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Old 10-19-2009, 05:37 AM   #1
Join Date: Oct 2009
Location: Botswana
Posts: 2
fredb HB User

Hi. I have had severe Rls for nearly 40yrs. The closest gotten to help is using Sinemet and more recently, Pexola. Neither really help, so ive used Valium with them. Recently it has been so bad i have to tie my legs to the bed, as i jerk violently every few seconds. Last night i took 4 valiums, to no avail. I have not slept now for over 48hrs. I am desperate, as it also gets into my wrists and elbows. Any suggestions, as over this period i have tried all bar chopping my legs off.

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Old 10-19-2009, 10:39 AM   #2
Senior Member
Join Date: Jun 2006
Posts: 269
cerajoan HB Usercerajoan HB User
Re: Rls-help

My heart goes out to you. I read that sometimes low doses of opiates work for some people. Are you seeing a neurologist or other specialist? A regular doctor may not know enough to be helpful.

Old 10-20-2009, 12:50 AM   #3
Join Date: Oct 2009
Location: Botswana
Posts: 2
fredb HB User
Re: Rls-help

Tks for replying. Yes i have seen a neurologist. I have even been hooked up to one of those machines, while my legs were kicking. It showed nothing. We live in hope.

Old 10-26-2009, 07:25 PM   #4
Junior Member
Join Date: Jun 2009
Location: PA, US
Posts: 36
Morwic HB User
Re: Rls-help

I've had this problem from time to time myself, as does my husband on a more frequent basis. While neither of us have had testing done - I recently read about a woman who had her ferritin levels checked - which I think has to do with iron levels & possibly anemia. She says doctors don't often run tests to determine this as a possible cause but you could do some research & see if it might make sense for you.

I know I do better by taking a powdered magnesium supplement at night. I get it at my local health food store & think it works better than the capsule or tablet forms.

I hope you find a solution that works well for you & share it with the rest of us!

Last edited by Morwic; 10-26-2009 at 07:38 PM. Reason: spelling

Old 11-16-2009, 03:23 PM   #5
Join Date: Jan 2004
Posts: 8
pbahm HB User
Re: Rls-help

Except for the length of time, those are the same symptoms I had. If you are taking iron pills, that may not be enough. I started introvenus iron from a hemotologist and my symptoms which were severe, went away with the second treatment. My iron was so low, that I was getting introvenous iron twice a week. You might want to get a complete blood test done.

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