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new study suggests cause

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Old 07-01-2003, 08:46 PM   #1
Join Date: Jun 2003
Posts: 4
jewells107 HB User
Post new study suggests cause

I have had RLS all my life and it runs in my family as well. I am 43. I have always been able to find some relief by taking aspirin. Only recently did I discover that other people have it too, but I haven't noticed any posts about aspirin helping.
More background: I am also very sensitive to noises, have terrible short-term memory, I'm on my second bout with adhesive capsulitis (frozen shoulder). I had it once before but on the other shoulder. Very bad PMS sufferer. Also have more energy than most anybody I know. I am always skinny. I am tall. I have never broken a bone either. Just curious if there is a typical type of person who gets this.

I am on Vicodin, but it doesn't help the RLS which I can't get relief from because I can't take aspirin which conficts with the Relafin (sp?) I take for my shoulder problem. Does alcohol help?

[This message has been edited by moderator2 (edited 08-24-2003).]

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Old 07-02-2003, 01:05 PM   #2
Join Date: Mar 2002
Location: Barberton, Ohio USA
Posts: 89
jitterbug HB User


First of all, Alcohol will probably make your situation worse.
Secondly, I don't know if there is a typical profile for people with RLS. I've often wondered that as well. Personally I feel that RLS somehow gets triggered by other pains in the body, such as your shoulder pain. I have knee problems and possibly endometriosis, so I'm in a lot of pain. Since that started, I've developed RLS. I also wonder if there is some association with Thyroid disease or blood sugar irregularities. I've noticed that during the day if I get sleepy my legs will start jumping, so it really prevents me from taking much of a nap. You might try Iron supplements (Ferrous Sulfate once a day), Folic Acid (1/day), also Evening Primrose Oil which helps relax muscles.
Drug companies REALLY REALLY need to find a cure for this because it is about as annoying as a bladder infection.
Good luck.

Old 07-03-2003, 01:56 AM   #3
Join Date: Jul 2003
Location: USA
Posts: 4
alientmorphette HB User

Thanks for sharing the article. It is promising compared to the help I get from my doctor which so far is none. Hopefully they will have this thing wired within our lifetime. I am 27 at this point. The comment about asprin was interesting becuase I take asprin everday and started doing so a few years ago due to constant headaches. Now that you mention it, my RLS is much less severe since that time, but I still get it bad every now and then. I have never considere that asprin could be helping. Thanks! I read somewhere that Valium and other benzodiazapenes (Xanex, Restoril,Roofies etc.) will suppress the discomfort and alleviate the twitching. I've tried Valium and Restoril independently and they work until the meds wear off. Then you are worse off then if you had not taken the drugs at all. Every person on one side of my family has RLS and we have two known family remedies : put your feet in a bathtub with cold water and leave them there until you can hardly stand it. The colder, the better. The other is to run in place furiously for a few minutes. I find the second method works best when holding a heavy object in each hand such as barbells or a big text book to increase the impact of the exercise. This is no fun when you are dead tired and obviously its hard to explain to anyone who catches you doing it. Anyway, good luck!

Old 08-25-2003, 02:29 PM   #4
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Join Date: Jun 2003
Location: California
Posts: 248
shell1 HB User

I have severe restless legs, and twice when I went to give blood they said my blood did not have enough iron for them to take it, but that it was sufficent for my body. Every time my doctor checks my iron it is fine. I think there might be something to this, not being able to get iron to your brain or recptors.

Old 08-25-2003, 04:43 PM   #5
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drs HB Userdrs HB Userdrs HB Userdrs HB User

Ferrous sulfate iron is not a good one to take.Many side affects associated with that type. Get the kind called Ferrous Gluconate, it is a much better quality and absorbs better.

Old 08-25-2003, 05:46 PM   #6
Join Date: Aug 2003
Location: Los Angeles, CA
Posts: 1,410
cookiepls HB User


I have RLS and I visited a lot of websites looking for an answer (and relief). I now take iron supplements (Ferrous sulfate) only when I need it which is very rarely. I started out having to take it every night just before going to bed or I wouldn't be able to sleep. My RLS has calmed down greatly. For those with the problem of iron absorbtion, it can't hurt to give it a try. Just remember that iron can be toxic. I started with 16 mg which worked for a while but eventually had to up it to 65mg. Now, like I said, I only need it occasionally.
Won't work for everyone.

Old 09-14-2003, 09:54 PM   #7
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Join Date: May 2003
Location: San Diego, Ca. USA
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BrianKosh HB User

just want to point out, there has been a couple of issues with the body that cause directly or indirectly, however that should be put, that causes or makes RLS worse, there are three minerals that replacing them, can help allviate the issue... But i have ulcerative colitis, and the three minerals, if taken as a supplement or within the right foods would leave me deathly ill, if not, it would put me in the ER. So what works for one doesn't work for all.

Old 09-15-2003, 05:12 AM   #8
Join Date: Jan 2001
Posts: 463
plymouth HB User

Too much iron can cause heart trouble and other health problems. Don't take iron supplements unless you have a blood test to show low iron levels. There is a study out just last week associating low iron in the brain with rls but they caution very strongly against iron supplements unless you have a blood test to prove low iron levels.

Old 09-19-2003, 03:58 AM   #9
Join Date: Sep 2003
Location: Rocklin, CA, USA
Posts: 7
stacker HB User

Interesting = the posts about iron. I take Permax. It helps as long as I take it. I have severe RLS. The only efective (pill) treatment for me has been to take my permax every night before bed. This was fine when I had insurance. Now that I lost my job thr permax is $11 per pill - I was taking 1.5 per night. I say was because I can't stand the thought that I have to take this stuff for ever.

The beginning of this thread mentioned a possible typical rls profile. I have more energy that I know what to do with. If I don't take my medicine it's common that I will go 2 days without sleep. I have never broken a bone either. I also have psoriasis and am an artist.

Old 09-19-2003, 06:46 PM   #10
Join Date: Sep 2003
Location: Rocklin, CA, USA
Posts: 7
stacker HB User


I haven't looked into an on-line pharmacy or driven to Canada for that matter. Thanks for the idea - I'll look into it. Because it is so expensive I've experimented with cutting my doses into halves and quarters. It seems that I can take .5 mg and be somewhat stable (this in comparison with taking 1.5 at times when I had insurance).

I like to work with found objects and acrylic paints. Sometimes I incorporate them together. The operative word there is "sometimes" - I don't give myself enough time to be consistent with my art.

Now to tie the two together. You'd think that if I was getting up every night I would have plenty of time to pursue my hobbies. But this is usually not the case. When RLS gets my up I am not in a peaceful, productive frame of mind. At least not the frame of mind that can jump into something creative. I'm more in the frame of mind to do yard work or rearrange the garage. Of course, these are things that wouldn't make my family very happy. So I do quiet things that distract my mind/attention that also allow my legs to twitch to their heart's content - internet games.

I don't know if others go through the same thing that I do but once I do something to initially distract myself for a while I am then more apt to mentally settle down and apply my energy more creatively or purposefully. Sometimes this initial distraction takes the form of push-ups and knee bends.

Old 11-16-2003, 02:36 AM   #11
Join Date: Nov 2003
Location: Portland, Or
Posts: 3
clhilsabeck HB User

I would be very interested in talking with you. I am also from Pdx,Or. I have had my RLS incl. the arm for a few years now and am finally trying to figure things out. Its nice to see a site that has this info in it.
[removed] Talk to you later


Last edited by moderator2; 11-16-2003 at 06:06 AM. Reason: Do not post contact information. This board is for anonymous use only.

Old 11-19-2003, 08:32 AM   #12
Join Date: Oct 2003
Location: Milwaukee, WI USA
Posts: 6
Lshcat HB User
Regarding the sufferer profile, I am not a high energy person, and average weight. I have had intermittant low iron readings, but taking high iron during anemia (pregnancy) did not help me too much. Tylenol #3 works and that is the only thing I've found. Maybe there is something to the aspirin, I will try that and try to cut the codeine from my system! As for the alcohol question, I want to add, RED WINE at night had helped me a lot! White doesn't do it, but a couple glasses of red after dinner seems to help me not have to take anything at night. FYI. PLEASE encourage companies to find a CURE!! Someone start a site?

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