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    Old 08-01-2011, 04:37 PM   #1
    vtcrb
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    New to the board. I have a question for you all.

    I plan on keeping this short and to the point. Dont want to wrote a novel. Haha. I was diagnosed in 2000 with Sarcoid in my Lungs after months of tests, losing 35 lbs and being misdiagnosed with Cancer. I was then diagnosed in 2005 with Sarcoid in my Liver, plus Fatty Liver Disease. That is just brief summary, if anyone is interested in full story let me know.

    My question relates to my recent pain in my lower to mid back on my right side. My Liver is enlarged and causes pain, but the pain in lower to mid back has occured within last 3 months. Just wondering if anyone else has experienced anything similar. Thanks in advance for any feedback.

     
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    Old 06-22-2014, 04:03 PM   #2
    sh85
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    Re: New to the board. I have a question or you all.

    i just found out i have non caseating epithelioid granulomas in my liver. going for a chest x-ray and blood work tommorrow

     
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    Old 06-25-2014, 01:50 PM   #3
    sh85
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    Re: New to the board. I have a question or you all.

    I also have the fatty liver but no enlargement. however, my spleen is mildly to moderately enlarged. chest xray came back negative and totally clear. how did you get diagnosed with it in your liver?

     
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    Old 09-25-2014, 08:19 PM   #4
    vtcrb
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    Re: New to the board. I have a question or you all.

    I was Diagnosed after Liver Biopsy. Now i am at Stage 2 scarring from the Fatty Liver disease, which is hard to understand, as I TRY to stay active. Also just went thru battle with Knots popping up on Arms and Legs caused by Sarcoidosis(confirmed thru Biopsy). Now I am battling CHRONIC joint pain, had some tests done and just waiting for results to see if it is Sarcoid as well. It is amazing the LACK of Awareness of a Disease that can cause such chaos in a person's life.

    Wishing you a Speedy recovery.

     
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    Old 03-23-2015, 03:14 PM   #5
    Benard C
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    Re: New to the board. I have a question for you all.

    I was diagnosed w/ sarcoid in my lungs in 2009 After going in for a C.T. for kidney stones.I had a midlobe wedge biopsy done on my right lung.I was put on methotrexate & prednisone.I had a lot of pressure in my mid to upper back on the right side which lasted for some time & caused me to have shortness of breath & labored breathing.Since then anytime I have a flare up I get the pressure & shortness of breath as before.I'm told to increase my prednisone until my flare up passes which could be weeks or months.
    I tried Embrel, & Humera for some time, but it didn't seem to help.The only thing that helped was the methotrexate at the right dosage with the prednisone.
    In 2014 I had my spleen removed after they found sarcoid while doing a C.T. for kidney stones.
    I hope this helps.Good luck & take care.

    Last edited by Benard C; 03-23-2015 at 03:22 PM.

     
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    Old 04-05-2015, 03:56 PM   #6
    MaryPoppins3
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    Re: New to the board. I have a question for you all.

    I have had pain similar to this, but it's hard to say if it's in the same location to which you are referring.

    In my case, it was gallbladder/gallstone issues. I do have sarcoid; and a liver biopsy several years ago confirmed some liver involvement). However, I don't know that this was at all related to sarcoid.

    The pain was on the lower right (towards the center right), basically opposite the stomach. However, in the worst times, it radiated up and down my back, mostly on the right. They were awful until the stones passed (like literally felt like I would die).

     
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