It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Sarcoidosis Message Board

Newly diagnosed w/Sarcoidosis, Disability

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 05-21-2011, 11:30 AM   #1
Join Date: Feb 2011
Location: Austin, MN
Posts: 7
rdahn HB User
Newly diagnosed w/Sarcoidosis, Disability

I have just been diagnosed with Sarcoidosis with Idiopathic Fibrosing Mediastinitis. Since my CT scan in 2008 my new diagnosis was detected by a new CT scan and shows that the disease has progressed to my spleen (scaring due to granulomas) and they also detected probably renal cysts. I will be seen again in 6 months with another CT to see if it has progressed any futher. No treatment as of now. I have been on oxygen due my shortness of breath and the collapse of my left upper lobe in my left lung and partial collapse in my right lung. Other disagnosis: joint pain (arthritis), GERD, COPD. I don't know what the future brings for me all I know is that there is no cure and limited treatments available. If anyone else has any information or comments on this disease, all would be appreciated.

The following user gives a hug of support to rdahn:
diane1940 (05-24-2011)
Sponsors Lightbulb
Old 05-24-2011, 04:34 PM   #2
Join Date: Jan 2009
Location: everett wa
Posts: 2
diane1940 HB User
Smile Re: Newly diagnosed w/Sarcoidosis, Disability

Hi Deae, I don't know alot about this desease but my daughter was diagnosed with it 5 years ago, It got pretty bad with different symtoms but the good news is that although there is no cure, it does wax and wean, Get s better and worse at different times. She has b een in remission and is very lucky . I just want you to know that there is a chance it can go into remission,Too bad they only grant money to study some deseases and not others,. My thought s are with you, I am new to this board but I can tell there is alot of moral support here'

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Hi, I'm new to sarcoidosis. What now? pink blobs Sarcoidosis 8 07-21-2011 07:15 AM
Possible Sarcoidosis MountainReader Sarcoidosis 7 01-03-2011 06:31 AM
could this be sarcoidosis? rmc20021 Sarcoidosis 2 10-16-2010 09:24 PM
If I had Sarcoidosis would I notice it? (question regarding Vitamin D3 intake) xklaus Sarcoidosis 2 03-29-2010 07:10 AM
Sarcoidosis AnnieA Sarcoidosis 7 03-12-2008 07:08 PM
Stage 2 pulmonary sarcoidosis natedory Sarcoidosis 3 12-18-2007 11:40 AM
tests for sarcoidosis??? eblguim Sarcoidosis 11 09-23-2007 09:21 AM
sarcoidosis snowflake11 Sarcoidosis 37 06-17-2007 05:45 PM
SARCOIDOSIS/Am I dying?? LaurieCrochets Sarcoidosis 37 11-21-2006 04:19 PM
Sarcoidosis or MS? Lesionaire Sarcoidosis 2 08-13-2006 10:26 PM

fibrosing mediastinitis, sarcoidosis

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:53 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!