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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Advice needed

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Old 11-19-2013, 08:39 PM   #1
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Advice needed

I have RSD and have a SCS since August. I have been having seizures. Yes seizures. The doctor I see tells me I could be having serve jerking. I hate the doctor I have but it is a workers comp so I am limited on my doctors.

Has anyone heard anything about RSD and seizures?

Last edited by Bratette19; 11-19-2013 at 08:40 PM.

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Old 11-20-2013, 03:32 AM   #2
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Re: Advice needed

No, but one of the drugs my son was offered was also an epilepsy drug (didn't take it, cannot remember what it was) and we have epilepsy in he family - might be worth some research since there's some stuff about epilepsy being a progressive disease too

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Old 11-21-2013, 12:50 PM   #3
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Re: Advice needed

I have never heard of seizures with RSD or from having the SCS. What type of meds are you taking? Maybe it's from the meds, never know, but worth checking out. Look up your medications online and see what side effects that it has. Also, if you are not already on it, request to take the drugs for epilepsy. I take Neurontin (Gabapentin) and that is an epilepsy drug. There are others who have taken Topamax as well. Again, an epileptic drug. I know what you mean though with work comp doctors...I have a work comp case going right now. Last week my doctor prescribed a muscle relaxer and I am STILL waiting on approval for it!

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