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    Old 09-29-2004, 02:10 PM   #1
    nimzo
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    This is for anyone w/ schizophrenia...

    Hi! I am a 29 year old male diagnosed with paranoid schizophrenia. I feel the need to share some of my thoughts regarding my diagnosis. First off, I am probably not the only one who wonders if they were diagnosed correctly. I was diagnosed 6 years ago at a stress care unit in our local hospital. I talked to 3 doctors for about 10 minutes a piece, I was having paranoid delusions yes, but there were other factors. One of those factors was the fact that I had recently stopped using marijuana and amphetamines. There is a diagnosis called "drug induced psychosis", and "brief psychotic disorder" which also involve paranoid delusions but they insisted that I was definitely paranoid schizophrenic. After they diagnosed me, they put me on an antipsychotic called "Zyprexa", roughly 20 milligrams. When I refused to take it, they admonished me and said they would do a forced injection! First of all, everyone should know, as I know now, that this violates your patient rights. They must prove that you are a danger to yourself or others in order to force meds. I didn't know this however, so I agreed to take the meds, knowing nothing about them. This is my first point, all people diagnosed with a mental illness should educate themnselves about the drugs they are taking, patient rights, etc. I have since been hospitalized 5 times and have learned to become an active participant in my rehabilitation. I let the doctor know what i think regarding medicines and treatment. If you don't take a stand, the mental health industry tends to ignore you and take advantage of your illness. Many times when I have been hospitalized, noone talks to me as if I'm an intelligent human being, but more like an unruly adolescent. You see, many times they would prescribe a medicine and I wouldn't take it, due to the fact that noone took the time to explain why I had to take it or listen to me when I tried to explain that the side effects outweighed the good that the medicine was intended to do. I am now on an injectable form of medication and have been outpatient committed , meaning that if I don't comply they can take me to court and have me hospitalized. At first, I didn't like the idea of injections, but the medicine is better (Risperidol) and I don't have to remember to take it. The first medicine they tried was Haldol, and anyone who has been on this knows that it isn't a pleasant drug. Haldol wracked my whole body with pain. It also did nothing foir my mental state. I complained to the doctor and he actually listened, he prescribed the Risperidol which is much better. I still don't put much faith in these medications, but at least the one I'm on causes no side effects. So remember, You must take a stand to be heard! I am fairly lucky , I've never heard voices or had hallucinations unless I'm in a psychotic state. Many of you deal with these symptoms daily. The world doesn't understand how tough you've got it , or how tough you are! But don't be sheep , take the lead in your treatment... Respect your doctors, but also make them respect you as a human being. Just wanted to share some of my experiences, thanks for reading.
    Sincerely,
    Nimzo

     
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    Old 10-03-2004, 07:49 AM   #2
    lalee
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    Re: This is for anyone w/ schizophrenia...

    I totally agree with you.

    Last edited by lalee; 11-02-2006 at 03:12 PM.

     
    Old 12-06-2004, 08:37 AM   #3
    2BNormal
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    Re: This is for anyone w/ schizophrenia...

    Wow, this sounds like my son's story. He was diagnosed 4 1/2 yrs ago, self induced by using drugs like way too much Ecstasy, but he admitted he had different feelings and thought the drugs would help, later learned they didn't. We were not sure what he had until he was diagnosed with Schiz/Paranoia, but all of the same feelings you have. I go to the doctors with him and to the hospital if he is admitted so I can help convey the symtoms to the hospital people or to his doctor, otherwise they give him more meds and they treat him as if the illness is talking. He is using injection treatments and it seem to be working after 4 1/2 yrs of zombie like son, and he was on Haldol and hated it. He would yell and threaten them and had to go the hospital for the shot. He stopped taking all meds and had a relaped. he's been on all of them including "make him feel good" meds to cope with the harsh side effects.
    He's been in several hospitals to get him to conform to his meds. He's 23 and these events included myself of his mother and its very stressing. I had to have a forced action to get him to admit himself to the hospital with cops and ambulence. This worked in my favor, he was arrested for distrubance and the cops had him on record as a schiz and treated him nice at the time of arrest. They even called me. Otherwise, they could have used force!
    He is now compliant and on the injections. I'm curious how long have you been on the infection, what dosage level, and what effects are you feeling?

    You are right, if you don't feel right SPEAK UP and BE HEARD. If it wasn't for my son rebelling and finally hearing him, the problems he was complaining about was med side effects and not the illness which was being treated but he was still suffering the side effects, and he wanted some controll over his body and mind.

    Its still a struggle sometimes but I feel we're getting there after 4 1/2 yrs!

    Listen to other people having these symtoms and use them as insight to get better or keep your doctor informed.

     
    Old 12-10-2004, 04:13 AM   #4
    MyViolin
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    Re: This is for anyone w/ schizophrenia...

    Any doctor who prescribes Zyprexa to any patient should have his license pulled! I was on that for 2 years at a dosage of 30mg a day. While it was true that I stopped hallucinating, I started sleeping all day and gained over 80lbs. What's ironic is that I was hospitalized many times during the period when I WAS on my meds. But since I stopped taking them I've not once been in the hospital. I'm by no means advocating that people shouldn't be taking their meds, but just that they should have an active role in their treatment, and that a doctor is not the final authority when it comes to treatment...the PATIENT is.

    PS- nimzo, I'm schitzoaffective. We should form a club like that old cartoon with all the super heroes in it Drastic mood changes is kinda like the Incredible Hulk and paranoia is pretty close to having ESP or telepathy

     
    Old 12-10-2004, 07:30 AM   #5
    gloomy sunshine
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    Re: This is for anyone w/ schizophrenia...

    I am so glad that someone actually took the time to post this because for a minute..I felt we (my family) were the only ones going through these problems. I can honestly say that I have absolutely no respect for the mental health system and the mental health physicians. Everytime my brother is hospitalized they experiment with him. its never the same drugs. They use him like a lab rat. When the side effects start kicking in, instead of giving him cogentin or benadryl..they say he's "restless and uncooperative" and hold him down against his will to give him haldol..which just makes his side effects worse. They completely shut the family out of the whole process. the Doctors won't have anything to do with us..which is so wrong because were the ones that have to deal with him when he gets out. They lie in these "hearings" and make up stories. they even treat the family like their crazy so I can only imagine what goes on behind those locked doors. When you try to report the injustice...it falls on deaf ears. everyone bows down to these Doctors as if they were God and they themselves think they are God as well. Something needs to be done. The patients and the family have rights and they are being violated. I am very angry at the whole world and at God for allowing such injustice to continue..

     
    Old 12-10-2004, 09:48 AM   #6
    2BNormal
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    Re: This is for anyone w/ schizophrenia...

    You gotta have faith and patience! This illness takes consistant care and support, not to mention the other areas of this illness like disability income, changing doctors, changing meds, insurance and food stamp subsidies, taxi services for non-drivers, etc...
    As for the side effects, thats a whole issue in itself! Cogentin or benadryl are crap and don't do anything but blurr the side effects and create other side effects! My son flat out stopped using them and told the Doc not to prescribe the junk. There is no side effect medicene for Haldol! He hated it! They told him "you should not have any harsh side effects with Haldol and should only feel a little discomfort for a couple of hours or so..." RIGHT! They thought he was psychotic when he told them--like hell you say and he ended up going to the ER for temporary relief with a shot of cortizone or tylenol with codine to ease the side effects. Like I said earlier, he eventually rebelled and quit taking it and had a relapse so they could try something different. Haldol did stop his positive symtoms and work on some negetive symtoms, and worked good, but the dang side effects was just to much to bare for him to stay on it.
    The doctors at different hospitals try different meds and each have their own way of dealing with the illness, which is different from his normal doctor.
    He always tells me the stories at the hospital, once he told me they gave a different med that made him pass out and made him a zombie for 2 days. When he said they gave him the wrong persons med, they said sure and walked away and wanted raise his dosage.
    Its a good idea to talk to the staff...
    You're right tho, most treat mental illness with dark age techniques and disciplines.
    KEEP THE RESPONSES COMING.

     
    Old 12-12-2004, 08:00 AM   #7
    eliseb
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    Re: This is for anyone w/ schizophrenia...

    I think this is a wonderful post you have written here. I had just posted a reply to another situation on this board describing the same thing you said about the Halodol? It is an awful drug and nobody can convince me that it does well without the side effect medicagtion. ADd a little lack of sleep and you are headed for a psychotic break and danger to everyobdy and blamed for everything? I have a freind who went to jail and charged with a FELONY? Who was on this drug , could not sleep because of pain? He was much worse off WITH the drug. He had medicaid for insureanc and Risperidol is more expensive. HIS rights were violated as well? In ANCHORAGE ALASKA his doctor ignored his needs and good education and effort and medication change he got in Juno Alaska? Shot him up wiht some Halodol despite his request for Risperidol. He was trying to work and stay on his meds? I hope anyone who needs help with their doctor and med changes and patient rights reads these post. His felony for destruction of property was dropped . He never had a criminal record and normally a very sweet and humble person. ANd he is working now and doing well . It was a very sad experience. ANd frightening and could have been prevented. DO not let a doctor just shoot you up with just anything? There are laws and newer medications.

     
    Old 12-12-2004, 08:05 AM   #8
    eliseb
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    Re: This is for anyone w/ schizophrenia...

    Quote:
    Originally Posted by gloomy sunshine
    I can honestly say that I have absolutely no respect for the mental health system and the mental health physicians. Everytime my brother is hospitalized they experiment with him. its never the same drugs. They use him like a lab rat. When the side effects start kicking in, instead of giving him cogentin or benadryl..they say he's "restless and uncooperative" and hold him down against his will to give him haldol..which just makes his side effects worse. They completely shut the family out of the whole process. the Doctors won't have anything to do with us..which is so wrong because were the ones that have to deal with him when he gets out. They lie in these "hearings" and make up stories. they even treat the family like their crazy so I can only imagine what goes on behind those locked doors. When you try to report the injustice...it falls on deaf ears. everyone bows down to these Doctors as if they were God and they themselves think they are God as well. Something needs to be done. The patients and the family have rights and they are being violated. I am very angry at the whole world and at God for allowing such injustice to continue..

    Don't be angry at God???? IT is so good that these post have come up and I am a very spiritual person and helping soembody with this problem now? Please call NAMI with this? aNd send them this thread? National alliance for Mentally Ill? THey know about all of this and the disorders and the misunderstandings in the courts? ( You wouldn't happen to be Alaska would you?) I do not have this disorder but my friend was sent to jail secluded and could not see or talk to anybody for weeks? ANd it was just a HALDOL problem? I kept telling them this and they would not let me talk to him and the Haldol was making him more aggitated and they wer all claiming he was not stable? He was angry at being treated like an animal and strung out on Haldol? He was calmer than I was trhought whole thing? Use to it? I am an LPN and other LPN's agree with me. But it is awful how these popele get accused of things ? Some of it has to do with money and state funds. ANd they DO LIE. YOu need to find and ADVOCATE for him. ANd their IS a GOD above and he DOES care. You sound JUST LIKE ME!?? At one point in time I would not show up to court SO TICKED? ANd I had ABSOLUTELY NO RESPECT FOR THE MENTAL HEALTH SYSTEM??? My words exactly. I was disgusted , and feel the same way about our family court here. RIDICULOUS. NAmIE helps facilated, support and educate those with mental health issues, INCLUDING COURT PERSONEL!. I am so glad you posted this. I dont think there is anyitng more violating than those who are supppose to uphold the law and justice for others to just manipulate it and hurt people in thier system and if you find any avenues to get help please let me know. Do you have disablility lawyers in your town? NAMI is in every state.

    Last edited by eliseb; 12-12-2004 at 08:20 AM.

     
    Old 12-13-2004, 02:00 AM   #9
    KawaiiiGal
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    Re: This is for anyone w/ schizophrenia...

    this is exactly why I'm going to become a psychiatrist. I do not have schizophrenia...but after watching a documentary about the mental health ward in the Bellvue hospital...I was appalled at the doctors and how they really seemed to hype all the patients up on meds the minute they walked through the door...and they never really took the right time to talk to the patients and understand the symptoms being presented. These doctors don't take the proper time with these people they drug em up like everyone else and send them on ther way. I think that if I could start my own practice I could change a lot. When someone would come into my hospital in a psychotic state...i would have a staff of well educated psychologists like myself, who will watch the patient for 24 hours, and in those 24 hours you can really see the bases of the illness which applies to that one person...and the doctor would see this persons certain symptoms, and gives you time to talk to the person and figure out when the onset of the illness came, and what may have caused it...if the cause is organic or emotional or anything else...but doctors are so drug happy they are misdiagnosing so many people and I don't think the people with mental illnesses are treated right, so my goal and dream would be to become a famous psychiatrist for my practice and my change in the medical world.

     
    Old 12-13-2004, 08:59 AM   #10
    2BNormal
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    Re: This is for anyone w/ schizophrenia...

    Quote:
    Originally Posted by eliseb
    Don't be angry at God???? IT is so good that these post have come up and I am a very spiritual person and helping soembody with this problem now? Please call NAMI with this? aNd send them this thread? National alliance for Mentally Ill? THey know about all of this and the disorders and the misunderstandings in the courts? ( You wouldn't happen to be Alaska would you?) I do not have this disorder but my friend was sent to jail secluded and could not see or talk to anybody for weeks? ANd it was just a HALDOL problem? I kept telling them this and they would not let me talk to him and the Haldol was making him more aggitated and they wer all claiming he was not stable? He was angry at being treated like an animal and strung out on Haldol? He was calmer than I was trhought whole thing? Use to it? I am an LPN and other LPN's agree with me. But it is awful how these popele get accused of things ? Some of it has to do with money and state funds. ANd they DO LIE. YOu need to find and ADVOCATE for him. ANd their IS a GOD above and he DOES care. You sound JUST LIKE ME!?? At one point in time I would not show up to court SO TICKED? ANd I had ABSOLUTELY NO RESPECT FOR THE MENTAL HEALTH SYSTEM??? My words exactly. I was disgusted , and feel the same way about our family court here. RIDICULOUS. NAmIE helps facilated, support and educate those with mental health issues, INCLUDING COURT PERSONEL!. I am so glad you posted this. I dont think there is anyitng more violating than those who are supppose to uphold the law and justice for others to just manipulate it and hurt people in thier system and if you find any avenues to get help please let me know. Do you have disablility lawyers in your town? NAMI is in every state.


    Haldol is a wicked med and has some serious side effects. My son started on this med when he was 19, and besides the above effects, he was quick to get angry, constantly complained of the pain, got violent at everyone including me! He would tell me "dad, take me the hospital for the shot, I don't want to yell at you. I may even want to swing at you and other people I see looking at me." He would curse at the top of lungs and pound the walls and floor to avoid hitting a person. They gave him Adivan, to make him feel good and that med has its own withdraw effects, they also gave him sleeping pills to prevent him from getting psychotic from not getting sleep. He was taking at minimum, 4-5 different pills to cope with this med.
    I'm glad he's off this stuff. Always request the newer meds and talk to the Doctors! If you have a doctor, always call and let them know if you or your loved one has checked themself into the hospital for monitoring. You and tyour doctor will be able to communicate with the hospital staff and doctor to insure the correct treatment is being adminstered.

     
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