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Old 10-07-2008, 07:30 PM   #1
Join Date: Oct 2008
Location: Shreve, OH
Posts: 1
sarcoidosis75 HB User

I am a 33 year old male and have been diagnosed with Neuroscardoidosis. Does anyone out there have any experience with this disease?

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Old 10-15-2008, 08:00 AM   #2
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Join Date: Oct 2002
Location: U.S.A.
Posts: 700
suej1946 HB User
Re: Sarcoidosis

I am a 62 yr old female that also has just been diagnoised. I have been sick for about 4 months and finally ended up in the hospital with a critical calcium level of 16. Dont know where it came from but it knocked me for a loop. I was in hosp for 9 days. keep in touch as I dont know that much about it either.

Old 01-06-2009, 06:47 AM   #3
Join Date: Jan 2009
Location: North Carolina
Posts: 1
majones1716 HB User
Re: Sarcoidosis

I too have Sarcoidosis, I was diagnosed in 1991. I was running a low grade fever in the evenings about 101. My Ankles swelled all the way up to my knees. My Doctor did a (specific) blood test and found I had Lymes. I was put in the hospital for the swelling and while I was in there they did a routine Chest X-ray and discovered enlarged lymph nodes in my lungs. After an broncoscapy they diagnosed me with Sarcoid. I was never put on any treatment and haven't seen a Doctor for it since. The only real symptom I have is shortness of breath.
They told me that my symptoms of Lyme could be the Sarcoid as well. But I have never had a reoccurance of them. I was 28 when I was diagnosed and now am 46. I am concerned now because I have alot of joint pain in my legs and hips as well as all the rest of my joints . At the time I was told that Sarcoid would cause this as well as the Lyme. When I get up in the morning I hoble for my first few step from stiff ankles. I can't do alot of cleaning or manual labor. My body will tell me when to stop and if I don't my back will go into spasm and I will be incapasitated for a week. Right now I am not under a Doctors care but I am going to get an appointment as soon as possible. Although the only treatment they have is steroids and I don't want to take them. We'll see. I am concerned that by not seeing a Doctor regularly for this I may have mande my situation worse.

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