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  • RLS is driving me crazy.. any help?

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    Old 01-18-2009, 11:28 PM   #1
    lbmartin17
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    Post RLS is driving me crazy.. any help?

    Okay. So, My boyfriend has moved from our bed to the couch because of my insane movements all night long. I wake up throughout the night. I stretch, I tense and flex my legs, point and then the opposite to try and tire them out. If it's really bad, I tuck my legs underneath me and press the rest of my body (torso) on top, so that they fall asleep and won't bug me anymore.. but then I fall asleep and wake up and have to unfold my legs and then that's just another mess that I can't stand. I don't want to take a drug that has side effects and will make me a different person, I'd like to find something natural.. but I'm at my wits end, it isn't any different when I exercise or stretch... I'm nearly at the end of my insurance b/c I started student teachng, so if I'm going to have to go to my doctor, I need to do it fast.. I'd just like to know something other than Requip or Magnesium... Any help is appreciated.

     
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    Old 01-19-2009, 12:39 PM   #2
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    Re: RLS is driving me crazy.. any help?

    I understand many folks are very leary of medications, but when you are suffering nightly with RLS, why would you resist a medication known to improve it?

    I have severe RLS, as it sounds like you have too. I have been taking requip for about 5 years now, and I would never go back to the nightime horrors of kicking and squirming all night. The benifits of this drug far outweighs the side effects, for which I have none.

     
    Old 01-19-2009, 02:43 PM   #3
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    Re: RLS is driving me crazy.. any help?

    Thanks for the reply - I think I'm going to make an appt. with my doctor .. try to get in this week..

     
    Old 01-19-2009, 02:57 PM   #4
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    Re: RLS is driving me crazy.. any help?

    I hope you have as positive experience with medications as I have. Getting your man back in bed will be nice, huh? I sincerely wish you the best.

     
    Old 01-29-2009, 12:19 PM   #5
    bethsheba
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    Re: RLS is driving me crazy.. any help?

    Are you currently taking meds for any thing? If so, I would encourage you to research possible side effects. My family doctor and my sleep specialists denied that my blood pressure medication would be causing restless leg...but when I switched meds, my rls went away (I was diagnosed with almost 500 movements in an 8 hour period while taking a commonly prescribed diuretic).

    If meds aren't the problem, evaluate your diet...electrolyte imbalances, dehydration, and nutritional deficiencies can cause rls symptoms. Getting an adequate amount of potassium, magnesium, and calcium in the foods you eat may take care of the problem.

    Docs recieve a lot of training but often lack basic education!

    Good luck!!

    Bethsheba

    Last edited by bethsheba; 01-29-2009 at 12:20 PM.

     
    Old 01-30-2009, 05:45 AM   #6
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    Re: RLS is driving me crazy.. any help?

    I want to spread the word! I suffered from RLS for 10 years! I was lucky to sleep 1/2 hour at a time before I would have to get up and walk around. I never slept a complete night in bed. I usually ended up in a chair. I also took requip at night to help with the pain which did help but did not relieve the RLS entirely. I recently had a friend who also suffered from RLS email me to tell me that she tried a gluten-free diet and it cured her. I was skeptical but figured I might as well try. After trying the gluten-free diet, I was pain free the first night! I now no longer take requip and have been pain free for almost a month! I am absolutely amazed! If I slip and have glutens, my legs will hurt that night. I have to say though that I have a friend who has celiac disease and RLS. The gluten-free diet helped the celiac disease but not the RLS. I don't know if the gluten-free diet will work for everyone but it sure is worth a try!

    Last edited by Ennis; 01-30-2009 at 05:53 AM.

     
    Old 06-03-2009, 05:19 AM   #7
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    Re: RLS is driving me crazy.. any help?

    I have severe-severe RLS...take 8-12 mg requip each day-night! It has augmented the problem and last week I tried to change to Mirapex. I literally didn't sleep, at all! Stayed up all night and then rls was so bad the next day, it even had me moving in the AM too! I have also had GI problems and recently had a small intestinal tumor removed, benign. My hemoglobin is still low, 9, and has been there for 3 months. Even when it is in the normal range, the rls is present, just a little more tolerable. I'm taking more iron supplements, but NOW I'm trying this gluten-free diet. The more I read, the more I "feel" like there is a correlation. I've spent so many hours in the emergency room and had so many transfusions, I'm sure many of you can relate! I've asked my doc, but he relies on me to report on any "new" findings. There are so few experts on rls, but I am finding more and more info on the net. I'm trying the gluten-free diet, starting right now! I am so excited, any relief at all will be welcomed! Say a prayer and cross your fingers! I need help!

     
    Old 06-07-2009, 04:31 PM   #8
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    Re: RLS is driving me crazy.. any help?

    The gluten free diet has helped me to be a normal person. I actually can stay in bed and sleep most nights. I will say that prayer for you. Good luck!

     
    Old 06-13-2009, 05:58 PM   #9
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    Re: RLS is driving me crazy.. any help?

    Get your iron levels (all of them--not just your CBC) checked. Low iron can cause RLS. That and dehydration (as another response pointed out). Drink two glasses of water and drink one everytime you wake up to pee.

    Most of the meds made me nuts, except vicodin for a while, but then that kept me awake. 500 mg. of calcium at bedtime can help. But drink lots of water and get your iron checked!!

    Wantok

     
    Old 06-21-2009, 06:51 PM   #10
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    Re: RLS is driving me crazy.. any help?

    Hi Beth....

    I am trying to research my husband's meds to see some cause with them and the rls. Right now I have found 2 of his meds related to RLS one of which is Benicar-hctz which also is a blood pressure med with a diuretic (water pill) included with it. He's been on the benicar longer than he has had the RLS but sometimes it could take a while to show up i'm sure. You didn't mention what pill you were taking.

    Out of curiousity since you've seen a sleep doctor, do you have a history of sleep apnea? I have seen a couple times in my reading that ppl with RLS should have a sleep study done.

    When do you have your symptoms? I see on the board so far that ppl mainly have them at nite when they go to bed. My husbands start about 4 pm and last until he takes his dose of Requip between 4:30 and 6pm. Give it one hour and it helps BUT he is totally knocked out and he is quite frustrated over it. I don't blame him. He is at the point he would just as soon have his legs amputated. I feel sooo bad for him so that is why I am doing my research.

    Thanks!
    Linda

     
    Old 06-22-2009, 01:00 AM   #11
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    Re: RLS is driving me crazy.. any help?

    Quote:
    Originally Posted by lbmartin17 View Post
    I don't want to take a drug that has side effects and will make me a different person, I'd like to find something natural.. but I'm at my wits end, it isn't any different when I exercise or stretch... I'm nearly at the end of my insurance b/c I started student teachng, so if I'm going to have to go to my doctor, I need to do it fast.. I'd just like to know something other than Requip or Magnesium... Any help is appreciated.
    Hi there,

    I had restless leg syndrome during the very last weeks of my second pregnancy. My iron levels were very low but I refused to take any iron supplements because they all gave me the runs. Also, I read that there is a good reason that women's iron levels go low during pregnancy (bacteria need iron to live on, amongst other things, so if your iron levels are low, invading bacteria will not find much "food" in your body, and will die - nature has such neat tricks, huh?).

    At any rate, the RLS was really annoying, but as soon as the pregnancy was over, it went away again. I can only conclude that my iron levels returned to normal after I was no longer carrying my child.

    And I would also conclude that low iron levels are related to RLS. Check out good sources of dietary iron and have your iron levels checked, as well as ferritin. Red meat and organ meats provide the best sources of easily absorbable iron, eggs, too, I believe. An online search will provide information on this. The iron found in plant foods is not very well absorbed by the body. Most people don't tolerate iron supplements very well, either. Meat is the best way to go!!!

    Slap a steak or two on the BBQ and that might help!!!

    aj

     
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