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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Could This Be RSD?


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Old 01-04-2014, 05:44 PM   #1
rory47
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Could This Be RSD?

Hi. I am new these boards. This is going to be a long post. I appreciate your reading this, and hopefully someone can help me. Although I have a great pcp, my ins Co is not approving a neuro or pm at this time. Although I do take meds, I feel like something is really wrong and I need help. I'm not sure where to post this, so I started here.

I have had neck and back pain for 17 yrs due to 2 mva's. Many years of treatment, no different. Diagnosed with cdd and herniated disks, lots of headaches and very stiff sore neck.

In 1997 started getting horrible abdominal pain, right under sternum and into back. Went to er 6 to 8 times in 2 years, it was so bad. Dr thought gallbladder, except testing said otherwise. Finally took it out, finding no stones in or around it. Continued with the attacks
although some were not as bad as others. Usually they are about half of what they once were and lasted much shorter than before. For the last 15 years, I get these pains about 5 times a year. Just learned to live with it.

In 2008 I fell very hard, landing on only my right hand. So hard I thought I broke my hand at first. Within days my bicep tendon area was very sore and tender whether moving my arm or not. Also very limited from in that arm. MRI showed numerous tears. Had my first surgery march 2009. No different. Another surgery June 2009. Since my bicep tendon was hurting, Dr did a bicep tenodesis. No different. Another surgery in Feb 2011. Started pt next day and continued for 8 months. No different. Just learned to live with it.

Dec 2011 woke up day after Xmas with a sharp shooting pain in my right arm. Besides my normal bicep tendon pain, I now had sharp pain in shoulder blade, chest arm pit and down arm. Felt like nerve pain. Finally saw neuro in march and pain still there. Hadn't gone away even for a minute. Surgery in April 2012. Had acdf c5-6, 6-7. About 2 wks before surgery my pain went slightly down, but still painful. Dr was hopeful sharp pains would be gone, but my bicep pain would still be there. When I woke up, the sharp shooting pain was gone, but the exact pain was now in my other arm, the left. Until now I had never had any pain on the left. Dr told me that night it was normal. I made sure he understood it was in my other arm now. At my follow ups, same thing. Said it was normal. By te time I saw a new Dr for a second opinion, the sharp pain down my forearm was mostly gone, but still had the sharp pains in shoulder blade, chest and armpit area. Dr said I had cervical stenosis and radiculopathy. Said I would have to deal with it.

Was dealing with it when in July of 2013 I woke with the very same bicep tendon, hurting whether I moved it or not. The very same 2-3 inch area as my other arm. So now my pains are exactly the same in both arms, and both arms have the same rom, which is not very much.

In November I started getting pains in my rear and my legs. Mostly right side. Also deep aching in both hips

Day after Xmas I woke up with sharp jabbing pains everywhere. Both arms, from the shoulder blades to my forearms, and my wrists and fingers. Both legs, in the groin and thigh, both sides of the rear, my ankles and the tops of my feet. Even in my jaw. I have also been getting my stomach pains just about every day since I woke with all these pains. Also, I have been having burning feeling in both legs off and on. Also, I have been more exhausted than ever before. I can hardly get off my couch. I am so tired, yet I can't sleep because I hurt so bad. I can't imagine what will happen next. I hurt everywhere.

Does anyone have any ideas? Thanks for any insight

 
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Old 01-04-2014, 11:01 PM   #2
rory47
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Re: Could This Be RSD?

i should mention that my car accidents were in 96 and 99. All of my issues were cervical related.
Also, the only thing different for me the day before I woke up with the nreve like sharp pains was that on Xmas I did pick up my nephew and carry him for just a bit. I did try to carry him on my right side my better side. He is about 30 lbs. And in July, when I woje to my left arm hurting even worse, I had carried a not too heavy box mostly in my right arm.

The reason I'm wondering about rsd is that after months and months of waiting for my ins Co to OK a neuro, I asked my pcp what he thought was going on. He reluctantly said it could be rsd or maybe even Ms. I just wish I knew what I was dealing with. My arms are so bad that I can't move them or they hurt much worse than they do without moving them. I fear the rest of my body is following.

Thank you for any ideas or suggestions

 
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Old 01-04-2014, 11:03 PM   #3
rory47
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Re: Could This Be RSD?

i should mention that my car accidents were in 96 and 99. All of my issues were cervical related.
Also, the only thing different for me the day before I woke up with the nreve like sharp pains was that on Xmas I did pick up my nephew and carry him for just a bit. I did try to carry him on my right side my better side. He is about 30 lbs. And in July, when I woje to my left arm hurting even worse, I had carried a not too heavy box mostly in my right arm.

The reason I'm wondering about rsd is that after months and months of waiting for my ins Co to OK a neuro, I asked my pcp what he thought was going on. He reluctantly said it could be rsd or maybe even Ms. I just wish I knew what I was dealing with. My arms are so bad that I can't move them or they hurt much worse than they do without moving them. I fear the rest of my body is following.

Thank you for any ideas or suggestions

 
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Old 01-05-2014, 01:43 PM   #4
rory47
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Re: Could This Be RSD?

I forgot to mention a few other things. I just want to make sure I give a complete picture of what's going on.

For about the last 1-2 yrs I have one foot that is much colder than the other, and one hand that is much colder than the other. Also, just in the last week I have burning sensations in both legs. Not the whole leg, just sections at a time. It feels like its only on the surface, kind of like a sunburn, and only lasts about 5 seconds at a time.

Hopefully I have got it all down now. Again, thank you for any ideas. I am not expecting a diagnosis here by any means, but maybe some thoughts regarding where to go from here.

 
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