hemochromatosis (iron overload) and RLS

javelina

I've just discovered that I appear to have iron overload too. I'm waiting for the results of my genetic testing now. Fortunately because I requested my doc test my ferritin for my hypothyroidism I am catching it early in the game (ferritin 379, TS 52%). I do have symptoms though and I suspect it has mainly affected my thyroid and adrenals or possibly my pituitary.
I used to have RLS for years but I find that magnesium citrate to bowel tolerance seems to help it greatly. Maybe it will help you too.
I've also heard over and over again about the home remedy of placing a bar of soap under the bottom sheet in your bed to cure RLS and cramps. I know it sounds goofy but the places I've read this are not all that crazy (People's Pharmacy for one). I also know it works for my aunt. No idea why but it may be worth a try.

cya2310

Richard, I have hemochromatosis as well, diagnosed 30 years ago (my brother and I are the only ones in the family with it). I used to get RLS on and off, but in the past week it has been relentless, unable to sleep two nights in a row. When I was first diagnosed (30 yrs ago) I was getting phlebotomies approx 2-3 times per week and at that time they also gave me a shot of vitamin B-12 after every phelbotomy. A few months ago my iron levels were sky high again, and now getting phelbotomies once a week for 3 months in a row so far....this new hemotologist has not discussed or given my B-12 shots. I did ask him about it because I am so tired and achy.....yesterday I received a call from his office stating dr. wants me to have shots of B-12. I am hoping the shots will help with my RLS.......if not, I don't know what to do, it's killing me.

bmor2u

As far as you know, is the DNA test the only defiitive test for carriers or those postive for hemochromatosis?

Seattlegirl03

Wow! I have been on a road to discovery with my mother's health issues and now my fathers. First discovered Lyme disease (borellia bacteria infection) and now high tie to hemochromotosis. Woke up dreaming and thinking about it (it never leaves me). I was just thinking this morning, which came first, the chicken or the egg???

they both go hand in hand. The bacteria and parasites thrive on the iron/metals. Probably does not improve with blood letting, becuase they hide at the cellular level and build a "coat of armour", fibren and mucus. You need a lyme literate doctor in my opinion, who will treat the metals and bacteria/parasites.