| Re: Thalidomide treatment for RSD?
Welcome, Gabbymsw! I haven't heard about thalidomide, either, but this is a great place to hear about new treatments and how different people react to them. I'm so sorry you have to be here, but I hope you can find some help here.
Personally, I preferred starting with the more "physical" treatments over the heavier drug treatments like ketamine. My daughter started off with spinal blocks, and then when those stopped working, we went to Bier blocks, which also gradually stopped working. At that point, we had a choice between ketamine and a SCS (spinal cord stimulator). We were scheduling a SCS when we stumbled across a mention of a fairly new treatment called Calmare, and we decided to go to New Jersey to be treated by a doctor that specializes in RSD. My daughter responded really well to the treatments, and is in remission. She's been in remission over a month now, which is longer than any of the other treatments lasted.
We're all different, but personally, I'd recommend at least looking into some of the blocks (spinal and/or Bier) and maybe Calmare before trying something like thalidomide, which seems to be such a heavy-duty drug. I think there are threads on all of those treatments. But of course it's up to you. Blessings to you, and best wishes for a good treatment!
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Peace, sjb
