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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Seeking more info...

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Old 04-08-2012, 06:44 PM   #1
Join Date: Apr 2012
Location: Pelham AL, USA
Posts: 1
BrandiMcgary HB User
Unhappy Seeking more info...

Hi all!
I was hurt on Sunday, 2/26/12, falling down ONE stair and landing on my ankle and bending it at an awkward angle ( I also weighed 189 lbs). We went within the hour to a doc in the box.. and after several xrays was told that it was just a sprain, and that I should be able to walk on it by Tuesday of that week. Of course, I wasn't, hadn't really slept much and was in a great deal of pain, said doc in box and was attempted to be treated for the flu.... So, I contacted a well known ortho here, and saw them on Wed. After xrays there....several angles that I didn't even think about... was told that there were 2 fractures and a "severe" sprain. Got a real sexy black boot and PT. I went back to work on March 4, 2012. ( I work at a pre-school) For the first 2 weeks I had pain meds, (lortabs 5) and naproxin. By the time I had had 4 Pt sessions it was clear that I couldn't bare for my foot to be touched, and it looked horrible. The swelling and mottling was getting worse rather than better. The Pt said then that I should start to desensitize my foot because in her words "this can be a serious problem." Though she didn't elude to what could happen. When I saw the Dr. again, he said I needed to be careful because RSD was a possibility with the hypersensitivity I was experiencing, and agreed with the PT. This is 2 weeks in to the injury..By now I am having burning sensations in my foot, feeling like a million ants are crawling and biting, that it is just perpetualy that painful state...and the again, the blotched mottled color. He said that I have " a little RSD" that like being a little pregnant? Two weeks later after 4 more PT sessions and seeing the Dr again, I still can't stand to have it touched and the pain is worse.. sleeping is getting ridiculous... and just had an MRI on 4/2/12. results were torn tendon with RSD..... HELP!
Even when "pushed" on the subject my Dr. is vague...when I ask questions such as What am I looking at, or How long will this or can this last... On 4/7/12 I totally forgot to take my lyrica, which was last night and woke up with the most intense twinges of pain in my life. I couldn't figure out and didn't remember until about 2 this afternoon that I had forgotten it. I had doubts it was helping, not now. Anyone out there having any of these issues? At this point I feel so ridiculous, when people ask isn't your foot better or says things like It can't hurt that bad..... I am still trying to understand myself HOW it hurts this bad..... Thanks for the space to rant...B

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Old 04-09-2012, 12:49 AM   #2
Join Date: Apr 2011
Location: UK
Posts: 257
Kev629 HB UserKev629 HB UserKev629 HB UserKev629 HB UserKev629 HB UserKev629 HB UserKev629 HB UserKev629 HB UserKev629 HB UserKev629 HB UserKev629 HB User
Re: Seeking more info...

I don't know where in the world you are so can't give you a location but it definetly sounds like RSd and you need a refferal to a specialist urgently as there is still time if treated prorperly for you to go into long term remission.
Whatever happens do not allow them to use Ice or Hot and Cold water contrast therapy.

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BrandiMcgary (04-10-2012)
Old 04-09-2012, 02:36 AM   #3
Join Date: Feb 2011
Location: UK
Posts: 95
sswallow HB Usersswallow HB Usersswallow HB Usersswallow HB Usersswallow HB Usersswallow HB Usersswallow HB User
Re: Seeking more info...

Check with the doc if you've been having the right PT for a torn tendon, since it was discovered after the PT started. Check if the PT could have worsened the pain if inappropriate. Ask for the correct PT (probably little, gentle and often) . Ask for little gentle and often exercises to maintain muscle tone. Put all this in an email and the confirm what you think has been said in a folllow up e-mail. Copy it all to all medical people concerned every single time after and before appointments - the squeaky wheel gets the oil.

On a more alternative note from our experienece and reading, which may or may not work for you, try very very gentle massage and exercise every hour where possible (we generally went for building up to contract muscle for five seconds, building up to 30 lots of 5 second contractions - we're talking les than a mm movements initially here and once they had built up, we massaged every day, but exercised every other day to allow the muscle tissue the chance to rebuild), try Epsom salts (or maybe Lemon Balm), for pain reduction, research about magnetic bandages/bed sheets, keep a careful eye on every part of your body and if something starts not to move right, start very very gentle exercises to stop it deteriorating, try vitamin C omega 3 and 6 and multivit and plenty of protein for repair, try very very gentle massage for ten minutes with warm oil across the area after warming it, prior to the hourly exrcises, let any damage repair rather than trying aggressive physio which may damage it further and cause more messy scar tissue collagen growth followed by more messed up nerve growth, try to reduce the pain cycle by relaxation meditation - perhaps cocncentrating on your breathing for ten minutes a day.
Good luck and I'm sorry for your pain
Once he was much better we started moere conventional physio to build up muscle and once we were restarting sports we put on bandages for matches etc although they're mostle not used now.

Last edited by sswallow; 04-09-2012 at 02:42 AM. Reason: Add more info

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BrandiMcgary (04-09-2012)
Old 04-09-2012, 02:43 PM   #4
Join Date: Apr 2012
Location: Stony Stratford, England
Posts: 3
Jonda HB User
Re: Seeking more info...

Ask for more Test. See a CRPS Specialist. Do not take any chances?

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