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  • My RLS is 100% cured after 10 years of suffering!

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    Old 01-30-2009, 09:44 AM   #1
    Ennis
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    My RLS is 100% cured after 10 years of suffering!

    I want to spread the word! I suffered from RLS for 10 years! I was lucky to sleep 1/2 hour at a time before I would have to get up and walk around. I never slept a complete night in bed. I usually ended up in a chair. I also took requip at night to help with the pain which did help but did not relieve the RLS entirely. I recently had a friend who also suffered from RLS email me to tell me that she tried a gluten-free diet and it cured her. I was skeptical but figured I might as well try. After trying the gluten-free diet, I was pain free the first night! I now no longer take requip and have been pain free for almost a month! I am absolutely amazed! If I slip and have glutens, my legs will hurt that night. I have to say though that I have a friend who has celiac disease and RLS. The gluten-free diet helped the celiac disease but not the RLS. I don't know if the gluten-free diet will work for everyone but it sure is worth a try!

     
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    Old 01-30-2009, 12:47 PM   #2
    bethsheba
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    Re: My RLS is 100% cured after 10 years of suffering!

    Ennis,

    Welcome to the boards! And thank you for sharing your experience...I'm just curious. When you mention a gluten free diet, what does your food consist of? Do you know if your magnesium intake has been increased? There is some info (and lots of personal testimonials) that suggest an adequate amount of magnesium will eliminate RLS. I just wonder if there is a correlation to your diet and to what we've learned without eating "gluten free".

    Bethsheba

     
    Old 01-31-2009, 04:22 PM   #3
    Ennis
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    Re: My RLS is 100% cured after 10 years of suffering!

    My diet is lacking bread, pasta, etc. I eat potatoes and rice in place. I don't think that I have had a great increase in magnesium. Besides, I did try the magnesium and it didn't seem to do anything for me. I heard that the magnesium to take was magnesium citrate. I took a calcium and mag supplement and had no relief. Honestly though, the very first day I was gluten free, I had no pain!

    Last edited by Ennis; 01-31-2009 at 05:07 PM.

     
    Old 01-31-2009, 09:01 PM   #4
    bethsheba
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    Re: My RLS is 100% cured after 10 years of suffering!

    Ennis,

    Thanks so much for responding...coincidentally, a friend of mine suspects she may have problems with gluten. I intend to share your experience with her.

    She is presently eating breads and pasta because from what I understand, she isn't to change her diet until her doctor can run the necessary tests.

    Thanks again!

    Bethsheba

     
    Old 02-01-2009, 12:50 AM   #5
    BOBERS47
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    Re: My RLS is 100% cured after 10 years of suffering!

    Quote:
    Originally Posted by ennis View Post
    i want to spread the word! I suffered from rls for 10 years! I was lucky to sleep 1/2 hour at a time before i would have to get up and walk around. I never slept a complete night in bed. I usually ended up in a chair. I also took requip at night to help with the pain which did help but did not relieve the rls entirely. I recently had a friend who also suffered from rls email me to tell me that she tried a gluten-free diet and it cured her. I was skeptical but figured i might as well try. After trying the gluten-free diet, i was pain free the first night! I now no longer take requip and have been pain free for almost a month! I am absolutely amazed! If i slip and have glutens, my legs will hurt that night. I have to say though that i have a friend who has celiac disease and rls. The gluten-free diet helped the celiac disease but not the rls. I don't know if the gluten-free diet will work for everyone but it sure is worth a try!
    hmmmmm, i never associated the pain in my legs with rls. I told my doc about the pain. Omg, its horindess. From my hips down to the tops of my ankles. Actually, when it starts....it starts in the top of my ankles, and works up and stops in my hips. But, i never have them both at the same time. Thats why i didnt associated the two. I know what its like to get a half hour here and there with rls. Then after several nites without sleep, you're hysterical. Its bad enough to lose sleep, just because for whatever reason, you cant sleep. But, to go thru rls on top of it...has got to be the worst expeirence on earth. But, now, when it comes on...after i go to bed..i get up and take one or two of my pain pills...and in a half hour its gone. And thats all i need to know. Any time i quit taking my pain meds...just because i dont like to take them. I pay for it in a week. My freaking legs are killing me...then the rls starts...my freaking back acts up...etc etc etc. In the summer when i swim....it does wonders for my back...so, there isnt any need to take them. I refuse to go to the y....to use their heated pool...so, i just wait for summer.

     
    Old 02-03-2009, 04:46 PM   #6
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    Re: My RLS is 100% cured after 10 years of suffering!

    Ennis,

    I have done some reading, not alot, but some and from what I can see people who are gluten intolerant or who have celiac disease may experience low iron levels...eating a gluten free diet would make it possible for the body to absorb/process the nutrients it needed whereas, prior to a gluten free diet that many not be the case.

    In other words, a gluten free diet may elevate the body's iron level. According to my sleep specialist, some studies suggest that some people with restless legs benefit from taking iron supplements...I suspect the same thing is happening when someone's RLS responds to a gluten free diet...the iron levels rise and it is actually the iron that is "curing" the RLS! It would also explain why iron supplementation does nothing in some cases (it did nothing for me, but discoing my diuretic did cure my RLS).

    Again, thanks so much for sharing...have talked to my friend today and told her what you shared with us.

    Bethsheba

     
    Old 02-03-2009, 04:51 PM   #7
    bethsheba
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    Re: My RLS is 100% cured after 10 years of suffering!

    Quote:
    Originally Posted by BOBERS47 View Post
    hmmmmm, i never associated the pain in my legs with rls.
    I have never experienced pain with my leg movements, and I do not ever remember reading descriptions/diagnoses of restless leg that contained the symptom of pain....have you actually been diagnosed by a medical doctor with RLS or is that what you think you may have?....based on your description of symptoms, I would venture you have something else, other than RLS, going on.

    Bethsheba

     
    Old 02-04-2009, 05:44 PM   #8
    Ennis
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    Re: My RLS is 100% cured after 10 years of suffering!

    I don't understand how you have never associated pain with rls. This is an insert from the first website that I looked at tonight just to read the symptoms of rls - Restless leg syndrome is a common cause of painful legs. The leg pain of restless leg syndrome typically eases with motion of the legs and becomes more noticeable at rest. Restless leg syndrome also features worsening of symptoms during the early evening or later at night. The characteristic nighttime worsening of symptoms in persons with restless legs syndrome frequency leads to insomnia.

    I would go to bed and hope to sleep for an hour. I would wake up with a very aggravating feeling in my legs like a buzzing kind of pain. I could not stay laying down. I had to get up and move. Most nights, the only way I could sleep would be curled up in a chair. I would then be lucky to sleep a 1/2 hour before I would wake up again with the aggravating - buzzing pain in my legs. Yes - I have been diagnosed. That is why my doctor prescribed requip for me which helped tremendously but did not completely take all of the aggravation away. I still had many nights where my legs bothered me, but not so severly.

    I tried the gluten free diet because my friend who also suffered from rls did the gluten free and it cured her. She emailed me to tell me and I thought it was worth a try. I have suffered so terribly with rls that I was willing to try anything and how easy it was! One day and my aggravation and pain was gone!!! Therefore, I cannot make any association with an increase in magnesium or iron from my gluten free diet because the relief was too instantaneous. It kind of makes sense to me because I always wondered why eventually, my leg aggravation - pain would just quit before daybreak. I usually would be able to go back to bed by 5AM and sleep solid for an hour before I had to get up for work. I have no clue why the gluten free diet worked - I just know that it did and it was easy to do and I am glad that I tried it.

    Last edited by Ennis; 02-04-2009 at 05:54 PM.

     
    Old 02-05-2009, 06:15 AM   #9
    bethsheba
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    Re: My RLS is 100% cured after 10 years of suffering!

    Quote:
    Originally Posted by Ennis View Post
    I don't understand how you have never associated pain with rls....
    Weird, huh? I was diagnosed with periodic limb movement syndrome (which often accompanies RLS) after a sleep study showed almost 500 movements a night (which I believe falls into the "severe" category)...this was only at night, and my daytime movements would begin as early as 1:00 pm (after lunch). I never experienced pain with the movements. The one website I found did say that pain did occur in some people with severe symptoms

    I don't know what website you looked at that said that pain is a common symptom of restless legs....but I pulled some up that said similar things. I don't recall coming across descriptions similar to those websites in my reading in the past but I usually limit my reading to medical research released by the government or to educational institutions doing medical research. I do recall that there were inconsistencies in the literature. Pain is not listed as one of the 4 criteria for diagnosing the condition---perhaps that why I thought that pain wasn't a symptom of RLS....

    Quote:
    I would go to bed and hope to sleep for an hour. I would wake up with a very aggravating feeling in my legs like a buzzing kind of pain. I could not stay laying down. I had to get up and move. Most nights, the only way I could sleep would be curled up in a chair. I would then be lucky to sleep a 1/2 hour before I would wake up again with the aggravating - buzzing pain in my legs.
    I cannot imagine how horrible that must have been for you..I am so very, very sorry you experienced those symptoms. The painful legs is horrible enough, but as we both know, the lack of sleep compounds the "pain" of our activities of daily living.


    Quote:
    One day and my aggravation and pain was gone!!! Therefore, I cannot make any association with an increase in magnesium or iron from my gluten free diet because the relief was too instantaneous..... I have no clue why the gluten free diet worked - I just know that it did and it was easy to do and I am glad that I tried it.
    If it were instantaneous, I would agree that it's extremely unlikely that the iron or magnesium were factors...but the important thing is you have found relief and you have shared that information with others who may benefit by it.

    I really, really appreciate your taking the time to explain how you came about this information, your responses (physical and mental) to the information....it may help many, many others.

    Bethsheba

    PS. I don't recall ever coming across the info about the gluten free diet in the medical literature but it is out there in what I would consider legitimate sites.

    Last edited by bethsheba; 02-20-2009 at 07:11 AM.

     
    Old 02-20-2009, 06:26 AM   #10
    NYJanice
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    Re: My RLS is 100% cured after 10 years of suffering!

    I have been gluten free (pretty much) for over a year now and I also am finding relief from RLS. I went off the GF regimen on my recent vacation (Couldn't resisit a real French croissant) and the RLS returned that same evening. I have no idea of the chemistry involved, but I am a true believer that RLS can be a side effect of gluten intolerance. There are so many benefits from going gluten free that it is worth a try. Nobody ever got sick from LACK of gluten.

     
    Old 02-22-2009, 05:01 PM   #11
    Ennis
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    Re: My RLS is 100% cured after 10 years of suffering!

    My idea is that I am having a type of allergic response to glutens that cause the RLS. Of course, I have nothing legitimate to back my idea but, I always used to wonder why my legs would just quite hurting by about 4 - 5AM. I used to go to bed and hope that I could stay in bed for at least an hour. Then I would have to get up, walk around some, and then curl up in a chair. I would only be able to sleep for 20 - 30 minutes at a time and then I would have to get up and walk to relieve that aggravating buzzy - pain kind of feeling. However, I would eventually awake and realize that my legs were not bothering me anymore and I could then go to bed and sleep for a couple of hours. I have been very good about not having any glutens in my diet but when I do, I also feel it in my legs that night. I do find though that I can eat a little amount of glutens in the morning and be alright in the night. It is Wierd but wonderful! I have been sleeping so good! What a difference it makes - I feel so much better!

    Last edited by Ennis; 02-22-2009 at 05:02 PM.

     
    Old 02-22-2009, 05:15 PM   #12
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    Re: My RLS is 100% cured after 10 years of suffering!

    Buzzy pain kind of feelings can be symptoms of Lyme Disease which can also present with low iron levels and with gluten intolerance (and many other things). If Lyme is causing the symptoms, it may explain why you're experiencing pain, which is not a criteria for RLS diagnsois.

    Last edited by bethsheba; 02-22-2009 at 05:15 PM.

     
    Old 02-23-2009, 07:37 PM   #13
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    Re: My RLS is 100% cured after 10 years of suffering!

    Hello, I am 31yrs old and have also suffered from RLS for many years. Dr.'s used to think I was crazy and most didn't know what it was.

    I am not sure if most of you know but taking an Iron pill a day cures RLS. I have joined an RLS Group that pionered the research for it and they have found that It is an Iron Defenciancy. It is not something you can really test your Iron levels for because it is the way Iron is distributed by your body. RLS is because a certain part of your brain is not getting the right amount of iron . It is basically a defiency of Iron.

     
    Old 03-02-2009, 09:01 PM   #14
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    Re: My RLS is 100% cured after 10 years of suffering!

    I also have RLS and while I'm happy that iron has cured you I have been taking iron daily for over 2 years and it only mildly helps me. Haven't been keeping up to date with new studies if anyone has any other ideas they would be helpful.

     
    Old 03-04-2009, 09:48 PM   #15
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    Re: My RLS is 100% cured after 10 years of suffering!

    Quote:
    Originally Posted by Ennis View Post
    I want to spread the word! I suffered from RLS for 10 years! I was lucky to sleep 1/2 hour at a time before I would have to get up and walk around. I never slept a complete night in bed. I usually ended up in a chair. I also took requip at night to help with the pain which did help but did not relieve the RLS entirely. I recently had a friend who also suffered from RLS email me to tell me that she tried a gluten-free diet and it cured her. I was skeptical but figured I might as well try. After trying the gluten-free diet, I was pain free the first night! I now no longer take requip and have been pain free for almost a month! I am absolutely amazed! If I slip and have glutens, my legs will hurt that night. I have to say though that I have a friend who has celiac disease and RLS. The gluten-free diet helped the celiac disease but not the RLS. I don't know if the gluten-free diet will work for everyone but it sure is worth a try!
    The only thing that I have found that works for RLS is Vit E 400.
    It works great!!!!

     
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