having ketamine infusions. I think you have one a day for 5 days. But it's the same as all the other treatments works for some, only reduces the pain and the best you can hope for is 12 weeks before it gets back up to the same level
    Oh, well, that makes me feel oh so much better. I hope you are having a better morning than I am, feeling a bit cranky today. Thanks for the info though, at least they're still doing some type of ketamine and maybe they can figure out a better way of doing it sometime soon. We can always hope. Hope you are having a painfree day and thanks again for the info, I really appreciate it. Karen

     
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    Old 02-09-2012, 06:24 AM   #6
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    Re: Ketamine Coma Practictioners

    Unfortunately I only have bad or really bad days. After one dose of any painkiller I get instant immunity, Professor reckons it's a neuro-receptor disorder so I have to fight this without any medication. Just willpower but I get a feeling I don't have an inexhaustable supply.

     
    Old 02-09-2012, 06:46 AM   #7
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    Re: Ketamine Coma Practictioners

    Quote:
    Originally Posted by Kevscar View Post
    Unfortunately I only have bad or really bad days. After one dose of any painkiller I get instant immunity, Professor reckons it's a neuro-receptor disorder so I have to fight this without any medication. Just willpower but I get a feeling I don't have an inexhaustable supply.
    Holy Hannah...can you take neurontin or cymbalta? nortriptyline? lidocaine patches? Anything? I can not even begin to fathom how horrific that must be for you. My heart goes out to you Kevscar. Really.

     
    Old 02-09-2012, 06:55 AM   #8
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    Re: Ketamine Coma Practictioners

    It's the same for everything, thats how I got this, Local Anaesthetic worked fpr first Carpal Tunnel but not secund. Each cut got worse, 4th one jerked so hard only head and heal on table left hand formed fist and shot into the air. right one broke against clamp but they never noticed.

    Last edited by Kev629; 02-09-2012 at 05:15 PM.

     
    Old 02-09-2012, 07:10 AM   #9
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    Re: Ketamine Coma Practictioners

    WOW....really, wow. I wish there was something I could do to help...I will be thinking of you all day Kevscar. I so hope you have a "less pain" type of day. Karen

     
    Old 02-09-2012, 10:21 AM   #10
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    Lightbulb Re: Ketamine Coma Practictioners

    Hello Kevscar,
    I too have the same issue with pain meds and having an immediate response from my neurotransmitters essentially "recognizing" the compound. Additionally, my brain will create more pain with the elevation in pain meds I ingest, so I just don't really take any. I think you and I are floating in the same leaky boat. As for Ketamine comas, I, before being forced into disability from my position as medical clinical director (though not a physician), I came to be very familiar with the process of Ketamine use. It is a heavily used "club drug" in Canada and a horse tranquilizer here in the States. When used in short infusions, for about two hours, along with a sedative to suppress disturbing dream states, the drug is believed to "reset" the neurological system from the physical body effects of RSD.

    Typically, patients will be ordered for 5 to 10 days of 2 to 3 hour infusions, during which they are completely sedated. The sedation is necessary due to the "key hole" the patient enters. Look it up-it's why I won't be doing it. The actual psych term for the "key hole" is "dissociation"and can be quite upsetting if the patient isn't sedated enough. BUT, if the right drug combination is given, there have been some excellent results and outcomes, with some patients reporting serious decreases in RSD symptoms or even complete remission of the disease in just days or weeks. Patients may have to come back once every 3, 6, 12 or whatever monthly frequency the physician orders in order to "keep the disease under control". For others' Ketamine doesn't provide any relief or a level worth the trouble of the infusion. remember that all treatments are subjective in success rating.

    I should note that the "Ketamine coma", during which the patient isn't awakened AT ALL for a full five days or so from the Ketamine infusion, IS illegal in the US. Alternatively, if the patient is awakened daily by lessening and stopping the administration of the drugs while being monitored in an ICU, the Ketamine infusion CAN BE legal. Another note is that NO INSURANCE will pay for the Ketamine infusions, be it during a two hour or a twelve hour period. All are cash payment services paid for by the patient. There may be a rogue insurance company out there paying for a Ketamine treatment somewhere, but they are not the norm. Ketamine was only recently outlawed overseas in Germany after the death of a female RSD patient who sadly died during a week-long Ketamine coma. It has never been legal here in the U.S. to administer Ketamine for more than a portion of one one day while in an ICU. Ketamine can be administered via injection/drip or nasal inhalant.
    Some of us with a diagnosis of RSD are stuck with essentially no pain relief (like you and I, Kevscar, who rate our pain on a scale from 1 to 12 instead of 1 to 10, per my pain management neurologist), some do Ketamine utilizing their own personal savings (sometimes supplemented by fund-raisers, second mortgages, etc.).

    Some lay in bed, day after day swallowing pain meds and potentially fueling a possible addiction. There are so many levels to this disease and not much support. We need each other and this site is a great place to find one another. I thank each and every one of you for your time and friendship. It is a true thing of beauty that in a time of solitary darkness and merciless pain, I can find my way here and see the light of friendship. Thank you.
    Shauna

     
    Old 02-10-2012, 04:18 AM   #11
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    Re: Ketamine Coma Practictioners

    It was outlawed in germany sometime in 2009, I first read about it in January 2010. To show you how far behind the so called specialists are here in the Uk I recieved an e-mail June 2011 saying they were trying to raise funds for me to have it. I-mailed back saying I didn't think it had been done in the Uk before to be told they were planning to send me to germany.

     
    Old 02-10-2012, 04:37 AM   #12
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    Re: Ketamine Coma Practictioners

    Goodmorning Kevscar, well, its morning in Tennessee. Is the out patient outlawed in Germany too? And I lied, its not a good morning. My right foot looks like a hot water bottle and feels like its in a vat of boiling oil. How are you doing??

     
    Old 02-10-2012, 11:01 PM   #13
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    Re: Ketamine Coma Practictioners

    We are 8 hrs ahead of you here. Don't know about outpatients, I contacted the German Embassy who refused to confirm or deny the ban, they gave me the e-mal address of the clinic that used to do it. but I never got a reply from them when I asked f it was still available so I guess the answer is no.

    Last edited by Kev629; 02-11-2012 at 02:48 AM.

     
    Old 04-26-2012, 02:19 AM   #14
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    Re: Ketamine Coma Practictioners

    Quote:
    Originally Posted by SpotMom1 View Post
    I have been told that there is a doctor in the Sacramento (CA) area that treats RSD with Ketamine. I had a lead, but have not been able to get a hold of them. does anyone know who in the Sacramento area uses Ketamine comas as a treatment?
    I would be really curious to find this. Have you had any luck with the lead. There are plenty of docs who do IV Ketamine (not the coma), but all the one's in CA are in Southern California, which is not at all convenient for me... Pester the lead? Or anyone else have any info about a doc in Sacramento area that treats using Ketamine...

    Thanks. And love to you all. You are brave people!

     
    Old 04-26-2012, 11:02 PM   #15
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    Re: Ketamine Coma Practictioners

    If ketamine is your last option, you might contact UCSF and Stanford to inquire. Not quite in Sacramento, but better than driving to LA. They might also have additional options that your doctors have not offered.

     
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