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Anymany 06-02-2016 04:17 AM

New to group
Hoping to get more info. 8 months ago had 2 orbital masses biopsied as sarcoid. Prednisone melted them but didn't realize I still had sarcoid elsewhere till developed tinnitus 6 weeks ago. Have nightly vertigo, mild hearing loss, foot masses with numbness and pain requiring orthotics. Pericardial effusion. Tinnitus bothers me most. Back on prednisone 60 mg decreased pitch of noise but still there. Just started azathioprine. What can I expect for the course of this disease? Also bone marrow lit up on PET. Negative brain MRI. I believe I've had this disease at least 3 years before the orbital masses showed up as the tumors in my feet were growing for that long. Thank you!

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