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  • Sarcoidosis

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    Old 09-30-2015, 06:01 AM   #1
    hotel dieu
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    Sarcoidosis

    I urgently need help- my 50yr. old daughter has sarcoidosis and has a multitude of symptoms- rashes, joint problems and masses everywhere.
    She cannot take prednisone (steroids in general).
    Any suggestions would be great!

     
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    Old 09-30-2015, 06:51 AM   #2
    ladybud
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    Re: Sarcoidosis

    I'm sorry your daughter is having such problems and unable to tolerate the main treatment choice for it. I am wondering why she cannot take steroids. Sometimes there are ways to work around the side effects through low dosing, alternate day dosing, etc. Sarcoidosis is usually a self-limited disease, ie, it goes away by itself, usually within 2 years. I would suggest, since it is fairly uncommon, to try to get her established as a patient at a large University (academic setting clinic), where they tend to be more up on unusual conditions. Sarcoidosis falls mainly in the rheumatology area, but her Drs would depend somewhat on where symptoms manifest. The rheum would treat the joint pain, dermatology the skin rashes, and a pulmonologist if she has any lung manifestations. I hope she can get successful treatment and goes into remission quickly.

     
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    Old 10-01-2015, 05:32 AM   #3
    hotel dieu
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    Re: Sarcoidosis

    Thanks lady bug- appreciate the info.

     
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